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Fatigue post RH - is this normal?

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Somo
Fatigue post RH - is this normal?

Hi,

I'm 12 weeks post RH for Adno 1b1 and I'm still utterly shattered - is this normal?  

I have a 3yo daughter who is full on but I'm contemplating spending our savings on a nanny as I just can't seem to get it right.  One day I'll be ok, do something like take her out to the park as a treat - and then later I just stop functioning.  The other day we went to the beach and I spent 2 hours looking after her, paddling in the shallows while she played on a lilo and it took 3 days to recover...  The same happens if I do any kind of mild exercise or my physio exercises (I have a weakness in my R leg following rad hyst); I'm stiff and knackered and useless for a day and can't sleep due to the stiffness and pain.  

Has anyone managed to come up with a regieme that strikes a balance between regaining fitness and managing their fatigue? I feel like I'm never going to get it right and I just want to get on with life rather than make endless lists about things I'm going to do when I'm not tired.  :( 

Thanks in advance. 

2013- 2019 regular 9 monthly colposcopies and smears - all clear

22 Feb 19 CGIN picked up on smear

23 March 19 colposcopy & biopsy 

28 March 19 biopsy results showed CC- adenocarcinoma 

02 April 19 CT scan + MRI showed 1b1   

13 April Radical Hysterectomy, 22 lymph nodes removed, clear margins, all clear. 

 

Petesdragon
Petesdragon's picture

I don't think that's normal after 12-weeks. Most people are back at work.

Could it be that you are anaemic? 

Or could you be menopausal?

It may be worth having blood tests done. This could all be easily correctable.

Karen 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

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