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Lower tummy pains and burning sensation- recurrence worries

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Charlotte290
Lower tummy pains and burning sensation- recurrence worries

Hi all! 

It has been a while since I've been here- have steadily been trying to get back to normal after my diagnosis. I had my RH in September last year- and have definitely struggled mentally since. Im still not back at work- feel a million miles away from myself still. I am doing CBT therapy and have recently been put on anti depressants by my gp.

For the last week- I have had a burning type pain in my tummy. It comes and goes, but can be very strong and intense! It is sometimes a dull ache, and I don't know if my anxiety manifests and makes it worse- that's what I'm hoping at least! The burning definitely gets worse when I'm having a real panic... but it's there in the first place to panic about if that makes sense? 
I have left a message with my consultant this evening so will book an MRI in ASAP I think- I had one in December which was all clear. I also had a full smear test which came back clear too- so I am hopeful (a teeny bit!!) that it's would be unlikely to have a recurrence bad enough to cause such pain in that timeframe? 
I have felt fabulous physically for the last month (other than my lightbeaded'ness which although I know is most likely my anxiety- Of course I worry I also have a brain tumor) so it's a real knock for me. 

I can have hours pain free- them BAM it's back. Walking helps, and if I'm distracted it helps a little too.  Tends to be better mornings & evenings (apart from tonight.... but I am extra anxious today after contacting my consultant.. huge deal for me- husband hides the post and lets me know an hour before appts so I don't have time to get worked up!! I really am bad) 

 

Just wondered if anyone has experienced similar pains after an RH that have turned out to be nothing sinister? 

Please don't tell me stories resulting in recurrence as I don't need anything else to add to my negativity!!! 

Charlotte x

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

no lymph involvement 

05.12.2020-first check up with MRI.... NED!! 

 

Izzzy76

Hi Charlotte,

 

I am sorry you are having such a rough time mentally, unfortunately I know how having this fear consume feels.

 

From your signature I can see that you had a RH and no lymph nodes involved. This is really good news since it makes your chances of reccurrence much smaller. Also, your last mri and smear only a few weeks ago were clear. Good news!

 

If you should have a recurrence one day ( if...) then you are still treatable since you did not have chemo or radiation yet. 

 

Your mind can definitely add to symptoms!  What helps me most is telling myself I can not chance the outcome but I can definitely change my journey towards whatever is in store for me. I can live in fear for the rest of my life and feels miserable,  or I can choose not to let this fear rob me of my joy and pleasure.   Easier said then done but I find telling myself over and over is helping me more then telling me I will probably die from this. The outcome won't any different. 

And good for you for making this appointment !!! Will keep my fingers crossed

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Charlotte290

Thank you- it’s so hard isn’t it!! I have days where I am so positive.. but they’re always followed by a few down days- which are really really tough! I am hoping that this medication will start to take the edge off a little soon. 
My consultant has been in touch this morning and has agreed that an MRI, if anything to put my mind at ease will be useful- so I am waiting for imaging to get in touch with a date for that. 

typically- my tummy hasn't been an issue yet today, but I have lower back pain instead!!! (I have suffered with sciatica for many many years so try to keep that separate where possible!) 

 

I love the way you look At things- I am trying to be positive too! 
Just seen your new post saying still NED- huge congratulations- long may that continue xx

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

no lymph involvement 

05.12.2020-first check up with MRI.... NED!! 

 

rufus

Hi Charlotte290,

I had a hysterectomy last year (followed by chemoradiation so different to you I guess).  I have had discomfort in my stomach and just had an ultrasound which has identified a hernia.  

The first person to tell me this was a risk was my current oncologist, but 6 months after the op is a bit late!

Keep talking to your team. It is all a difficult experience to go through and its ok to be anxious. 

Good luck.  

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3c. Chemo rads completed 10/7/20 Brachy 14/7 Done!

4/11/20 No evidence of reoccurrence 

Charlotte290

Thank you for replying Rufus... fingers crossed it's the same! Driving me mad- it's been ok for the last few days and really flared up this afternoon again. Hope you're doing ok xx

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

no lymph involvement 

05.12.2020-first check up with MRI.... NED!! 

 

cclay

I too am experiencing a burning pain in my pelvis and it has now moved to my hip. It's the same pain I had prior to diagnosis and treatment. It's alway a worry that I have a recurrence. I speak to my oncologist on Monday so we will see what she says. I had a scan 6 months ago and it was just scar tissue so maybe it will be the same for you as well❤️

Charlotte290

Have everything crossed for you too! Did you have the pain last time with scar tissue? I've read a lot about this the last few days... hoping it's that! My pain has been really good for the last few days, and flared right back up again today which is so annoying! Makes my anxiety sky rocket! Xx

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

no lymph involvement 

05.12.2020-first check up with MRI.... NED!! 

 

cclay

My last pelvic exam was painful when she was doing a digital and pushing on pelvis. MRI then just showed scar tissue. This pain I have now is a burning, cramping pain on the same side with hip pain. The hip pain is exactly as it was prior to diagnosis and I also feel like my cervix is bulky again (like a tampon was left in). When I spoke to my oncologist she said that is the side that they gave three booster radiations to at the end of my treatment. I'm hoping it is still just scar tissue but the pain is becoming much more consistent. I honestly don't know how I will deal with this level of uncomfortable for the rest of my life. But, I'm here and alive and am trying to focus on that❤️

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