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Crushing News

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Jazza
Jazza's picture
Crushing News

Hi ladies

 

I had my 3.5 year post treatment check-up appointment last Tuesday.  I was a bit nervous beforehand partly because I was waiting on results of a CT-scan.

 

Well, cancer wise it seems so far so good however it was distressing to learn that the scan showed osteoporotic crush fractures to my vertebrae L4 and L5.  Maybe this goes some way to explain why I often wake up with a stiff achey lower back.  I'm in my 60s and there is a family history of osteoporosis but my gynae-onc said that the pelvic radiotherapy treatment has probably contributed to the problem.

 

I'm being referred to my GP for further investigations of my bones.  Just thought I'd share and maybe connect with others who've had a similar experience.

 

 

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
FeelingTheFear

Hi Jazza

I dont have relevant experience to share but I just popped by to say I am so sorry to learn of this new complication you've had diagnosed. I know you have mentioned backache and stiffness in previous posts but you must be understandably disappointed to have received this news. 

From a cancer perspective its brilliant that you remain in remission, and I hope now that these crush fractures have been identified there will be something that can be done to make you more comfortable. 

Sending a great big hug your way xXx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1 (1b2 on new FIGO)

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up. NED!

Memagh

Hi Jazza,

The gift that keeps on giving :( I'm sure there's no doubt that the radiotherapy has had a part to play. So sorry to hear this! I really have no experience/knowledge of bone problems but I sincerely hope there is something that can be done to improve things. Happy to hear you remain cancer free, one less thing to worry about. Here for you if you ever need to chat.

X Maria

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.

February 2020 3 month scans NED

August 2020 9 Month scans NED

 

 

55

Hi Jazza 

I don't have experience of this but just wanted to say I'm sorry to hear this news although it is good news that you are still cancer free. You have been through so much. It must be so frustrating for you. Feel free to have a good rant on here. 

A x

1st ever abnormal smear hpv & severe high grade dyskaryosis August 2019 lletz September 2019 polyp & nabothian cyst found Results hpv & mild cell changes polyp innocent Repeat colposcopy Dec 2019 test of cure January 2020 results of test of cure; no high risk HPV present , check up colposcopy appointment in June because of the discrepancy between initial smear & lletz result - June 2020 repeat colposcopy & pap - all clear - discharged from hospital - next smear in 3 yrs Back again August 2020 following post menopausal bleed; more tests! Turned out to be hormonal/menopause related but they also discovered a small ovarian cyst which they will check again in 4 months; cyst was not related to bleeding

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Moving forward from a cancer diagnosis