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Post treatment 6 month scan

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Rissag
Post treatment 6 month scan

I got my scan results today, they said everything looks good. On my 3 month scan it showed a mass of maybe scar tissue, but this scan they were able to see it was one of my Fallopian tubes. I had ovary transposition surgery, so I guess it was just in a weird place. I have a pelvic exam tomorrow and then another scan in 4 months, then if everything looks good I just have pelvic exams and Pap smears. I was hoping to get things figured out with my menopause and see about HRT but they want to refer me to a endocrinologist first to see what would be the best thing for me. My estrogen level from a blood test (estradiol) tested in the normal range . But I heard from a different doctor those tests might not be accurate so it's confusing.my brachytherapy who's out of town, said I should be put on HRT, but today my radiation and chemo dr. Seem more reluctant and scared me about the risks, and my chemo dr said since my estrogen seems at a normal level that HRT would send me over and I'd be likely to get a blood clot.i see my gynecologist oncologist tomorrow so I'll see what he has to say, but now I just feel a little lost like I don't know what the best option is to do I just turned 34 so if I go on HRT it would probably be for awhile. I just hope my gynecologist oncologist will at least prescribe me the local estrogen cream for the time being because I have extreme vaginal dryness.i have to do lab work again in a month because something with my liver was a little off, so hopefully that was just a mistake.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
noodlesdoodles

Fantastic news Rissag that your scans looked good!! What a relief! So, so happy for you. 

It seems there is always something to think about on this journey and I am sure your Gynae oncologist will be able to give good guidance about HRT so you can decide what is best for you. Hope you get it sorted out soon to help with the menopause effects. 

Big hugs xx

 

May 19 smear June 19 CC diagnosed CT/ MRI July 19 EUA - into parametrium PET scan Results - 2B clinically/. 1b1 radiologically. Decide between chemorads or hysterectomy 30.07.19 Saw consultant- will do EUA / camera and node dissection first. If spread do chemorads 21.08.19 open Radical Hysterectomy and node dissection 2.9.19 NED Nov19 ISC bladder issues Diagnosed with Lymphoedema
Rissag

Thank you so much!

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Izzzy76

 Marissa this fabulous news! So happy for you!  

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Rissag

Thank you Izzy, I’m so happy for u too! I’m just so anxious and stressed about this whole menopause thing, I feel a little overwhelmed at the moment.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Izzzy76

Ahw I'm sorry you are feeling that way, I wish there was something I could say to make you feel better but we'll just have to ride it out. I am seeing a therapist to help me cope with the wreckage that this whole thing caused, have you considered looking for counselling? ( I might have asked this already but my memory is awful lately, I think I have chemo to blame for it) 

 

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Locket

Good news about your scan results!

My GP and CNS both said to me that the pros out weigh the cons for starting HRT. I am 32 (today!) and was told that my body should be producing oestogen for the next 15-20 years, without it the long term effects could be awful. My cancer wasnt hormone related. I dont know about yours. 

There is always some tricky decision to make isnt there!!

Enjoy your scan results x

Memagh

Delighted for you Rissag. Heartwarming to hear all the positive news. My oncologist said she wouldn't be recommending HRT for me unless I was really symptomatic but I'm 46 so a big difference in age. Feel for you! It really is hard to know the right thing to do, especially as even the experts differ in their opinions. I think just celebrate this weekend and think about it afterwards. Xx

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.

10th February 2020

MRI and Pet-CT clear. NED

3 monthly scans

 

Play_Pretend
Play_Pretend's picture

Great news! I have my third pelvic exam tomorrow (or today, february 14th), so fingers crossed. 

March 2019:

-Tumor discovered staged at 2b, squamous cell. No lymphnode involvement.

April/may 2019:

-Chemoradiation 5x/23x and interstitial brachy 4x

August 16 2019:

- 1st check up: NED

November 2019:

- 2nd checkup: All clear (NED). Some hard tissue is felt, pap taken to be sure. Probably scar tissue.

February 14th 2020

- 3rd checkup: NED  

God promises to make something good out of the storms that bring devastation to your life

- Romans 8:28

Izzzy76

Keeping my fingers crossed for you!

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Izzzy76

Keeping my fingers crossed for you!

