(0)
0 Items £0.00

New to forum can anyone help me on pelvic ex op?

5 posts / 0 new
Last post
Alex1990
New to forum can anyone help me on pelvic ex op?

Hey Girls

i was given treatment last year for stage 3 CC which is now back and if me scans come back ok I might go to London to clear all organs. I'm only 30 and my daughter is 5 and I'm a single mam. What's worrying us is if I can get out and about with me daughter after this op as a pal i made when having me first lot of treatment is on a Facebook group and a lass who had it is now stuck in the house and I don't have family to support with me daughter. I'm gonna have the op if I can as want to be here for her but it's puts the fear of god in us if I'm not able to even go outside. What life would that be for a young lass to have her man laid up. I'm not good yet on the forum but when I do a search nowt comes up! Has anyone has this done and can still be a mam. Then I've got the worry of what if the op can't be for me what do I do then? Me head in honesty in a spin! My nurse said to come on this page and stay of google and Facebook as am honestly just beside me self and how do you cope with waiting feel like I'm cracking up 

love

 

Alex

emmz13

Hey lovely, 

I am so sorry you find yourself here but it's deffo the best place for support. The ladies here are amazing. If you're having a recurrence the best thing will be to apply to the advanced forum, it's private and my understanding is they would be better able to help with any of the questions you may have. 
much love to you and I hope you find the answers you're looking for xx 

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

Jazza
Jazza's picture

Hi Alex1990

I agree with what emmz13 has suggested.  Just to add that, particularly given your circumstances with a young child, I think (if you are in the UK) that Macmillan would also be a good place to seek support: https://www.macmillan.org.uk/cancer-information-and-support/get-help/emotional-help/macmillan-support-line

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6 chemo, 25 external radio, 2 brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
Izzzy76

Ahw sweetheart I am so sorry for your news. However there is life after a pelvic exenteration. There are a lovely few  ladies here who are thriving and doing absolutely wonderful. 

 

Like the girls before me said apply to the private section of this forum , the ladies there will welcome you with open arms and lots of support 

 

❤❤

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Lilypingu

Hi Alex

You may get some replies on the advanced section of the forum about this, but it tends not to be very active.   I had this surgery a year ago and have a private Facebook group specifically for ladies who’ve had or are facing this surgery. It’s a thriving group with lots of help and support. If you’d like to join, please let me know and I’ll tell you how to. You may find you get much more help there. x

11.9.18:Hysteroscopy/punch biopsies

18.9.18:CC diagnosis-2b

19.9.18:Pelvic MRI

24.9.18:CT pelvic + abdomen/thorax

1.11-24.12.18:4 cisplatin, 32 radiotherapy

10.12.18:Pulmonary embolism

18.2.19:Post treatment check up

28.02.19:Pelvic MRI

02.04.19:3 month check-NED

25.06.19: 6 month check-all ok. 08.10.19: 9 month check. Area of concern found. 17.10.19: Pelvic mri 13.11.19: Pre op assessment 14.11.19: Petscan 26.11.19: Biopsy under GA. 9.12.19: Residual tumour confirmed. Scheduled to have total abdominal hysterectomy with bilateral salpingo oophorectomy January 2020.

Surgery failed due to radiation damage. Pelvic exenteration-10th March 2020.

More Information

Moving forward from a cancer diagnosis