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I finished treatment almost 3.5 years ago and have been all clear since then which I am so grateful for. However I've had a number of issues with my legs with deteriorating muscle weakness and tingling and loss of sensation. This week I finally met with a neurologist who is 90% convinced I have bilateral lumbar plexopathy. Basically the radiotherapy has caused damage to the nerves in my pelvis which is damaging the rest of legs. I have been referred for a nerve conduction study but that may take a while. An MRI has ruled out anything more ominous.
Currently I am still mobile although I use a walking stick. I really struggle with stairs (or should I say actively avoid them if I can). They cant really tell me whether it's likely to get worse. Really trying to stay positive that this is as bad as it will get. I'm so grateful the cancer is gone but obviously this is life changing as well.
I was wondering if anyone else has been diagnosed with the same?
Stage 2b Pelvic lymph node positive11 lymph nodes removed5 x chemo23 x radiotherapy3 x brachytherapy
Diagnosed October 2015All clear from April 2016