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Rissag

Thank you girls! I just had my pelvic exam today and he did another Pap smear .and he said everything looks good in there as well. That dr said I should wait on the HRT for now too, so I guess I'm waiting , a little frustrating but I got my follow ups out of the way so now I'm just gonna enjoy my break until next exam and scan. I ask about the estrogen cream but he said to give the over the counter moisturizer a try first, so I bought some.i was a little sad and anxious the other day thinking about menopause and HRT and not knowing what to do, but I'm just gonna try to forget about for the time being and enjoy my next break.im so happy Izzy that your scan and pelvic exam was good! Maria im so happy for u too! And go enjoy this weekend in Ireland. Locket I'm glad your pelvic exam looked good and that you're in good spirits! We got one girl left Emma Emmz, and I'm sure hers will be great too and I can't wait to congratulate her!  Play pretend I hope everything turns out well for u tomorrow and u enjoy your weekend, are u from the United States too? It seems like Pap smears after treatment are a U.S Thing? Idk 

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Izzzy76

Keeping my fingers crossed for you Play Pretrend

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
emmz13

oh Marissa I just couldn't be happier for you :) this is just the best news. I hope that you have been doubly spoilt rotten this valentines!!
 Ladies, Marissa, izzzy, locket, Memagh your practically perfect results have given me so much hope, you are all warriors and I hope that there will be so many more positive results to come as you all continue to kick cancers butt!! 
I look forward to joining you all in a month or so. Massive hugs and loads of love to you, enjoy life, celebrate brilliant scan results and don't let cancer over shadow anything.

love to you all xxx 

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

Play_Pretend
Play_Pretend's picture

Hi girls!!

Thank you all for the support!

Marissa i am over the moon for your results, so happy, and of course for all of you other girls too!

My pelvic exam went great today. I am all clear, NED. Everything looks and feels great. Only have stenosis at the top of my vagina.. its my own fault, i got a little lazy with the dilators over christmas. My GYN ONC told me to keep going with the dilators, he can still get in now but it should not close up more. 

I am actually from the Netherlands, but i live in South America :) so i got part of my treatment in Curaçao and my brachy in Colombia.. i got to see the world :p that is one positive i got from this.

In the Netherlands they also keep doing smears.

My name is Laura by the way, maybe thats easier. xxxx

March 2019:

-Tumor discovered staged at 2b, squamous cell. No lymphnode involvement.

April/may 2019:

-Chemoradiation 5x/23x and interstitial brachy 4x

August 16 2019:

- 1st check up: NED

November 2019:

- 2nd checkup: All clear (NED). Some hard tissue is felt, pap taken to be sure. Probably scar tissue.

February 14th 2020

- 3rd checkup: NED  

God promises to make something good out of the storms that bring devastation to your life

- Romans 8:28

Izzzy76

Laura ik kom uit Utrecht, ook Nederlandse ❤

 

 

NED, so happy for you!

 

Small world, finding another Dutchie here 

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Rissag

Laura, great news I'm so happy for you! Yeah using the dilators can feel like a chore sometimes. I use mine two times a week 20 min each time 3 day break in between and it's ok. I wonder sometimes how many days we can go without It effecting us.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Southofthelake
Southofthelake's picture

Rissag, i am so happy your scans came back normal, what a weight off! 

I am sympathetic to your hrt confusion, i really hope they sort something out for you soon and you are confident about the outcome of using it in the future.

So happy for all the other ladies in the thread too. My treatment journey is due to start in 2 weeks i think, so i'll catch up to you soon. 

October 2019 - smear test

November 2019 - results back; hpv with severe dyskaryosis, colposcopy organised.

November 2019 - colposcopy biopsy taken - confirmed abnormal cells

December 2019 - lletz performed

Jan 2020 - called in: confirmed I have cancer

Tests run through Jan and Feb. During this time went through fertility treatment; 5 eggs frozen.

