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Waiting for Results

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Dee78
Waiting for Results

Hi,

I am looking for for a little help.  Can you please let me know how long you had to wait from having your MRI/CT to your staging and how you found out e.g. phone call, letter.  

I was diagnosed on the 13 May (6 weeks after colposcopy) and had MRI and CT on the 29th May and as yet I haven’t heard anything.  They did say results in 10 days and it isn’t much past that but I am totally freaking out.  I jump everytime my phone goes. Part of me doesn’t want to know as I am terrified but know I need to find out at some point.

My anxiety is sky high.  Delevoping aches and pains everywhere since I found out, not sure if it is just all in my mind.  Xx

1st April - colposcopy and lletz

13 May - told cc

29 May - CT and MRI

12 June - staged 1a2, need another lletz to confirm treatment

24 June - 2nd LLETZ, awaiting confirmation of treatment

4 July - RH required, date to be confirmed

Locket

Hope someone can give you some advice. I had scans on 25th May and found out the following Friday. I also had lots of aches and pains too but it was all in my head. 

Really hope you get your results soon x

Alice89

Hi Dee. 

Personally my MRI results were quite speedy, maybe just over a week. But it does depend on the hospital. Your results have to be discussed with your MDT team and it will depend what day they meet as well. 

I was told via a phone call from my cancer nurse which I had asked her to do after I got diagnosed. But I think think if I hadn’t asked for results via phone it would have been a letter. If you have a cancer nurse then it might be an idea to give them a ring if it’s giving you a lot of anxiety  

As for aches and pains I think I can speak for a lot of ladies when I say that it’s normal. I think you can just become hypersensitive to every little twinge your body has, which is understandable in our situations. 

Anyway I hope that when you do get your results they are as good as they can be. 

Alice xx

Lotty9000

Hi Dee

The waiting is awful eh?! I had my CT on 22nd May and MRI on 23rd May, MDT met the 29th and I got my results the same day. 

It depends on when the MDT meet in relation to your scans etc. Hopefully it won’t be long.

The aches and pains are a definitely a thing for everyone in these circumstances,your mind sends you crazy with thinking. 

Good luck xxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

nm_353
nm_353's picture

Depends on your hospital. I’m in US. I’m able to pick up my results in person within 48 hours after a scan, or some places upload them into the patient portal. I usually get them before my doc even has a chance to look. I’m not sure how things are done elsewhere. I had a scan yesterday, I am picking mine up in the morning. Ugh! Nervous lol. 

June 2016- pap, not up to date, results abnormal

Julyy 5th-  After followups diagnosed with Adenocarcinoma

July 12th 2016- Met with oncologist, clinically staged at 1b2, staging confirmed with MRI and PET. Tumor is endocervical and approx 7 cm.

August 2016- Started chemorads. Post followup after treatment, NED

Sept 2018- Still NED

Lotty9000

Good luck nm, hope they all remain NED

xxxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

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Treatments for cervical cancer