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6 months post op pain

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Stacemarie
6 months post op pain

Hi , I'm six months post radical hysterectomy and have been suffering the last week with period type ache and pain in my lower back and lower abdomen area . 
I no longer have my ovaries or tubes etc and I'm on hrt for early menopause , I'm finding myself needing to sit and rest with a hot water bottle to ease the pain . 
Has anyone else experienced this ? Is this normal ? Surely any healing pains would have passed by now ? Should also add I've still got a catheter due to nerve damage on my bladder . I'd appreciate any advice . 
Xxxx 

FeelingTheFear

Hi stacemarie

Im 4mth post op and experience similar, I still have ovaries but it doesnt seem to be linked to my cycle, seems more linked to my becoming more active/resuming normal life and sometimes forgetting I need to sit down and take it easy.

I dont know if what I'm experiencing is normal or something to worry about but wanted to let you know I feel same 

All the best xXx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1 (1b2 on new FIGO)

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up. NED!

Jazza
Jazza's picture

Hi staciemarie

Just a thought, any chance you might have a urinary tract infection?  You are probably aware that catheters increase the risk for UTIs.  Might be worth getting a urine sample checked out via your GP?  I'm a bit biased and always home in on bladder issues because my RH did a lot of nerve damage to my bladder.  Unfortunately I had chemo-radio not long after my RH which may have put paid to the chances of my bladder making a full recovery - I'm still using catheters.

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot

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Moving forward from a cancer diagnosis