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xxHHxx
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So got my results from the biopsy, all a bit of a blur but I think the consultant stated higher stage 3.

Mri and ct scan coming up in the next 2 weeks. 

They spoke about chemo and radio therapy. 

I'm not sure what to think really. How effective is treatment? 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

Izzzy76

So sorry you are in this position, but happy you've found this wonderful community.

You've had a biopsy , and they said stage 3? Or grade3? Or Cin3? Terminology can be quite confusing. 

 

My stage was not determined by the biopsy, they found cin3 in my first biopsy and cancerous cells in my second biopsy.

 

I then had an internal investigation, they checked my vagina and rectum manually to feel how big the tumor was. I was first quoted stage 1b3 .

 

I then got an mri and was staged 2b because the tumor had slightly invaded my parametrium.

I got my final stage after all the scans were done.

I had to undergo chemo , radiation and brachytherapy which is standard treatment for stages 2 and up. 

 

Treatment is very successful. There are loads off ladies cured from cervical cancer.

 

I hope you'll find as much support and comfort here as I did when I found this place

 

Hugs, you got this!!

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
xxHHxx

Hi thank you for your kind words. 

 

I'm pretty sure they said stage 3 but I could of got that completely wrong. Cervix and neck of the womb were mentioned and surgery not an option. 

I guess from what you have shared that more will be found out from the Mri and ct. 

Really scary tine and  Feeling alone I guess is normal. 

Thank you 

 

 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

Izzzy76

We can al relate to the fears and feeling alone but it will get better. Once you have a treatment plan you will feel better.

 

Surgery is only performed when a tumor is smaller then 4 cm, anything over 4 cm or growing outside of the cervix into surrounding tissue is treated with chemo and radiation

 

Treatment is rough but you may find it is do-able. I was so scared before I started my treatment, so scared of beeing violently ill and having to suffer from side effects, but I have not been sick once. I didn't suffer from nausea, and did not have any side effects from radiation treatment either

 

Now this Is different for everybody, we all react differently but i found it mentally rough but other then that I had no issues. I managed to take care of my baby girl throughout.

I hope this somewhat eases your mind a bit, we've all been where you are and it sucks, but it will get better 

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Memagh

Hi,

Glad you've found this site. It has been a lifesaver for me since I was diagnosed. Just to say that I was diagnosed as 1b2 and my treatment was mostly the same as people diagnosed as late stage 3. I just didn't want you thinking your treatment will be much more severe because of your stage. As Izzy said, everyone handles treatment differently but I also found it less severe than I thought it was going to be. I did suffer from nausea but was never physically sick. I also managed to drive to hospital for every one of my treatments, even on the long chemo days (something I didn't think I'd be able to do). I did find the three weeks after I finished treatment really tough but that may have been due to an infection that was found when I ended up in A&E. It's not a walk in the park but once your treatment starts it passes quickly. We have had some lovely positive stories this week alone from 4 of us girls who have just had clear 3 and 6 month scans. So in answer to your question, I do think the treatment is quite effective. Throw any questions at us and we will help if we possibly can. You can do this! X Maria

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.

10th February 2020

MRI and Pet-CT clear. NED

3 monthly scans

 

Kittens Mittens

Hello xxHHxx

I'm in a similar boat to you. Recently diagnosed with CC, but I am still undergoing the staging process and no-one has said anything to me about what stage the CC might be at or anything about possible treatments. Consequently, I've been doing lots of online reading to prepare and, as Memagh has said, the treatment seems to be the same regardless of what stage the CC is at. Like you, I'm very worried about everything and the not knowing is the worst bit, in a way. I've been advised by my friend that it's best to get your body as strong and healthy as possible before you start treatment. That's what she did and she's convinced it's what made her treatments go fairly smoothly, with few side-effects. So I'm trying to improve my diet and do regular exercise. It is very scary and everyone is saying I will be fine, but it's hard to stop my mind wandering towards "worst case scenario". I hope everything goes well for you - good luck.

KM x

  • 18-Jan-20 High-risk HPV and high-grade abnormal cells
  • 29-Jan-20 Colposcopy and biopsy
  • 07-Feb-20 Cervical cancer diagnosis
  • 11-Feb-20 MRI
  • 12-Feb-20 CT
  • 21-Feb-20 Grade 2 adenocarcinoma stage 1B1 or 2A1.
  • 05-Mar-20 EUA - stage 1B1 confirmed.
  • 09-Mar-20 Abdominal radical hysterectomy
Rissag

Xxhhxx and kittens mittens, so sorry you ladies found yourself in this position but u definitely found a great site with wonderful support, with ladies who have been there done that and have no problem answering questions. Treatment is definitely doable, like Izzy said it's definitely more a emotional thing than anything else, so make sure to have a support system behind you (friends and family)  be easy on yourself and before you know it treatment will be a distant memory.wishing you ladies well and feel free to ask any questions or just have a rant if you need to.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Izzzy76

Welkome KittensMittens, sorry to meet you under these circumstances. I think the advice to get yourself in the best condition is excellent. Your body will be going through the wringer, so the fitter you are, the better.

