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New to forum can anyone help me on pelvic ex op?
Mon, 15/02/2021 - 13:45
#1
New to forum can anyone help me on pelvic ex op?
Hey Girls
i was given treatment last year for stage 3 CC which is now back and if me scans come back ok I might go to London to clear all organs. I'm only 30 and my daughter is 5 and I'm a single mam. What's worrying us is if I can get out and about with me daughter after this op as a pal i made when having me first lot of treatment is on a Facebook group and a lass who had it is now stuck in the house and I don't have family to support with me daughter. I'm gonna have the op if I can as want to be here for her but it's puts the fear of god in us if I'm not able to even go outside. What life would that be for a young lass to have her man laid up. I'm not good yet on the forum but when I do a search nowt comes up! Has anyone has this done and can still be a mam. Then I've got the worry of what if the op can't be for me what do I do then? Me head in honesty in a spin! My nurse said to come on this page and stay of google and Facebook as am honestly just beside me self and how do you cope with waiting feel like I'm cracking up
love
Alex
—
Hey lovely,
I am so sorry you find yourself here but it's deffo the best place for support. The ladies here are amazing. If you're having a recurrence the best thing will be to apply to the advanced forum, it's private and my understanding is they would be better able to help with any of the questions you may have.
much love to you and I hope you find the answers you're looking for xx
May 19 odd symptoms
03/06/19 doctors appt internal exam, said everything looked fine, did smear.
10/06/19 urgent colposcopy due to HPV positive and severe changes.
21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.
24/06/19 cancer confirmed, grade 3 preliminary staging 1b.
03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting
15/07/19 restaged 2b parametrial invasion no lymph node involvement.
16/07/19 treatment 5 1/2 weeks chemorads
18/07/19 planning MRI 26/07/19 preassessment Chemo
05/08/19 chemorads start
11/09/19 chemorads end!!!!
16/09/19 Brachy
19/09/19 DONE!!!!
Hi Alex1990
I agree with what emmz13 has suggested. Just to add that, particularly given your circumstances with a young child, I think (if you are in the UK) that Macmillan would also be a good place to seek support: https://www.macmillan.org.uk/cancer-information-and-support/get-help/emotional-help/macmillan-support-line
x
Ahw sweetheart I am so sorry for your news. However there is life after a pelvic exenteration. There are a lovely few ladies here who are thriving and doing absolutely wonderful.
Like the girls before me said apply to the private section of this forum , the ladies there will welcome you with open arms and lots of support
❤❤
Hi Alex
You may get some replies on the advanced section of the forum about this, but it tends not to be very active. I had this surgery a year ago and have a private Facebook group specifically for ladies who’ve had or are facing this surgery. It’s a thriving group with lots of help and support. If you’d like to join, please let me know and I’ll tell you how to. You may find you get much more help there. x
11.9.18:Hysteroscopy/punch biopsies
18.9.18:CC diagnosis-2b
19.9.18:Pelvic MRI
24.9.18:CT pelvic + abdomen/thorax
1.11-24.12.18:4 cisplatin, 32 radiotherapy
10.12.18:Pulmonary embolism
18.2.19:Post treatment check up
28.02.19:Pelvic MRI
02.04.19:3 month check-NED
25.06.19: 6 month check-all ok. 08.10.19: 9 month check. Area of concern found. 17.10.19: Pelvic mri 13.11.19: Pre op assessment 14.11.19: Petscan 26.11.19: Biopsy under GA. 9.12.19: Residual tumour confirmed. Scheduled to have total abdominal hysterectomy with bilateral salpingo oophorectomy January 2020.
Surgery failed due to radiation damage. Pelvic exenteration-10th March 2020.