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Diagnosed yesterday stage 1.b.1

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2387natty
Diagnosed yesterday stage 1.b.1

Hey all, 

So yesterday came the news of having stage 1.b.1.

I will be having mri and ct scan within the next two weeks and I am absoloutley terrified of it being elsewhere :(

I don't really know what im wanting from writing this, my head is just all over the show

N xx

Lucindaw17

Hi N,

I am so sorry to hear of your recent diagnosis. I am still in the stages of waiting for results but I just wanted to send you a big hug and lots of love. Its such an awful and scary thing to go through- especially when its so unexpected!! Hopefully one of the other lovely ladies on here who've had a similar diagnosis to you can send some words of wisdom and advice

 

xx

27/4/19- Pap Smear- CIN3 squamous cells and adenocarcinmoa in situ. 1/5/19- Colposcopy - pap smear actually indicated cancer -  2x biopsies taken, will be referred for MRI and CT. 8/5/19- Colposcopy results - just CIN3 of squamous cells  10/6/19- Cold Knife Cone Biopsy and Endocervical Curettage. 14/6/19- CIN3 squamous cells successfully remove, clear margins. No involvement of glandular cells as first indicated in pap smear. No further treatment needed. Follow-up with 6 months pap smears.

Lotty9000

Hi N

Just wanted you to know you’re not alone. I know I have a villoglandular adenocarcinoma however I don’t know the stage yet. I’m waiting on an MRI and CT scan. I totally understand your fears and it feels surreal and terrifying. Whatever happens there is support here and you’ve got this! 

C x

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

2387natty

Thank you so much for your replies, 

It's been a whirlwind few days that's for sure, you know when you think you're in a nightmare then you wake up in the morning forgetting and then it hits you again.

I think it's going to be a whirlwind for a little while yet until I have a plan in place re treatment etc

I haven't cried today so that's a bonus :) I hope that the mri and ct shows it contained but we never know hey and until then I can't stress about it as nothing can change it right now.

You're both right, it's such an unexpected and surreal thing to take on board and get our heads around. 

Thank you again for your messages 

N xxx

Helen7
Helen7's picture

Hi Natty 

Well, this time last year I'd just had my pre op appointment for estimated 1b cervical cancer. I had my operation the day after May bank holiday. I remember walking to the theatre and the anesthetist who walked me down said this time last year I was in your position, at the time I thought I wish my clock would fast forward a year and this nightmare be over. Well, here I am and have my 12 monthly check up next week.

At your stage it will all be scans, pre operation (If you are having a hysterectomy) tests. It really is the worst point. I had a radical hysterectomy by keyhole and was allowed home the following day. Had to have a catheter for a week which is manageable then went back two weeks after for histology results, all clear and was put on 4 x monthly follow ups. 

Depending on your age and stage you may not have my op, can be treatable other ways if you are planning a family. I can only tell you my experience. 

If you have any other questions, please ask me. I don't think many 1b patients hang around and keep on posting, moved on and back enjoying life. There really are a lot of us out there.

Wishing you the very best xxx

2387natty

Hey Helen7, 

Thank you for your reply. 

Yes the waiting is the worst, my best friend and I have joked that let's get on and remove it ourselves so it's gone, I think humour and the sense of humour that I am surrounded by is a big bonus at the moment for my mental state. 

I would just love to get going, the nurse called me yesterday and said my scans should be next week. 

This has all happened so fast from the day I had my smear to a visit to colposcopy for a double lletz procedure to being diagnosed has all been within a month!! The NHS have been incredible.

I am 31 and as far as I'm aware have no other medical problems, rarley catch a cold, run half marathons and even climbed Ben Nevis the day after my smear!

It's all just a shock and I know with a positive look to it that I will fight this and get through it, I think I'm more scared as I really don't like hospitals which sounds silly as they are there to help you!

I will keep you updated on how I get on etc and I can't thank everyone who I ahve reached out to enough :)

I am glad that yours went well and you are a year away from the nightmare and I hope everything is all good on your 12 monthly check up :)

N xx

Helen7
Helen7's picture

It's good you are sounded by friends with gsoh, you really need it. Even though it's a very worrying time I could write a comedy sketch  over some of my things. 