Also, I found small things such as choosing to walk, eating healthy, and actually doing something for my health gave me a bit of my power and controll of the situation. I felt so scared and out of controll, this and the contact I had with other ladies who had gone or were going through the same thing were a life saver. It kept me from going bat**** crazy.

 

 

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
xxHHxx

I have heard earing healthier and exercising is a good start. 

I'm in a lot of lower back pain is that normal. 

I'm also feeli gpain on most othe parts of my body, not sure if it's all in my head. 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

noodlesdoodles

My heart goes out to you st this point as the waiting is the worst - it really is. Be kind to yourself and definitely look after yourself to help your body as much as you can. Once you have had your scans and you know your plan it will be easier to deal with.

know that we all know what it’s like overall though of course everyone’s experience is their own. You will and can get through it. Be kind to yourself in the meantime and ask about anything you are worried about as someone will always be able to support you. Big hugs xxx

May 19 smear June 19 CC diagnosed CT/ MRI July 19 EUA - into parametrium PET scan Results - 2B clinically/. 1b1 radiologically. Decide between chemorads or hysterectomy 30.07.19 Saw consultant- will do EUA / camera and node dissection first. If spread do chemorads 21.08.19 open Radical Hysterectomy and node dissection 2.9.19 NED Nov19 ISC bladder issues Diagnosed with Lymphoedema
Izzzy76

Yes backache seems to be really common as one of the symptoms and by no means is this a sign that it's really bad. 

 

And yes, those other pains and aches are really normal too, you are so focussed on your body right now, and the tension and stress are.sky high, all very normal 

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
xxHHxx

So silly question give up smoking? Will be hard I know.

I'm slowly coming  To terms with it all my mind is a bit clearer today and going to work had helped. 

Kittens mittens I hope you get your answers soon  

Thnk you all for your advise and kind words. 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

Harvitt

Hi, have you got a big tumour and it's in your lymph nodes? 

I was told its in my pelvis lymph node (1) but due to microscopic cells might be else where. I was originally staged at 2a. My tumour 2.4mm /9mm 

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.
xxHHxx

All in my pelvis and I don't know anything other than that hoping to be told more Friday 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

Harvitt

Mine too. I'll let you know how I get on, on Thursday. 

Good luck. Thinking of you x

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.
Izzzy76

Give up smoking today. It will be hard  but there are studies that show smoking can cause cervical cancer. I used to be a smoker but I quit 7 years ago.

 

When I asked my doctor if there was anything I could do to improve my chances she said quit smoking if  you are a smoker.

 

I know quitting is really stressfull but please do. You can do it!

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
xxHHxx

Done! They are in the bin!

 

Thank you

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

Izzzy76

You are amazing! You got this too!

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
xxHHxx

Not smoking didn't quite work today. But having just 3 is a whole lot better right !!? aiming for zero by Monday.

 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

Izzzy76

You're doing fantastic! You should be proud of yourself!

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Rissag

Xxhh, trying is a great start, keep up the good work and be proud of yourself 

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
xxHHxx

Another question for you all  

Is trouble going to the toilet and being a bit blocked a common problem? 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

Rissag

During treatment? Or before? If you're experiencing it now it might be stress, try a stool softener they really help. I don't know if you guys have the brands colace or miralax but those two work well

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
xxHHxx

Before  treatment, I will try that thank you

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

WendyJE

I had horrendous back pain but as soon as I started chemo it vanished. Constipation is also one of the symptoms and this can go either way during treatment but the nurses are brilliant at treating these things. Stay positive and like the others have said it will be over before you know it x

No missed or abnormal smears. Odd symptoms started in April 19.

Diagnosed with Adenocarcinoma 2b with one lymph node involved on 1/7/19.

Started 11 weeks of chemo on 15/7/19.

Started 25 external radiotherapy on 26/8/19.

2 brachytherapy and end of treatment on 6/10/19. 

 

xxHHxx

Thank you wendyjE.

How did you manage the pain before starting your treatment?I want to keep working for now but the pain makes it hard and I can't have anything too strong as I drive for a living. 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

55

Hello xxHHxx glad you have found support here & hope that your treatment plan will soon be in place

Not knowing exactly what's going on is hard

Take care

 

1st ever abnormal smear hpv & severe high grade dyskaryosis August 2019 lletz September 2019 polyp & nabothian cyst found Results hpv & mild cell changes polyp innocent Repeat colposcopy Dec 2019 test of cure January 2020 results of test of cure; no high risk HPV present , check up colposcopy appointment in June because of the discrepancy between initial smear & lletz result - June 2020 repeat colposcopy & pap - all clear - discharged from hospital - next smear in 3 yrs Back again August 2020 following post menopausal bleed; more tests!

More Information

Cervical cancer