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Pelvic exenteration

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SG82
Pelvic exenteration

Hi, 

I'm now 5 weeks post total pelvic exenteration op. I'm up and down, but had a couple of yuk days so been in bed pretty much all day.

I tried coming off my pain meds and anti sickness but felt it might be too soon so back taking them again today. 

I also have a couple gigs coming up, I'll be 9 weeks post op on my first. Luckily have a wheelchair and hotel close by incase it all goes horribly wrong. I just wish the sickness would disappear. I also get a lot of very painful cramps when my bowel is moving. I feel all these little things are setting me back, mentally I want to do more but I physically just can't. 

I'm hoping some of you lovely folk could advise and givee hope that things will pass. I'd love to know what people were doing at what stages. I understand it's a long recovery but I'm surely not looking at feeling this awful for 6 months am I? At the moment it just seems never ending and I'm feeling a bit sorry for myself. I know I should be happy I've survived and my results were great but I'm finding it tough right now.

Aug 2018 diagnosed with stage 2b cervical cancer.

Chemotherapy, radiotherapy and brachytherapy given.

All clear Jan 2019

Pain, discomfort along with other symptoms.

Awaiting biopsy and MRI again

Petesdragon
Petesdragon's picture

Hi there!

Ask to join the advanced forum..that's where the pelvic exenterations lurk although there are not many of us.

I am just out and about now so not enough time to reply but it takes a full year to recover from.TPE   Very early days yet for you.

I am  19 months today

In touch soon......

Karen x 

 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

SG82

Hi, thank you for replying.

I had joined the other group, I don't know why but I find this site diffecult to navigate, I'm sure it's not but I can't seem to get to grips with it.

X

Aug 2018 diagnosed with stage 2b cervical cancer.

Chemotherapy, radiotherapy and brachytherapy given.

All clear Jan 2019

Pain, discomfort along with other symptoms.

Awaiting biopsy and MRI again

Petesdragon
Petesdragon's picture

It is very difficult to navigate and there are no alerts. It's easier in the Advanced as only a small number of us. I have replied to your posting in the Advanced. 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

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Moving forward from a cancer diagnosis