The NHS were fabulous the way they race through things. Initially I was terrified as I didn't have a staging. I asked why everything was rushed so they told me they've a 62 day rule to get your treatment started from a referral. 

I had a radical hysterectomy including ovaries, in most cases they leave them, I was menopausal anyway so didn't matter to me. Xx

Lotty9000

Hi N

Glad you’re surrounded by good friends, I too have had great support and I have quite a dark humour which I think helps (well it does me). 

I have just found out I have my MRI and CT scans on Wednesday and then they’ll discuss my case at the MDT meeting the following week. Fingers crossed for a plans in the next couple of weeks. 

Good luck xxxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

Lucyc222

Hey, I found out I'm 1b1 yesterday too! I was originally told 1a1 but after a meeting they regraded to 1b1 and that's all before my scans that are next week too! I'm 26 and have no children so hoping for a trachelectomy rather than a hysterectomy and that was something my consultant was saying would hopefully be possible. If I'm honest I don't even feel its happening to me but I'm sure that will change when I have a catheter in my bladder! All the best for your treatment!! Xxx

 

LC x

2387natty

Hey all, 

Today I woke up feeling so emotional, I thought I was dealing with this OK :(

I had  a double lletz treatment nearly 2 weeks ago and at first had light belleding but now it is heavier and I'm so scared, I keep reading contradictions some say its normal some say not, I don't have any pains or feel unwell etc I don't know if my mind is just going into overdrive after being diagnosed. 

Jeez what a rollercoaster I just want to get in for my scans and get this nightmare over with. 

Thank you all so much for your messages they really do help

Lots of love 

N xx

Sbray

Hey N

i’m just starting my 2nd week of Chemoradiation for stage 2b.

i just wanted to tell you it’s ok to feel the way you are feeling. I’m as positive and proactive as they come but still have the downs as well as the ups.

you are coping amazingly well! You are doing a fantastic job processing it all as it’s nothing short of a mind£&@k! 

Go easy and be gentle with yourself.

You’ve got this xxxxx

2387natty

Sbray, 

How are you getting on? 

N xxx

Katie148

I found out I have at least 1b on Tuesday. At my desk at work because some idiot uploaded my report to my online patient portal! Then colposcopy nurses refused to speak to me about it and said it’s out of our league that’s why you have an appointment with the consultant tomorrow. (They booked it the week before and told me it was nothing to worry about, didn’t tell me I should bring someone with me THANK GOD I did although I already knew didn’t I!) 

Macmillan nurses got me an urgent MRI on the Friday. She told me to drink a litre of water before and hold it in, the radiologist said nope you need an empty bladder go to the loo now! 

Appointment with the specialist and Macmillan nurses at 10AM tomorrow. 

I’m 24, single, no kids and desperatlely want a family. First smear was in February, routine invitation letter 6 months before 25th birthday. I BEGGED for an early smear at 21 as I had all the symptoms of cervical cancer and got told I was being ridiculous. And here we are... 

Since Feb I’ve had so much wrong information from colposcopy. They told me my cone biopsy would be local anaesthetic 20 mins in their clinic and nothing to worry about. Then I got a call from gyno to arrange my pre assessment for GA... they’ve been snappy and rude with me when ringing up scared to ask if they have my results yet.. devastated I’ve got cancer but relieved I can now call macmillian nurse instead of the absolutely horrendous colp specialist nurses. 

Not sure how anyone else has dealt with the diagnosis but I booked a train to see my family and friends (I live 200 miles away from my mum so that’s gonna be hard!) I’m ridiculously ‘extra’ with everything in life so yesterday I demanded balloons and Prosecco... went for ice cream and made extremely dark jokes all day. Posted the balloons etc on Facebook and then broke down at about 11pm as my dad thought it would be ok if I meet his step daughter for the first time today!! 

I wish this forum was an app...I downloaded an American one called belong and all I’m getting is religious wellwishers I just want to be able to chat easily! If I win the euro millions I will get us an app! 

Lotty9000

Oh Katie, I’m so sorry you’ve had to join this group. I’m also so sorry you found out the way you did.

