(0)
0 Items £0.00

4.5 Years Remission Stage 4 with Lung Mets

14 posts / 0 new
Last post
Anna Sparkles
Anna Sparkles's picture
4.5 Years Remission Stage 4 with Lung Mets

 1

Hi lovely ladies

It's that time of year again!! Scan results time.  It still strikes the fear into me but I am extremely happy to report that I am now 4 and a half years in complete clinical remission with clear lungs and no sign of disease anywhere!!

I never take this for granted and do struggle mentally with how lucky I have been. I know we have lost some ladies recently, my friend Amanda who I met through here being one of them.  I sometime question if I should keep coming back to update you but I know how much it meant to me to find women who were years clear and it gave me a lot of hope.

I know a lot of you ladies are fighting and I am in awe of you all but I'm proof that it is possible so keep going.

All my love as always, 

Anna xxxx

Diagnosed with CC 1b2 with Lymph Node involvement in April 2013. Chemoradiation with Brachytherapy. May 2014 Reoccurrence to lungs restaged 4b. Taxol / Carbo / Avastin

Alice89

Congratulations! X

Tes309

Hi Anna,

I remember you from 2013 so am delighted you have come back to post. 

Im going through a recurrence at the moment so posts like this really help. Thank you. 

I’m so happy that you got this news. 

 

Tess xx 

27/04/13 Smear severe Dyskaryosis.14/05/13 Colposcopy 24/05/13MRI Scan 31/05/13 diag CC stage 1B1 grade 2 Adenocarcinoma, Cold knife biospy under GA 19/06/13 CT scan and blood test Rad hyst booked for 11/07/2013. Histology found microscopic node involvement.  No further treatment required / wanted. All clear 05/08/2013. March 2019 recurrence, starting chemo rads 15-04-2019

Anna Sparkles
Anna Sparkles's picture

Sorry to hear that Tess, message me if you want to chat love xx

Diagnosed with CC 1b2 with Lymph Node involvement in April 2013. Chemoradiation with Brachytherapy. May 2014 Reoccurrence to lungs restaged 4b. Taxol / Carbo / Avastin

Mmouse123

That is great news:-) pray all stays great for you

Jan 2017-1b1 squamous cell

February 2017-radical hysterectomy path report showed parametrium spread and a parametrium  lymph node, restaged to 2b

March to May 2017- 5 chemo and 25 radiation

Lilypingu

Hi Anna

Delighted to read your news and would just say please keep coming back with updates as we all gain so much from positive news. xx

11.9.18:Hysteroscopy/punch biopsies

18.9.18:CC diagnosis-2b

19.9.18:Pelvic MRI

24.9.18:CT pelvic + abdomen/thorax

1.11-24.12.18:4 cisplatin, 32 radiotherapy

10.12.18:Pulmonary embolism

18.2.19:Post treatment check up

28.02.19:Pelvic MRI

02.04.19:3 month check-NED

Weepingwillow
Weepingwillow's picture

Hi Anna

What wonderful news and Thank you for sharing it really is great to hear when people are doing so well x

HannahB27

After recently starting this mix of 3 I am only too pleased to read your story. I need positive story to keep me going. 

I hope it continues. 

Xxx

 

Dec.16 CC stage 2b 6 weeks chemo/Rad (Jan-Feb17) 3 brachytherapy mar.17 (sepsis held up last one) Salvage hysterectomy may.17  4.4.18 recurrence 30.05.18 TPE Sep/Oct2018 -cyberknife 21.03.19 PET scan confirmed Recurrence pelvic side wall and vagina Palliative 6 cycles 3.5.19 carbo, taxol & avastin

nm_353
nm_353's picture

Hi Anna! Please continue to update. It thrills me every time you do. I was just wondering about you recently! It’s my scan time too and I still get anxiety! Be well sister :) 

June 2016- pap, not up to date, results abnormal

Julyy 5th-  After followups diagnosed with Adenocarcinoma

July 12th 2016- Met with oncologist, clinically staged at 1b2, staging confirmed with MRI and PET. Tumor is endocervical and approx 7 cm.

August 2016- Started chemorads. Post followup after treatment, NED

Sept 2018- Still NED

Lotty9000

This is brilliant to hear! Congratulations xx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

Lizzyb

Thanks Anna & congrats, hope you had a little celebration X

Greeni

Hi Anna 

wow fabulous amazing news , so pleased for you . It's great to have such positive updates , I am 3.5 years NED post recurrence , it's wonderful to hear your news and fills me with positivity and hope . Congratulations 

Greeni xx

Daniellest

Hi Anna & Greeni

I'm Danielle, 39 year old mum of 2, I was originally diagnosed with stage 2b cc in Dec 2015 and recieved Chemo/Radiotherapy and Brachytherapy in the early part of 2016.

This is my first time posting, I've just been diagnosed with a recurrence of CC , (stage 4) behind my belly button and in my peritoneium.  It's so lovely reading your comments and how well you are doing after your recurrence...it gives me so much hope. I'm due to have my kidney function  test next tuesday (20th) to hopefully start  my  chemo Taxo and Carbol the week after. I haven't been offered Avastin as yet? Is this something I can ask for fo you know please?

Thanks,

Danielle

Anna Sparkles
Anna Sparkles's picture

Hi lovely

So sorry to hear of tour recurrence but there is always hope. Tou certainly can ask for Avastin, or at the very least leaky why it's not been offered??

Please feel free to message me anytime

Anna x

Diagnosed with CC 1b2 with Lymph Node involvement in April 2013. Chemoradiation with Brachytherapy. May 2014 Reoccurrence to lungs restaged 4b. Taxol / Carbo / Avastin

More Information

Moving forward from a cancer diagnosis