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Five years - discharged from follow up

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Rachel57
Five years - discharged from follow up

I wanted to share some positive news in these tough times, and particularly for the ladies undergoing treatment currently. After five years and a few months I have finally been discharged and have a clear MRI to boot! Although I continue to have some bowel and bladder issues as well as well controlled lymphoedema, I am hugely relieved to have made it this far and to have largely put the experience behind me. So don't give up hope ladies. It may all feel a way off right now but with the help of the wonderful Jo's Trust, the help and support is here. Good luck to you all and stay strong. X

Rachel

Sept 2014 - 1b1 squamous cell cc diagnosed

Oct - Radical hysterectomy and lymhphodectomy. 5 pelvic lymph nodes involved

Nov - Chemo therapy  5 (cisplatin) and 25 radiotherapy

Sept 2015 - lymphodoema diagnosed

Clear scans to date

 

Izzzy76

❤  so happy for you! Love reading these posts, and I vow to post the same in five years 

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Harvitt

What great news! 

Well done xxxx

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.
Memagh

Rachel that's really great news. Thank you for coming back to update. It's important for us who are at an earlier stage in our journeys to hear these positive stories.

x

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.

10th February 2020

MRI and Pet-CT clear. NED

3 monthly scans

 

Rissag

Amazing news , congratulations. And thank you for posting it gives so many hope for the future.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
emmz13

Brilliant news!! Thanks for sharing it's always amazing to hear the positive stories xxx

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

Mmouse123

That is great news.

Jan 2017-1b1 squamous cell

February 2017-radical hysterectomy path report showed parametrium spread and a parametrium  lymph node, restaged to 2b

March to May 2017- 5 chemo and 25 radiation

Locket

What wonderful news! I bet you are over joyed xx

LadyAdur

Thank you for coming back to update. It made me a bit weepy to read this. It gives me such hope that one day I will be normal again xx

LaurieBeth

Thank you for taking the time to spread hope!

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

FeelingTheFear

Hi Rachel 

I'm about to start my treatment for 1b1 squamous cc, and your post is hugely encouraging. What wonderful news for you, truly! 

It's very kind of you to come back and share this, that we may all take courage and hope from your experience 

All the best x

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

noodlesdoodles

That’s fantastic and such positive need to post! Thank you xxx

May 19 smear June 19 CC diagnosed CT/ MRI July 19 EUA - into parametrium PET scan Results - 2B clinically/. 1b1 radiologically. Decide between chemorads or hysterectomy 30.07.19 Saw consultant- will do EUA / camera and node dissection first. If spread do chemorads 21.08.19 open Radical Hysterectomy and node dissection 2.9.19 NED Nov19 ISC bladder issues Diagnosed with Lymphoedema

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Moving forward from a cancer diagnosis