I only found out about my cc 8th May, I’m waiting for MRI and CT scan on Wednesday. The first few days I really struggled,like a horrendous nightmare that I’d wake up from. I allowed myself a day on the couch to wallow a little,didn’t get dressed and then thought “right I need to get on”. I still find things difficult, I have some good days,some sad days and some days where everything seems so surreal. Be kind to yourself and allow yourself to do whatever you need for you.  

The waiting really is the worst! But you’ve got this!

 I’m happy to chat whenever you need!xx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

Lotty9000

Hi

my LLETZ was 1st May, for the first 10 days I had a brown/pinkish watery discharge (sorry if TMI), then I got period like cramps and quite heavy bleeding with some small clots. Soaked 2 x thick maternity pads in less than 30 mins, clots weren’t big about large grape size. I called the local gyn ward and they wanted to see me.  I got antibiotics for a ?infection however my consultant has since said to me “oh yeah it’s common to have heavier bleeding about day 10”. It would’ve been helpful to have this information before I started panicking and thinking this bleeding meant to tumour was everywhere! (It turns out there was no infection the swab came back clear)

The long and short of this waffle is that it’s quite normal to have a heavier period like loss after about 10-14 days. If you’re worried then call your contact details (should have got some on a leaflet after your LLETZ) and get checked out.

Try not to worry,however I know you will. Xxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

2387natty

 Hey, 

Yeah I'm a born worrier so this has thrown me into meltdown!

However I think it is all in my head as I'm not soaking pads it's just heavier then what it was straight after the lletz treatment. I didn't get any information after the lletz procedure apart from being told no sex for 3 week, don't use tampons and don't bathe just shower, no leaflet.

I'm glad that there are so many lovely ladies on here for sharing how we all feel and our experiences, howevr I'm not glad for the reason we are all on here! 

I'm just taking each day as it comes and if holding it all together one day then crying the next is how it's going to go then so be it, I must remember... I don't feel ill, I don't look ill so mentally I have to belive that nothing has changed and all will be sorted! 

My husband took me away for the weekend in the campervan... I dropped a fork and burst into tears...ridiculous lol

Lots of love to you all and thank you 

N xxx

 

2387natty

Evening ladies, 

I had a call to say that my mri is booked in on the 29th this month and hopefully my ct scan will be around the same time!

Just want to get going!

I hope you're all OK and had a good weekend :)

N xx

Lotty9000

Hi

Glad things are moving along for you! It helps when you get dates to head for. My MRI and CT on Wednesday so getting a bit nervous and worried again. I keep looking at stats etc o line which probably isn’t helping! 

C x

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

2387natty

Hey Lotty, 

I'm glad you also have a date as like you say it helps the mind... A bit!

I will be thinking of you and please keep me posted, I feel claustrophobic already just thinking about mine!

Lol don't worry I keep doing that to we shouldn't but I can't help it!

N xx

Lotty9000

Thank you! It’s nice to have someone else going through it all at the same time. (Although I’m not glad that anyone is having to go through this!)

Im not having a brilliantly positive day today but hopefully tomorrow will be better.

i also feel claustrophobic thinking of these!ill let you know how it goes xx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

2387natty

I know what you me a hey, it is so nice to have people to tlak to but as you say, totally sucks as to why!

Oh don't worry, yesterday I had a terrible day crying at the most ridiculous things, but today has been a better day. 

If I'm feeling rubbish I just say to myself, do I feel any different? No. Do I look any different? No. Therefore I won't let the mental did eof it make me feel any different, each day is a new day and a day closer to getting it sorted! We can do this and we will!

I spoke to the nurse about how claustrophobic the mri is and she said it isn't actually too bad as they only have your bottom half in? You will have to let me know.

Do you have someone going with you?

I hope your evening gets better and just remember, we can do this!! :)

Xx

Katie148

MRI - ask to go in feet first!! I would of had a panic attack if I didn’t! Luckily mine was a brand new Siemens machine so it looked like a pretty spaceship. 

They injected me in the top of my arm with something that slows your bowels down so they can get a clear picture. Said I might get a racing heart, blurry vision and dry mouth but it’d stop by the time I was out. I only got a dry mouth!

