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Getting back to life

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Kimberlyg88
Getting back to life

Hi everyone,
I finished treatment on the 13/09.
I was 1b1 with node involvement.

I have had 2 appointments with oncologist since treatment ending and don’t have my next appointment until February 2020.
Getting on with life between now and February like it all never happened is so strange.

I feel constantly scared it’ll come back because of the lymph node involvement.
Everyone I read about comes back as stage 4b.
My doctor told me all stages are curable except 4b.

I know some people never have it come back b it I feel more do then don’t.

I don’t really know what I’m after I’m just so tired of feeling this way.

Play_Pretend
Play_Pretend's picture
  1. Hi Kimberly,

I think we all know how you feel. We have all been there. There is lots of women on here (and out there) who had higher stages with node involvement, that pulled through and are living their life. Try to be positive, i know how hard it is, but try. The chemo has gone through your entire body, including the nodes, and because they knew it was in your nodes, the radiation has been adjusted to it so they got blasted. I know you read more about recurrences, than about positive outcomes, but that is because everyone who was cured is living their life. Only the women who have recurrence are still on here looking for support. And women who were just diagnosed or are still on checkups etc. Theres only a few longtime survivors still active on here. Just think positive, eat healthy to help your immune system, take some vitamines and curcumin and ginseng capsules. Be happy, you got a second chance at life! Love, Laura

March 2019:

-Tumor discovered staged at 2b, squamous cell. No lymphnode involvement.

April/may 2019:

-Chemoradiation 5x/23x and interstitial brachy 4x

August 16 2019:

- 1st check up: NED

November 2019:

- 2nd checkup: All clear (NED). Some hard tissue is felt, pap taken to be sure. Probably scar tissue.

February 14th 2020

- 3rd checkup: NED  

God promises to make something good out of the storms that bring devastation to your life

- Romans 8:28

Dee78

Hi Kimberley,

I think this feeling is the same for everyone, it certainly is for me.  I was 1b1(no node involvement) and have recovered well from a radical hysterectomy however the fear of the cancer returning is still there and doesn't seem to be getting any better.  Every ache and pain puts me me straight into panic mode. I'm constantly worried about a recurrence, so much so that I have started having panic attacks.  It's definitely a mental battle.   x 

1st April - colposcopy and lletz

13 May - told cc

29 May - CT and MRI

12 June - staged 1a2, need another lletz to confirm treatment

24 June - 2nd LLETZ, awaiting confirmation of treatment.  Restaged 1b1.

3 Sept - laparoscopic modified radical hysterectomy(retained1 ovary)

19 Sept - pathology confirmed no lymph node involvement and NED, no further treatment required.  3 month follow ups...

Locket

Hi

Just want to say your not alone. I am also 1b with node involment. I've just had my first scan and waiting my results. To say I'm an anxious mess is an understatement. I rang my nurse yesterday as im convinced it's still in my lymph nodes! She said they would have zapped during radio so not to worry, easier said than done. I also worry about reoccurrence because of the node involvement. So I suppose I just wanted to let you know I feel the same. I have good days and bad days. Last night I went round my friends for a glass of gin and had a fab time.

we are here with you and you are not alone.

live you best life as who knows what's around the corner for any of us. Xxx

blueskiesinside...

Hi Kimberlyg88, 

Late reply so I don't know if you will see this! I can really relate to how you're feeling. My diagnosis was 1b1 (no node involvement) but is complicated by me also having the BRCA1 gene alteration which drastically increases my chances of having breast and ovarian cancers. I am 3ish weeks post surgery related to CC but finding it hard to "get back to normal", and am feeling worried about what the future holds. Having a cancer diagnosis and treatment are such life-changing events, I feel like I am only just beginning to process it all. Just wanted to you to know you are not alone in having these feelings and worries and hope you are able to get some reassurance and support from this lovely community. Feel free to drop me a message if you ever wanted to chat, if 88 is your birth year I think we are the same age. Wishing you all the best with your future scans :) x

 

 

Regular smear tests from age of 25, no concerns Aug 2019 - referred for colposcopy following routine smear Oct 2019 - LLETZ biopsy showed CGIN high grade abnormal cell changes Oct 2019 - Diagnosed with cervical cancer (adenocarcinoma) ?1a1 but unclear margins Nov 19 - MRI and 2x further LLETZ biopsies to guide treatment, re-staged as 1b1 Dec 2019 - Pelvic lymphadenectomy Dec 2019 - Lymph nodes clear - no further treatment required at present, requiring ongoing monitoring

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Moving forward from a cancer diagnosis