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Anyone on here had pelvic surgery post cervical cancer treatment?

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Hana
Anyone on here had pelvic surgery post cervical cancer treatment?

Hello ladies,
I am in a difficult place at the moment and unsure what to do. I am hoping there is someone in this forum who has has a same or similar experience.
I was diagnosed with CC in 2007 and underwent a trachelectomy followed by 6 weeks of chemo-radio. I am so grateful that I've had no recurrence and currently 12 years on post diagnosis.
Unfortunately, I now have progressively growing fibroids (almost certainly being fed by HRT) which are starting to cause me symptoms. I've had a number of investigation and met with two different consultants. One of the options being put forward is surgery, either a myomectomy or possibly a hysterectomy. I have been told that, whilst not impossible, any surgery to the pelvis following radiotherapy can be more difficult and complex. I am also worried about tissue healing and of course 'something going wrong' during surgery.
I know its a bit of a long shot, but has anyone on here had any type of pelvic surgery post radiotherapy? If, yes I would really like to connect with you/hear your experience. Thanks for taking the time to read my post.

Stage 1b cc - July 2007.Trachelectomy July 2007 followed by chemo-radio for node involvement. All treatment completed September 2007. All good so far.

Petesdragon
Petesdragon's picture

Not a long shot, there are loads of us who have had surgery post radiation. I had my ovaries removed in 2015-and total pelvic exenteration 2017. The operations were more complex due to all the adhesions etc and I had huge problems with wounds opening up but it all healed in time and exenteration is a much bigger operation than a hysterectomy. The difference is that I needed the surgery to save my life and it's less critical in your case so only you can decide.

Good luck,

Karen x 

 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

Hana

Thank you Karen for your reply.You have been through so much!

Yeah its the adhesions and tissue healing that I am worried about but you are right I have other options I need to equally consider.

Best wishes,

Hana

 

 

 

 

 

Stage 1b cc - July 2007.Trachelectomy July 2007 followed by chemo-radio for node involvement. All treatment completed September 2007. All good so far.

Ali77

Hi Hana

I was scheduled for a repair operation for stress incontinence a few years after my hysterectomy and brachytherapy. When the surgeon attempted to go in, he found I was completely stuck together and couldn't get in around the scar tissue! The operation had to be abandoned as the risk of perforating my bowel was considered too high. 
Luckily I have very few symptoms from the adhesions but just something to be aware of as a possibility, if you do go ahead. I'm sure you'll be fine, but my surgeon had no idea until he went in.

Good luck, whatever you decide 

Ali x

Abnormal smear Nov 12. Colposcopy Dec 12, cancer 1b1 confirmed. Radical hysterectomy Jan 13. Close margins so brachytherapy Mar 13. 3 monthly checks. Feb 14 1 year MRI shows suspected recurrence in the liver. Told no cure, would be offered palliative chemo. Mar 14 Ultrasound, CT scan, 2 liver biopsies and a PET/CT scan Apr 14 liver tumours shown to be non-cancerous adenomas Jun 14 another MRI, all ok so far.

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