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Saw the colorectal doctor today and they want to do a colonoscopy before giving medication to see how far the proctitis extends in the colon. Asked how long the episodes usually last saying its been since january 10 but cant get a clear answer. Still having intermittent rectal bleeding with occasional clots, mucous and jelly. Appetite is completely shot and hard to eat anything but jelly, yoghurt, soup, toast and cornflakes. Supplementing with sustagen but still lost 9kg in 4 weeks. Least i fattened myself up when i was well! Having nausea, vomiting and bloating even though not eating very much but having the maxolon regularly. Still taking the probiotics but not much success.
Pain has been better but on a higher dose of targin and just resting . I Have another month off sick at work. As soon as i do small tasks im completely wiped out. My boss said i might have to look at my future in my position. So frustrating not knowing how long it takes to improve. Just trying to take the paracetamol and targin now but still need occasional endone.
See my radiation oncologist tomorrow again. Hopefully hes got some good advice on how long it takes things to settle.
Much love and hope everyone is travelling as best as they can xx
Diagnosed stage 3B squamous cell CC with paraaortic lymph node involvement. 4/2017. Had chemoradiation and brachytherapy finished 6/2017
4/2018 loop ileostomy inserted.
7/2018 bilateral nephrostomies for blocked ureters.