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Radical Hysterectomy... I DID IT!!!

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Charlotte290
Radical Hysterectomy... I DID IT!!!

am sure you will have noticed my crazy rants and major anxiety lead posts leading up to my surgery. Well I am one week post radical hysterectomy, and am doing really well! 
As everyone said- it was nowhere near as bad as my head conjured it up.

the first few days I slept and they are now nothing but a blur. I stayed in for 5 nights- and was so pleased to get home I must say! The worst big for me, aside from the hospital food (!!) was most definitely the anticipation. 
I am sore, and uncomfortable, but haven't really been in pain which has really sueprised me. Actually, I take that back- my first bowel movement was last night and that was pretty intense!! I was deep breathing for a good half an hour afterwards which had my husband in hysterics!! 

I struggle to sleep, mainly because I can't get comfortable- but am being very well looked after I must say! 
catheter out today, and although that was a huge relief.... I do miss not being able to pee in my comfy chair watching Netflix LOL!! 

To everyone that helped me during staging, and surgery wait- thank you. You're all amazing and have really made this feel far more doable than I ever imagined. 

I am very much looking forward to recovering fully- not trying to rush it at all, and taking each day as it comes... the only stress I have is waiting on pathology, which emotionally I am finding very difficult- but have everything crossed for that, and hope I can get back to 'normal' ... whatever that is! 
My concern for pathology is that my surgeon ended up taking an ovary, which wasn't planned. He is still pretty sure that I won't need further treatment, and says he took it as a precaution, and based on conversations with me to do whatever is necessary. He believes it is nothing sinister at all and in his words- he is 90% sure it won't be in lymph nodes. I just so hope he's right- certainly feel I've been through enough!! (Haven't we all!!) 

Relieved that part is over for one :) hope everyone is doing well.

Charlotte x

 

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

FeelingTheFear

Hi charlotte 

Its so good to hear that you're at home and recovering well! Congratulations on making it through your surgery and finding it wasnt so terrible as you had feared! 

90% means that the odds are overwhelmingly in your favour and im sure I was given similar odds after my surgery too, but I remember not daring to hope. It is hard to remain hopeful and optimistic after a smear test, biopsy, and LLETZ in short space of time all coming back with the results I hadnt wanted to hear. So I think its normal to be bracing yourself at this point, but your surgeon sounds reassuring. Keeping everything crossed for you! Take it easy and be gentle with yourself x

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1 (1b2 on new FIGO)

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up. NED!

Southofthelake
Southofthelake's picture

Hi Charlotte

I am so happy to hear that your surgery went well and your recovery is going smoothly. 

I feel you on the first  post-GA poop, that is an experience one would wish never happened. Ha.

 

October 2019 - smear test

November 2019 - results back; hpv with severe dyskaryosis, colposcopy organised.

November 2019 - colposcopy biopsy taken - confirmed abnormal cells

December 2019 - lletz performed

Jan 2020 - called in: confirmed I have cancer

Tests run through Jan and Feb. During this time went through fertility treatment; 5 eggs frozen.

End Feb - confirmed stage 2b CC (updated info, staging changed to stage 3 invlving lymph nodes)

Treatment starts March - 28 external radio/5 chemo/4 brachy

Only sat 3 chemo after developing tinnitus

April 25th - finished brachytherapy

July 2020 - MRI

Awaiting results

HockeyMilk

Wow I am glad to hear that, keep being well my friend

EmmaBee

Hi Charlotte. 
Glad to hear you're recovering well, I'm 10 days post surgery and so pleased it's over, especially after having it cancelled the last time due to a high temperature! 

 

I must admit I'm surprised at how tired I am, granted I'm improving each day but just the smallest of walks from my living room to the kitchen wears me out! Hope you're managing ok. How much of a relief is it to have the catheter out?! 

Take Care 

xxx 

5/6/20 Saw doctor due to abnormal bleeding after intercourse. 22/06/20 Gynaecology appointment, had loop biopsy. Thought it was cervical erosion due to having children and being on the pill.

7/7/20 Biopsy results confirmed Cervical Cancer. Stage 1B1. (Never missed a smear test or never had any abnormal results).

20/7/20 MRI scan.

16/09/20 Radical Hysterectomy & lymph node removal. 

09/10/20 Histology results. Stage 1B1 grade 1. Surgery successful, no further treatment needed. 3 month check ups. 

Lisa_xox

Hi Charlotte

I'm so glad your on the otherside and so begins the road to recovery. Youve done the hardest part now so take it easy on your recovery and accept every bit of help you can. 

Xx

27.05.2020 attended nurse apt due to unable to feel coil strings and slightly heavier than normal discharge

03.06.2020 colposcopy apt

10.06.2020 apt made for results (welcome to cc club)

15.06.2020 MRI scan

18.06.2020 MDT stage 1b2

25.06.2020 apt to meet surgeon and discuss treatment

15.07.2020 radical hysterectomy 

06.08.2020 no further treatment needed, follow up in 3 months

 

Charlotte290

Thank you all ❤️ Xxx

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

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Moving forward from a cancer diagnosis