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I'm here

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LornaC
LornaC's picture
I'm here

Hi everyone,

I have been absent from here since all my treatment finished. Although I have an Instagram page all about my life after Cancer I think I thought this was only a place for me during my treatment and I wanted to hide away after. How wrong was i?! I wish i'd come back sooner. I am currently waiting for an MRI and it turns out I am not alone in my feelings about this. The wait, the anxiety etc etc.

So, I am back and I wanted to say I am here for anyone who might need it. Questions about their treatment, questions about what happens after treatment or even just for a friendly chat.

Sending love and strength to anyone who needs it and maybe speak soon.

L x

Diagnosed Stage 2b Cervical Cancer 28.11.16.
Ovarian Transposition, Chemo, Radio, Brachy followed by Hysterectomy.
No Evidence of Disease 21.11.17
Now trying to work out Life after Cancer

Weepingwillow
Weepingwillow's picture

Hi Lorna

My diagnosis was also stage 2b in July 2018 and it's great to see people back and offering to help others. At my initial diagnosis and beyond some very special ladies supported me from my posts on here and without them I would be lost and I'm sure people will be grateful of your kind offer x

emmz13

Hi Lorna,

thanks for coming back, your experience will mean the world to a lot of us. I was diagnosed 2b in July.  similarly to willow the ladies on here kept me sane during my diagnosis and treatment and hearing others stories has definitely made me feel much less alone. 

I hope your MRI is soon and brings good news, 

much love Emma xxx 

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

Izzzy76

Thank you for coming back, and how wonderful and hopefull to see you are doing good. Gives me ( and lots of girls with me) so much hope. I was diagnosed 2B last August which completely devestated my world. It’s such a LIFE changing event, and it is so comforting to see how there is a great life after cancer. 

 

Thank you ❤️

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Izzzy76

Btw I just noticed you’ve had a hysterectomy after chemo radiation treatment? May I ask why you had this op? i was told a hysterectomy wasn’t possible after chemorads due to radiation damage?

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
LornaC
LornaC's picture

Hey lovely, sorry for the late reply. I completely forgot I don't get notifications if someone comments/posts so I need to get better at checking back on here. 

Yes - I had my hysterectomy after the chemo/rad/brachy. It wasn't planned, they were hopeful they would get all the Cancer with the treatment plan but it didn't quite work so they ended up having to do a Hysterectomy after treatment finished. I finished the treatment in Feb 2017 and then had the Hysterectomy in Aug 2017. 

They weren't 100% sure that what was left was Cancer so they gave me two options: 1. Have the Hysterectomy but understand the risks associated with doing that after the radiation damage. 2. Palliative care if what they could see ended up being Cancer and spread. I went with option 1 and the only real issue I had was internal bruising on my bladder, otherwise it's been fine. I was also able to keep my ovaries so didn't have to go back into the menopause again having already come back out of it once!

Diagnosed Stage 2b Cervical Cancer 28.11.16.
Ovarian Transposition, Chemo, Radio, Brachy followed by Hysterectomy.
No Evidence of Disease 21.11.17
Now trying to work out Life after Cancer

Lilypingu

Hi Lorna

I’m interested too in your hysterectomy after chemorads and the fact that you weren’t offered an exenteration if it hadn’t spread. I’m facing a recurrence and while a hysterectomy has been mentioned, palliative chemo has not. My pet scan shows no spread but a hot spot where my tumour was and I’m hoping surgery is an option for me if a recurrence is confirmed next week. What option were you given if the hysterectomy wasn’t successful? x

11.9.18:Hysteroscopy/punch biopsies

18.9.18:CC diagnosis-2b

19.9.18:Pelvic MRI

24.9.18:CT pelvic + abdomen/thorax

1.11-24.12.18:4 cisplatin, 32 radiotherapy

10.12.18:Pulmonary embolism

18.2.19:Post treatment check up

28.02.19:Pelvic MRI

02.04.19:3 month check-NED

25.06.19: 6 month check-all ok. 08.10.19: 9 month check. Area of concern found. 17.10.19: Pelvic mri 13.11.19: Pre op assessment 14.11.19: Petscan 26.11.19: Biopsy under GA. 9.12.19: Residual tumour confirmed. Scheduled to have total abdominal hysterectomy with bilateral salpingo oophorectomy January 2020.
Petesdragon
Petesdragon's picture

Hi Lorna,

I am just interested to know why you were given those two options. Hysterectomy or palliative when you had suspected residual tumour. I am a bit surprised that you weren't offered total pelvic exenteration which gives a roughly 50 per cent chance of survival as an alternative to palliative care. It's great that the hysterectomy worked but if it hadn't, would they have just written you off? I am not trying to stir things here, I am just  interested because I have had concerns for some time that some women are not offered the opportunity and I am interested in finding out more about why this may be the case.

Karen x 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

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Moving forward from a cancer diagnosis