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Radical abdominal trachelectomy

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Radical abdominal trachelectomy

First routine smear 6 months before 25th birthday (after begging for an early one at 21) - showed severe CGIN, referred to Colp - February 

Colposcopy biopsy x2 CLEAR, referred to MDT (they didn’t explain this to me properly so I thought it meant I was fine) - March 

NETZ under general anaesthetic - 16th April 

Diagnosis (at least) stage 1b1 - report signed off 8th May

Report accidentally uploaded to patient portal early whilst I was sat at work, refused to speak to me on the phone and said it’s “out of their league” - 14th May 

Face to face “you have cancer, here is your macmillan nurse” meeting - 15th May

MRI & CT clear - May 20th 

Radical abdominal trachelectomy scheduled tomorrow (18th June) 

24, single, desperate for a family so I’m hoping this will work and no more treatment will be needed 


Hi Katie

Wishing you all the best for tomorrow! Hope it goes well and you make a speedy recovery.


11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma and high grade CGIN;

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

29/8/19 Total Laproscopic hysterectomy with ovarian conservation.

26/9/19 pathology confirms NED:-)

10/3/20 1st follow up including vault smear. Biopsy of presumed granulation tissue.....Confirmed negative :)


Good luck!! I am having mine on Monday xxx



Update for anyone trawling through these forums worrying themselves like I did... trachelectomy worked, cancer free 1st July!


Hi katie, 

so glad to hear your cancer free! I am having a Trachelectomy on the 11th November. Like you I am desperate for a family so praying that I have no spread. How soon after did you find out your lymphnodes were clear? I am 1b squamous cell, grade 3. I have read that grade 3 is the most aggressive, does anyone know if this grade is more likely to spread? 


Thabks, holly x 

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