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Hysterectomy After Chemotherapy

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cclay
Hysterectomy After Chemotherapy

Hi there,

I finished my treatment of 6 weeks of chemo, 29 external radio and 6 internal radio at the end of July. Went for my PET scan yesterday and got a call today to meet with a surgical oncologist. My question is: Has anyone had a hysterectomy after treatment??? From what I have been reading they normally do not do it in that order because of how frail all of your tissue is due to radio and comes with high risk and very slow recovery rate. Anyone with any info that could help would be much appreciated.

Lilypingu

Hi cclay

I am 9+ months out of treatment and last week my consultant found an area which puzzled him on my cervix. I am having an MRI scan this afternoon. He has said, depending on the result, the next step would be a biopsy under anaesthetic and potentially a hysterectomy. I too was surprised at the hysterectomy option as I’ve had 32 radiotherapy treatments. 

Sorry I don’t have any info for you but I’d be interested in how you get on. xx

11.9.18:Hysteroscopy/punch biopsies

18.9.18:CC diagnosis-2b

19.9.18:Pelvic MRI

24.9.18:CT pelvic + abdomen/thorax

1.11-24.12.18:4 cisplatin, 32 radiotherapy

10.12.18:Pulmonary embolism

18.2.19:Post treatment check up

28.02.19:Pelvic MRI

02.04.19:3 month check-NED

25.06.19: 6 month check-all ok. 08.10.19: 9 month check. Area of concern found. 17.10.19: Pelvic mri 13.11.19: Pre op assessment 14.11.19: Petscan 26.11.19: Biopsy under GA. 9.12.19: Residual tumour confirmed. Scheduled to have total abdominal hysterectomy with bilateral salpingo oophorectomy January 2020.
Petesdragon
Petesdragon's picture

Hi CClay,

Did they suggest to you that they might do a hysterectomy or are you just second guessing?. There have been a few that have had that done post RT. However if (and I mean if...it could be good news yet)  there is any significant tumour it is more likely that you would be offered total pelvic exenteration because of the radiotherapy damage that you describe. Wait and see what they say though as it varies depending on what they see. They may suggest EUA first to explore options.

Karen x 

 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

Weepingwillow
Weepingwillow's picture

HI Cclay

I have had this discussed with me post treatment for suspected residual disease and indeed EAU was mentioned as the first step post scans as they can give false readings due to scar Tissue/Radiation damage. I  had repeat scans to check and compare the area of concern (for growth/changes I suspect) so agree with Karen it could still all be good news yet.

Hysterectomy was mentioned to me as was Pelvic exenteration and more than happy to share my experiences with you once you know what your dealing with. The wait is very stressful and I really sympathise with that but hopefully surgery will not be required for you x

 

cclay

Thank you all for your replies. I have a large calcified uterine fibroid and some new ones as well (i had a fibroid embolization in 2016). It was mentioned that hysterectomy might be an option after treatment because fibroid could get in the way of doing a proper pap in the future ( i think it is pushing my cervix off to one side). I guess im just nervous that the call came in so soon after my PET scan...my mind went to how there must be more women in need of surgery than myself if it is just all about the fibroid and then thinking about how getting a hysterectomy so soon after treatment doesnt make sense as tissues hav not healed yet...so then my mind goes to how it could be something more sinister. My gut tells me its not good news but i wont know anything else until Friday. 

nm_353
nm_353's picture

I’m three years out of recovery and am in limbo about a possible hysterectomy. Mine is due to abnormal thickening of the uterus due to my HRT. I actually have a follow up on that tomorrow. 

June 2016- pap, not up to date, results abnormal

Julyy 5th-  After followups diagnosed with Adenocarcinoma

July 12th 2016- Met with oncologist, clinically staged at 1b2, staging confirmed with MRI and PET. Tumor is endocervical and approx 7 cm.

August 2016- Started chemorads. Post followup after treatment, NED

Sept 2018- Still NED

Hana

HI Cclay, I had a trachelectomy, chemo and pelvic radiotherapy 12 years ago. Now facing another surgery for a growing fibroid (either a myomectomy or a hysterectomy). I am really struggling to make a decision largely due to the fact that I  am worried possible scarring/adhesions making the surgery more complex as well as tissue healing/ recovery. I have not been able to get a clear cut answer for the latter. Part of me just wants to leave that part of my body alone but another part is telling me to 'just get it out'. Its all very psychological. If any of you have been able to get some assurance regarding surgery post pelvic radiotherapy, I would be really keen to hear this.  

 

Stage 1b cc - July 2007.Trachelectomy July 2007 followed by chemo-radio for node involvement. All treatment completed September 2007. All good so far.

Petesdragon
Petesdragon's picture

Might be worth talking to lilypingu who is having hysterectomy in January.

Karen x 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

Lilypingu

Thanks Karen...I’ve replied to Hana on my post.

11.9.18:Hysteroscopy/punch biopsies

18.9.18:CC diagnosis-2b

19.9.18:Pelvic MRI

24.9.18:CT pelvic + abdomen/thorax

1.11-24.12.18:4 cisplatin, 32 radiotherapy

10.12.18:Pulmonary embolism

18.2.19:Post treatment check up

28.02.19:Pelvic MRI

02.04.19:3 month check-NED

25.06.19: 6 month check-all ok. 08.10.19: 9 month check. Area of concern found. 17.10.19: Pelvic mri 13.11.19: Pre op assessment 14.11.19: Petscan 26.11.19: Biopsy under GA. 9.12.19: Residual tumour confirmed. Scheduled to have total abdominal hysterectomy with bilateral salpingo oophorectomy January 2020.

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Moving forward from a cancer diagnosis