You get strapped in with huge board things on you that are the cameras.. I was anxious at that bit but only because I didn’t know what was coming next. 

Each scan is 3-6 minutes and after a while sounds like shitty techno music that never drops. One of them sounded like the grunting noise that Tim Allen does if anyone knows it?? That made me desperately want to laugh! 

1. Tell them you’re nervous

2. Demand to go in feet first 

3. Close your eyes 

4. Concentrate on your breathing 

The worst thing that can happen is you move and they have to start one of the scans again, meaning you’re in there for another 3-6 minutes

I had my results meeting today..

MRI clear, CT to triple check full body within next week, pre assessment 14th June, open surgery trachelectomy 18th June 

 

Lotty9000

Thanks Katie for the tips! I’ll see if I can spot the grunting techno lol

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

2387natty

Morning Katie, 

A pretty spaceship with shitty techno music, this made me laugh reading this! I shall let you know if mine is the same!

I'm glad you now have a plan in place and know more, the waiting is the worst isn't it, I just want to get going!

I hope you're having a good morning 

Xx

2387natty

Ladies, 

I had a tonne of bleeding today and I called the nurse so to help ease my mind she said to come up to the ward as the Dr I have been seeing was on the ward today, 

He gave me another lletz and some anti biotics as possible infection :(

This has bought my mood so down, it hurts :(

Xx

Lotty9000

Hey Natty.

I’m sorry to hear this! It just makes you panic and worry eh? Hoping it settles soon, I had a bleed about 10 days post LLETZ, got antibiotics but it settles after a couple of days but still bleed for another week or so.

Take care of yourself. You’re allowed to have low days.

I got a call late this afternoon to cancel my MRI tomorrow,the scanner is broken. This has oddly made me feel quite low, it’s outwith anyone’s control but it just prolongs the waiting!

Tomorrows another day and I’m hoping to feel a bit brighter and I hope you do too xxx

 

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

2387natty

Hey Lotty, 

Yeah the nurse said what you said about the 10-14 day bleed after lletz but siad to just come up for ease of mind, next thing I'm having another lletz this time was so so painful :( I have antibiotics to take over the next 7 days.

Oh really I'd be feeling exactly like you do, it's the waiting isn't it, its the worst as you just want to get going and start whatever needs to be started don't you!

I've had such a low day today so I'm hoping tomorrow will be a more upbeat day :) even if I am waddling around lol

Xxx

Lotty9000

Hoping you feel better tomorrow,another LLETZ sounds rotten. I’d feel the same as you,I know how low I felt when I went in with the bleed and had antibiotics never mind them doing another LLETZ!

Take care xxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

Katie148

Act as entitled as I do. Ring up daily for scan dates, results etc. The voicemail I woke up to this morning might as well have said “your CT is now on Thursday your highness”. They’d booked it for a day before my surgery, so I called and said that’s ridiculous I need one within 3 days! 

I want to quit my job and move up north back to my mums but the treatment is so much quicker in London. 

Back to working from home tomorrow - I’ve only been a 9-5er for two years so I’m not used to being a grown up and pretending I’m fine in front of strangers... gonna attempt to go in on Friday! 

Lotty9000

I intend to stalk them today while I’m there for my CT. I do understand that these things can’t be helped but it doesn’t help!

I’ve been working as usual and have only told a handful of people as I can’t cope with the “looks”, I know I sound a bit mental and almost in denial but I suppose it’s my way of coping. I have to say I’m not sure I’m coping that well at times and I am thinking of taking a bit of time off soon. I don’t seem to have any sort of tolerance at the mo. 

Have you had your surgery Katie? Good luck if not. 

Cx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

Katie148

It’s on the 18th of June - they can’t do it sooner apparently as I’m still healing from NETZ... Don’t know why that matters if they are now whipping my whole cervix out! Think she’s timed it with my next period too who knows and that’s out of whack after NETZ anyway. 

Found a good cervical cancer Facebook group and a trachelectomy one someone’s just told me about which will be a god send. Apparently it’s got success stories on people who have gone on to have kids no reoccurrence etc. 

