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5 years...

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5 years...

Hello guys! 

Today marks the 5 year anniversary of my rad hyst for 1B2 cc. Back in 2014 I trawled this forum looking for hope, I was on it constantly. I vowed that if/when I reached the magic 5 year clear mark I would post for those looking for such stories, so here I am! It has been quite a journey, and I am not counting my chickens, but 5 years is quite a milestone. Love and hugs to those starting on their journey...


Congratulations Helsweld! 

Thank you for coming back and sharing xxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma and high grade CGIN;

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

29/8/19 Total Laproscopic hysterectomy with ovarian conservation.

26/9/19 pathology confirms NED:-)

10/3/20 1st follow up including vault smear. Biopsy of presumed granulation tissue.....Confirmed negative :)

Alice89's picture

Such a milestone! 

You were the same stage as me so it’s very reassuring to me to hear milestones like this! I’ve just had my first post treatment CT scan today, and I hope that I will be the same as you in 5 years. 

Hope there’s many more milestones to come!

Alice xx


Hi Helsweld

Thank you for coming back and sharing with us this fantastic news! That’s a great milestone to reach and I’m sure will give lots of ladies encouragement. xx

11.9.18:Hysteroscopy/punch biopsies

18.9.18:CC diagnosis-2b

19.9.18:Pelvic MRI

24.9.18:CT pelvic + abdomen/thorax

1.11-24.12.18:4 cisplatin, 32 radiotherapy

10.12.18:Pulmonary embolism

18.2.19:Post treatment check up

28.02.19:Pelvic MRI

02.04.19:3 month check-NED

25.06.19: 6 month check-all ok. 08.10.19: 9 month check. Area of concern found. 17.10.19: Pelvic mri 13.11.19: Pre op assessment 14.11.19: Petscan 26.11.19: Biopsy under GA. 9.12.19: Residual tumour confirmed. Scheduled to have total abdominal hysterectomy with bilateral salpingo oophorectomy January 2020.

Surgery failed due to radiation damage. Pelvic exenteration-10th March 2020.


Congratulations 5 years is a definite milestone :) Lovely to come back and give hope to newly diagnosed ladies!!

Polyp removed 2015

diagnosed squamous 1b2 squamous cc nov 2015

radical hysterectomy Dec 2015

1 microscopic lymph involved 

chemorads finished March 2016


That is wonderful news:) pray that all stay wounderful

Jan 2017-1b1 squamous cell

February 2017-radical hysterectomy path report showed parametrium spread and a parametrium  lymph node, restaged to 2b

March to May 2017- 5 chemo and 25 radiation


Great news! xx

Feb 2012 1st abnormal smear- CIN 3

17/04/12 Colposcopy & LLETZ

1/05/12- Results-1 area of microscopic malignancy (removed) CIN 3 Margins not clear

28/05/12 2nd LLETZ

19/07/12 Results- CIN 3 with clear margins

Nov 2012- 6 month smear all clear.

June 2013 6 month smear, no visual concerns. Results - all clear.

16/06/14 Annual smear. Nothing seen of any concern.

03/07 results CIN3 referred to MDT 

29/07/14 MDT confirmed high grade cells, LLETZ booked

09/09/14 LLETZ. Referred for hysterectomy

16/09/14 Results showed micro invasion and CIN 3. Hysterectomy, MRI and chest X-ray booked

02/10/14 MRI. Results all clear

20/11/14 Lap hysterectomy 

Tivoli's picture

Many congratulations on reaching the five-year milestone!

I know what this anniversary means to you.

Sending hugs! (((((HUGS)))))
Be lucky :-)

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