End Feb - confirmed stage 2b CC

Treatment starts March - 28 external radio/5 chemo/4 brachy

Only sat 3 chemo after developing tinnitus

April 25th - finished brachytherapy

July 2020 - awaiting MRI

Rissag

 Thank you, and great news you got your start date, try to rest up and get the stuff you need together.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
emmz13

Laura!! Amazing news, I am just so very pleased for you, I hope you celebrate! I have been lazy with the dilators too I am expecting a "talk" at my March appointment hehe

gosh there is just so much happiness news at the moment, it certainly feels so much better than 6 months ago. 

play you will be joining the joy before you know it, I hope treatment goes well for you, we're here shours you need us xxx

love to you all xxxx

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

Play_Pretend
Play_Pretend's picture

Izzzy, wat leuk! Ik dacht echt dat ik de enige Nederlander was hier haha, gelukkig toch niet :p

Marissa, i know right? It was about two weeks and i think i just had sex in those two weeks, with my husband, but im guessing not to much because we had family over and its just very busy. My GYN ONC said its a very thick scar tissue, he tried to break through with his finger but could not, oops :x

Southofthelake, i want to wish you goodluck on your yourney and if you have any questions we are here for you x

Hi Emmz, great to hear from you! How are you doing??

Im super happy to have you girls to talk to and you really know what im going through (and the other way around ofcourse). Im so happy everyone has had such positive news. Fingers crossed xxx

March 2019:

-Tumor discovered staged at 2b, squamous cell. No lymphnode involvement.

April/may 2019:

-Chemoradiation 5x/23x and interstitial brachy 4x

August 16 2019:

- 1st check up: NED

November 2019:

- 2nd checkup: All clear (NED). Some hard tissue is felt, pap taken to be sure. Probably scar tissue.

February 14th 2020

- 3rd checkup: NED  

God promises to make something good out of the storms that bring devastation to your life

- Romans 8:28

WendyJE

Brilliant news all round ladies! Makes me hopeful for the weeks ahead x

No missed or abnormal smears. Odd symptoms started in April 19.

Diagnosed with Adenocarcinoma 2b with one lymph node involved on 1/7/19.

Started 11 weeks of chemo on 15/7/19.

Started 25 external radiotherapy on 26/8/19.

2 brachytherapy and end of treatment on 6/10/19. 

 

Rissag

Wendy , I seen on another post that u have a scan coming up. Good luck with your scan! And I hope everything turns out great. Let us know how it goes.       Best wishes, marissa 

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
WendyJE

Thanks Marissa, yeah scan is this week then clinic follow up in a couple of weeks. Keeping everything crossed that I continue the run of great results that have been going on here x

No missed or abnormal smears. Odd symptoms started in April 19.

Diagnosed with Adenocarcinoma 2b with one lymph node involved on 1/7/19.

Started 11 weeks of chemo on 15/7/19.

Started 25 external radiotherapy on 26/8/19.

2 brachytherapy and end of treatment on 6/10/19. 

 

NATNAT8912

Rissag, I'm so happy for you (it took me ages to figure out your real name was Marissa lol) ❤️ This whole thread warmes my heart so much!!! I'm overwhelmed with happiness seeing everyone getting good results from their scans! ❤️❤️❤️ 

my first one is coming up on Thursday and ngl I'm feeling super anxious about it. 

I still get discharge (non smelly though) and I get weird aches sporadically across the area I've had radiation. I hope this is all post treatment side effects and that I'm okay too ❤️ But you never know I guess. 

I've already started HRT, as lockets dr said: the pros outweighs the cons, maybe for us? Even if we all had the same cancer, we might have different blood level results and hormone levels could be different from person to person? I hope you find the right solution for you ❤️

and Laura - thanks for the scare with the dialators - I'm SO lazy with them! I think I've used them three times since I got them.... im glad it hasn't affected you in any way though. 

I think I'm gonna go use them now actually lol see you girls soon, I know I've been MIA but I kind of needed it since the pink website triggered me and took me back to dark-cancer-google-life lol I'm in a happier place now and again SO HAPPY EVERYONE IS GETTING GOOD RESULTS!!!!! ❤️❤️❤️ 

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Harvitt

Hi natnat, 

I've just been diagnosed with 3b/c as I've got lymph node involvement. I'm again petrified. At first they said 2a but now with lymph node it's gone up. I haven't started treatment yet and I'm scared. So scared. 

How are you? Are you clear? 

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.
Rissag

Nat, so glad you came back on to see the good news with everyone. I hope it makes you a little less nervous for Thursday, I'm sure yours is going to come back good too and you will be next to have good news.ill be thinking about you Thursday, stay strong girl, you got this!

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19

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Moving forward from a cancer diagnosis