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Pregnant after Radical trachelectomy

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Gem1013
Pregnant after Radical trachelectomy

Hi all,

I’m hoping for some advice from the ladies who have conceived following a Radical Trachelectomy. I found out today that I’m six weeks pregnant after five rounds of ivf and two miscarriages. I had an early scan today and a heartbeat was detected.

Obviously it’s very early days but I wanted to know what people’s experience was of pre-term labour for ladies in our situation- any advice on how to keep the fetus healthy/what to avoid etc. Any info or help you can give me would be amazing- I’m freaking out a little bit and not sure what to do next...

 

Thank you in advance, you’re all amazing.

Gem xxx

Oct 2013: diagnosed with 1B2 adenocarcinoma

6 cycles of chemotherapy 

Dec 2013: Radical Trachelectomy and lymph node dissection 

reiofsunshine

Hi Gem,

Thank you for posting this. I myself have also just become pregnant (6 weeks now) after trying for almost 7 years now (x2 failed IVF cycles, natural conception success), and having had a radical trachelectomy over 10 years ago. I've been searching online for support with little success, and came across your post. I'm hoping there's some ladies out there that can help us out! Anyway, it's really lovely to know there's someone else out there in the world going through the same thing. 

I hope things are still going well, and am here for support through this journey. 

 

Rei

xxxx

Janey25

Hey both!

I am also in the same boat, I am pregnant (about 14 weeks) after having had a radical trachelectomy 4 years ago.

I have been referred to a pre term birth clinic and I am seeing the consultant from that clinic when I will be 18 weeks. I can update you after that.

I read on the nhs website not to have sex when pregnant if you have a weakened cervix so considering I don't have one, we have decided not to have sex. The midwife didn't know how to advise on this and said to wait to see specialist.

I have spoken to someone who had a cone biopsy and has a permanent suture, she has had two children and was told not to swim during pregnancy. So I am following this advice until I see the specialist.

 

Hope this helps a little bit and I'm hoping someone who has had successful pregnancies can help us all out with more advice. 

It would be great to keep in touch on here.

Hope you are both feeling ok and not nauseous! All the best xxx

Diagnosed with stage 1b1 cervical cancer in January 2015, aged 25.

Had radical trachelectomy in March 2015 and given the all clear two weeks later.

reiofsunshine

Hi Janey,

 

Thanks so much for posting a response! I'm at 12 weeks now and still freaking out over the slightest bleed. Had two threatened miscarriages (second was just this morning) and don't feel so supported by my gynaecology team. Thank you for the suggestions, I too have been abstaining from any penetration (much to the sheer dismay of my partner) and am sadly starting to feel quite lost in all of it. I don't have a very strong support system and the lack of information out there is a struggle. 

Hoping you're still going strong, you must be nearing the 20 week mark soon! 

Rei 

porkins79

Hi ladies 

congratulations on your pregnancies. I had a successful pregnancy 3 years ago following a radical trachelectomy and IVF. My daughter was 8.5 weeks early and is now a happy and healthy 3 year old. 

If you click on my profile you’ll see I posted my whole story back in sept 2016 which may give you some help or reassurance. 

There are a few of us on here who have had successful pregnancies so I hope we can help you as much as possuble

pleaee feel free to send a private message to me too if you want more info 

xxx 

 

Stage 1b1 diagnosed after routine smear Nov 12 (age 33)

Radical Tracelectomy Dec 12

All clear! 

GillyPPP

Hi ladies,

 

can i I ask how many of your pregnancies were from ivf or natural conception??

thanks. X

37 years old.

abnormal smear in my 20's, resolved itself. Normal smears since.

22.03.17- smear, abnormal.

20.04.17-colposcopy and LLETZ to remove what looked like high grade cells.

03.05.17-cervical cancer thought to be stage 1b. Margins not clear at sides.

MRI and CT.

12.05.17-confirmed not spread, confirmed stage 1b.  adenocarcinoma. Lymph nodes appeared normal size. offered radical Trachelectomy with lymph node removal to check them for spread.

 31.05.17 MRI with the magic wand up the foo.

9.06.17 examination (EVERYWHERE!) under general anaesethic. Biopsy from womb taken.

30.06.17 non-radical trachelectomy.

13.07.17 lymph nodes clear. :-)

Gem1013

Hi everyone,

Thank you so much for your replies- I hadn’t seen an alert to say that anyone had responded so it’s great to see this!

I am 24 weeks on Saturday after quite a tough journey. We had a couple of threatened miscarriages early on but thankfully I’ve had no bleeding since entering the second trimester. I’m being monitored pretty carefully and unfortunately was told today that a fibronectin swab has come back positive, I think this means there’s amniotic fluid present in what remains of the cervix- has anyone else experienced that? 

Ive been told that bed rest doesn’t really help and that I should continue as normal unless I have any pain/pressure. Obviously I’m worried about going in to very early labour. How have your experiences been so far? I’ve not been told to abstain from anything but sex is the furthest thing from my mind! No swimming or baths either in case of infection but again, I haven’t been told that I can’t!!

I look forward to hearing back from you! Xxxx 

Lotty9000

Congratulations on your pregnancy!

a fibronectin test give a % chance of you going into labour within the next few days/weeks. The % depends on the level,well that’s how our test runs in our local health board, it may be different in others.

I’m a midwife and I have to say that before I started my own journey with CC I hadn’t come across anyone with a Trachelectomy. I don’t know if this is because pregnant women with Trachelectomy are cared for my bigger hospitals? Anyway I feel I should improve my knowledge so that if I do meet someone I can provide some information.

Good luck with all your babies and I hope they all stay safely inside until they are ready.xxxxx 

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

29/8/19 Total Laproscopic hysterectomy with ovarian conservation.

26/9/19 pathology confirms NED:-)

CJ2019

Hi everyone, 

Congratulations in your pregnancies! I am following as I am due to have a RT on a Monday 22nd. I was diagnosed while 5 months pregnant and very lucky to have my little boy born in April but would love to have more children, very heartened by your experiences so fingers crossed I can follow in your footsteps! 

 

Xx

CJ

JoannaCoppin

Congratulations on all your pregnancies! I hope they are all going to plan and you are all glowing! x 

Just in response to one of the messages around having sex. I would stay clear. As we do not have a cervix (following the radicial trachelectomy) we do not tend to get a natural 'plug' which usually sits between the cervix and the uterus. This means infection can be more prone so best keep out anything that can let bacteria in.

I definitely dont want to worry any of you, but I lost my baby at 20 weeks following a sepsis infection. The doctors couldnt give us a solid explanation as to why, but couldnt rule this out. Not sure if appropiate to share, but I would have liked to of known any possible dangers when I was pregnant. 

Wishing you all lots of love and luck xx

It would be great to hear your success stories once your little ones arrive x

 

Jemsa

Hi Everyone,

I just wanted to congratulate you all on your pregnancys, they have all given me hope.

I was diagnosed two years ago with stage 2b cervical cancer, as I had only just turned 28 they agreed to do RT (chemo, rediotherapy & brachytherapy).  I have such mixed responses from my oncologist, gynecologist & fatility specialist about being able to carry & need to go for scans to see if I have enough blood suppy to my uteras.  Although I`m sure it`s not going to be easy reading your stories have given me some hope.

I hope your pregnancys continue to go well & I hope to hear about your beautiful babies soon.

Lots of love

Jem

 

More Information

Living with the side effects of cervical cancer