Asked my tech friend about an app she said we could make a jos trust slack group. I’m gonna look into it when I have a minute.

havent had time to even watch tv in a week it’s been 8 days of constant phone calls texts... who knew cancer had so much fucking admin 

 

Lotty9000

Ha Indeed Katie!

Let me know how the group goes.

i survived my MRI today and CT scan yesterday. Your tips helped,they put me in feet first anyway so that was good. Very surreal experience but done.smile

 

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

nursebee

Hi Natty,

Just seen your post ! Apologies for not replying to your previous message - I've been working constant nightshift so I don't know if it's new york or new year just now! lol!

That's great you have your MRI & CT's coming up, it always feels a bit better to have a plan of action.
I hope you're doing okay under the circumstances.

I'm unfortunately still waiting on my biopsy results! 3 weeks 1 day and counting.

You girls are so strong dealing with all of this!! Really hoping you all have a good outcome with regards to treatment plans. These forums are great, I've been lurking for a while whilst awaiting my own fate - it's amazing to see the support between strangers.

Take care guys, you're amazing!

B xx

06/03/19 - Smear taken

18/04/19 - Abnormal cells found - no result indicated

01/05/19 - Colposcopy and LLETZ same day

Awaiting results :/

Lotty9000

Good luck for your biopsy results, I hope the fact it’s been over 3 weeks means they’re all fine. Mine were meant to take 3 weeks but were back in a week because they weren’t.

 

C x

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

Katie148

https://www.facebook.com/groups/fightit/?ref=share

join this if you haven’t already! Pre cancerous cells welcome also! Xxxx

Lotty9000

Hey Katie

I can’t seem to get that group on Facebook? I’m probably doing something daft xxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

Katie148

Its called TTL - trachelectomy group, picture is blue butterflies! You have to answer two questions and then they approve you xx

2387natty

Ladies, 

I need some advice, I know we're not doctors however.... 

Is there any point me carrying on on my pill? I've just had my 7 day break and meant to start taking again tomorrow, the fact I want nothing near my vajayay at the moment alongside not know results etc yet I just feel there is no point at this moment?

Thank you 

xx

Lotty9000

I’m similar,I have an implant and I keep wondering what the point is! 

I did ask the consultant about it and they said just leave it. Although I am curious about when I’ll get this out?

 I suppose it’s a personal decision for you. I don’t even want to contemplate sex at any point ever but that may change at some point. So I suppose you can always restart it after you know a plan or if you need to? 

C x

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

Locket

Hi natty, 

Like you had my seven day break and just thought what’s the point, as I assumed whatever the way forward my fertility would be affected. And I knew wouldn’t be having sex anytime soon so just came off it. Really weird as been on it for best part of 15 years! 

Have a chat with your nurse about it 

x

Katie148

Hope everyone is ok! My trach is next tues bricking it :))) x

Lotty9000

That’s come round quickly! Good luck next Tuesday,will be thinking of you!

I’ve got a repeat LLETZ on Thursday to be discussed at MDT and then they’ll decide whether radical or simple hysterectomy 

xxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

Dee78

Well I finally got my results today - staged 1a2.  Need to have another lletz on the 24th June to decide on treatment plan but it looks like surgery.  

Relieved but still scared.  At least things are moving now. X

1st April - colposcopy and lletz

13 May - told cc

29 May - CT and MRI

12 June - staged 1a2, need another lletz to confirm treatment

24 June - 2nd LLETZ, awaiting confirmation of treatment

4 July - RH required, date to be confirmed

Lotty9000

It’s good news it’s been caught in the early stages! 

I’m in a very similar boat to you and am having my repeat LLETZ tomorrow!

 I know exactly how you feel, I was relieved it also scared. Felt a bit like the best of the shit situation (if that makes sense?)

Good luck xxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

Jen12
Jen12's picture

Ladies I’m sending big hugs to you all,and wishing all the best 

been reading what’s been happening with you all and I’m so glad we all have this site to give support to each other 

will all beat this and with attitude and positivity even on our most crappiest days which we’re having 

sending love to each lovely ladies on here Jen xxxx

jen

Katie148

Cancer free since 1st July - we got this! :)

More Information

Cervical cancer