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1 year still bleeding

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slicknic
1 year still bleeding

Hey Everyone- I am one year post treatment as of the 30th! I had 6 rounds chemo, 4 brachytherapy and 28 external beam. I’m doing well, but definitely have side effects. One has been blood in my stool with every stool, for the past year. I’ve also had a lot of blood the one time I attempted intercourse a couple months ago. And I’ve been using my dialator but don’t get bleeding with that.
I was sent to a Gastro doc and he wants to do a colonoscopy and cauterize any blood vessels he sees. Have any of you done this and found it to be helpful? I’ll be happy if it works, but what can be done for my vagina? I’ve read about hyperbaric treatment but not sure if that works for these fragile blood vessels that are making a mess of things! Hoping for someone who has a similar experience or advice. Thank you!!

Flower Power

Hello Slicknic,     I have had the cauterization done.   It was called APC laser treatment and yes it did stop the rectal bleeding.   I have heard that hyperbaric treatment does work very well on the damaged tissue however, the NHS are it seems reluctant to give this treatment.   I probably think it is due to the cost and time involved as I think you need a minimum of 6 weeks daily treatments.   My NHS has a hyperbaric unit and I did ask for it but it was never offered to me.

Flower Power

slicknic

I am glad to hear you felt it was helpful Flower Power! Thank you for sharing your experience. How was the recovery after treatment. I've had a colonoscopy and was totally fine afterwards, but does the laser treatment add any recovery?

Jazza
Jazza's picture

Hi

I had a spontaneous bleed a while ago and discussed it with my oncologist.  The onc assured me the bleed was not sinister on the basis that nothing was showing on a recent mri scan.  On examination it wasn't clear whether the bleed was from my bladder/urethra or vagina.  I personally feel it was a vaginal bleed due to fragile blood vessels. 

Since then I have followed the advice of my  CNS: regular use of a vaginal moisturiser, as opposed to a lubricant which I only use during dilation (I'm not sexually active).  So far, no more bleeding - in fact the slight irritation/discomfort I used to get in my vulval area also seems to have resolved.

xx

 

Feb 04:  (age 47y) Smear test normal

Stopped going for smears!

Summer 16: persistent yellow vaginal discharge

Dec 16: post menopausal vaginal bleed

Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 squamous cell cc diagnosed - confirmed by MRI/PET scans

Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A

Apr/May 17: 6x chemo, 25x external radio, 2x brachy

Jul 19:  NED.  Various side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot

 

 

Flower Power

Hello,    The answer to your question is it did take a few months for everything to settle back down.    I thought I had done the wrong thing having it done although the bleeding stopped immediately  and has not returned the treatment caused by bowel to go back to the stage It was at while having and after the rads.   In other words I was scared to leave the house in case I pooped myself !!!!   It took a few months for everything to settle back to a more normal pattern.   There was no pain after the procedure and it was only one overnight stay in hospital.    Hope this helps you make your decision.   XXX     Good Luck XX

Flower Power

slicknic

Oh no - that scares me a bit! They had to stop my treatment for a week halfway through because my diarrhea was so bad they didn't think I would live. I had a PICC line put in so I could get fluids most days. So I'm a bit scared to go back to that! But glad to hear it did the trick and was worth it in the long run. 

slicknic

I have certainly thought about postponing. Unfortunately my bleeding is getting worse and it's accompanied by severe abdominal pain. So I'm going in on Thursday with the hope that this will help. Wish me luck!

Flower Power

Slicknic having read the problems you had with diarrhea, if the rectal bleeding is not too bad why do you not leave it for a while before getting treatment.     You are still very early out of rads and they say it can take years for everything to settle and heal.    I was out of treatment over 3 years when I had the APC  laser done.    You can always have the treatment later if things do not settle or get worse.   You could ask for the colonoscopy to see what extent of damage there is.  All my problems where comming from damage done to the lower colon.  

Flower Power

bobbo984

I'm not sure what the name is, but someone here might know...

When my wife was finished treatment it was very sore for bowel movements and had quite bad rectal bleeding.

The Dr gave us tablets which I mixed in a small amount of water and it formed a paste.. this was squirted inside at night before bed and the next day it would give her some relief as it seemed to line the internal walls and allow them to heal. The Dr explained it was almost like a plaster to protect the raw skin. Everytime she would use the toilet it was like picking a scab.. whereas this helped the healing.. I wish I could remember the name. sorry..

When you go through something like cancer with a partner - you go to a new level of intimacy. The first time I had to do this for my wife - see waited until I was finished.. looked me dead in the eye and said.. "you can never leave me now!" haha.. she definitely lightened the mood.

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Moving forward from a cancer diagnosis