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Bile acid malabsorption

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Carter0071
Bile acid malabsorption

Hi ladies,

its been a while since I’ve been active here. 

I finished chemo rads in June 2018 and in remission. 

Doing well, back at work on refuced hours, trying to enjoy life. I’m still shattered though, fatigue is a monster. 

I have been diagnosed with a form of pelvic radiation disease called bile acid malabsorption and just looking to see if anyone else has this? I’m on meds now and been told a low fat diet will help, anyone have any other tips or advice?

nm_353
nm_353's picture

I’m 3 years out of chemorads and I still have bile that backs up all the way to my throat everyday! It bugs me. So between that and the diarrhea it likes to give you it sucks! They just tell me to change my diet. Goodluck. If you find something that works let me know!

June 2016- pap, not up to date, results abnormal

Julyy 5th-  After followups diagnosed with Adenocarcinoma

July 12th 2016- Met with oncologist, clinically staged at 1b2, staging confirmed with MRI and PET. Tumor is endocervical and approx 7 cm.

August 2016- Started chemorads. Post followup after treatment, NED

Sept 2018- Still NED

Joben59

Hi

I am sure I have Bile acid malabsorption but after my Radiotherapy I was diagnosed with PRD but predominantly IBS. As I am always on a diet lol I follow a relatively low fat diet anyway but the effects of a High fat meal is horrendous (you don’t want to know!!) 

last night my husband and I treat ourselves to an Indian; I haven’t had one in years. I had half a chicken korma, half a pilau rice and one poppadom, within 20 minutes I was on the loo with extremely bad diahorrea. Hence why I’m searching today!

please can you tell me how you went about the diagnosis, I did mention it to my GP a couple of years ago but found him dismissive to my idea. I have decided to go back and push it.

Thanks in advance

Jo 

Jazza
Jazza's picture

Hi

I've had a few bowel problems, since my chemo-RT, though not like the bile acid malabsorption ones described on this thread.  My Oncologist referred me to a Gastro-enterologist for further investigations, which helped.  

I've been doing some reading round the subject and would suggest it might be worth having a look at the website: www.prda.org.uk. For example, there's some information on this website entitled 'The Marsden Algorithm' that might be relevant. I understand that Dr Andreyev is an expert in the field of bowel problems, post radiotherapy.

xx

 

Feb 04:  (age 47y) Smear test normal

Stopped going for smears!

Summer 16: persistent yellow vaginal discharge

Dec 16: post menopausal vaginal bleed

Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 squamous cell cc diagnosed - confirmed by MRI/PET scans

Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A

Apr/May 17: 6x chemo, 25x external radio, 2x brachy

Jul 19:  NED.  Various side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot

 

 

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