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I'm now 5 weeks post total pelvic exenteration op. I'm up and down, but had a couple of yuk days so been in bed pretty much all day.
I tried coming off my pain meds and anti sickness but felt it might be too soon so back taking them again today.
I also have a couple gigs coming up, I'll be 9 weeks post op on my first. Luckily have a wheelchair and hotel close by incase it all goes horribly wrong. I just wish the sickness would disappear. I also get a lot of very painful cramps when my bowel is moving. I feel all these little things are setting me back, mentally I want to do more but I physically just can't.
I'm hoping some of you lovely folk could advise and givee hope that things will pass. I'd love to know what people were doing at what stages. I understand it's a long recovery but I'm surely not looking at feeling this awful for 6 months am I? At the moment it just seems never ending and I'm feeling a bit sorry for myself. I know I should be happy I've survived and my results were great but I'm finding it tough right now.
Aug 2018 diagnosed with stage 2b cervical cancer.
Chemotherapy, radiotherapy and brachytherapy given.
All clear Jan 2019
Pain, discomfort along with other symptoms.
Awaiting biopsy and MRI again