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Just wanted to share some good news as I know how people in the similar situation might be looking for it.
It's been a little bit more than 1 year after radical trachelectomy, and 1 year after 2nd operation, and I passed today my 2nd scan - all clear!!
It's not been an easy year: I had nodes showing up on CT in January, and PET scan didn't confirm cancer, but you can imaging the stress:), the PET scan also saw some kind of the shadow up next to cervix, and surgeons thought it's scarring. I also had LVSI detected after conization (though nothing in the rest of the cervix) and 38 nodes were took out during operation.
Having said this where I am right now after 1 year:
- I still have puffiness around my pelvis. Doctors say it will not go, but I'm ok with that. I don't do saunas or hammams in order not to provoke the situation, instead try contrast showers and apply cold wrappings from time to time. Yoga helped a lot, and I also tried LPG which helped a bit as well, but didn't resolve puffiness completely. Ok, not a big issue.
- I still think about cancer almost every day. But I also learnt to live in the moment - again yoga helped a lot. I come to yoga all worried, I leave yoga all calm after 1 hour. I started spending money as never before :) and it's great, because I learnt that future might not exist
- I do quite a lot of sport. I started with yoga 4 months after trachelectomy, slowly increasing how many times I do it per week, than added gym and tennis. I try to do some sports activity every day. I don't run though as don't feel it's good for me any longer.
- I changed radically how I eat. One of the biggest questions for me was why my body didn't take care of HPV before it was too late? I read enormous amount of scientific researches, also about cancer, and basically developed the following:
.. vitamin D matters a lot for immune system and HPV in particular. My levels were very low during the last 4 years, I made my doctor prescribe me the liquid form of it (the one you take once every 3-4 months), in addition to that I eat cod liver regularly
... vitamin C matters a lot. I start my day with either 2 kiwis (=150% DV of vitamin C) or freshly squeezed orange juice, and also eat regularly bell pepper and broccoli (try to cook it extremely fast as cooking destroys vitamin c)
...vitamin E and A matter a lot. My recipe is carrot with 1 tbs of wheat germ oil = daily dose of beta-carotene and vitamin E, I try to eat this almost every day
... Omega-3 - I take 1.2g every day or eat sardines/salmon
...I also read what's effective for HPV in particular, and taking regularly indol-3-carbinol in capsules, and try to eat at least 1-2 times a week broccoli (2 mins on vapor), and garlic at least 1-2 times a week
... I try to eat the least possible of sugar: no added sugar (extremely high quantity in everything pre-cooked), and also trying to keep fructose and lactose within 30gr for day ... not easy but I'm tracking this ...
.. I'm also taking from time to time baby aspirin - it's helping against cancer, not really sure for cervical cancer, but will not harm :)
I don't take vitamins in the supplement form as there are quite a lot of researches that long-term take has either no effect or provokes other types of cancers.
I have no idea if it works, but it makes me feel better, so I continue.
I still have smear to do end of September, but at least things got cleared with scan.
Wish all best possible recovery, ladies, keep up going!
06/2015 - LLETZ for CIN2 - CIN3 => squaumous cell carcimona diagnosed, 1b1, well-differentiated, 12x7mm, LVSI present. Surgeons offered brachytherapy, but after analyzing PET and MRI opted for a surgery
07/2015 Radical trachelectomy, 10mmx7mm more of cancer (moderately differentiated), no LVSI, 38 nodes removed, all clear, 1cm+ margins everywhere with the exception of one place. Offered a 2nd surgery to cut more and keep enough margins, done 09/2015
01/2016 CT scan, all clear but 2 'probable lymph nodes', 12mm and 20 mm. Further investigation requested with PET scan. Results: reactive lymph node, following surgery (max SUV 3.0)