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Reoccurance rates

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Kimberlyg88
Reoccurance rates

Hi everyone,

 

I was diagnosed 1b1 with 2 micro in nodes. I had a radical hysterectomy plus chemo and rads.

my onco told me I had an 8% chance of reoccurance. I read so many storeys about reoccurance and it prettifies me.

thoughts on the rate?

I hope everyone is safe and well.

Philleepa

Would you bet £1000 on a horse that had an 8% chance of winning? I doubt any of us would! 

Stop reading about it. You are very rarely going to get positive stories about people who have had cancer because most people just want to walk away from it and don't want to talk about it ever again.  There are so many people who have had it and it hasn't returned. 

It's not easy, I know but stopping reading is the best way to stay sane xxxx

Harvitt

Such sound advice. I too was looking at %... But you are so true. 

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.
Kimberlyg88

The note that says your doctor said covid 19 has a bette rate at killing you the CCmakes me feel soooo much better.

sounds like we had a very similar diagnoses.

 

hope you are well x

rufus

Hi Guys,

This seems like good advice. I am currently googling about reoccurrence and I am going to stop now!

Stay safe. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

Jeebers

I'm glad to find I'm not the only one worrying about recurrence before finishing treatment though, the thought of a recurrence has only recently occurred to me but that is sound advice. I am starting to believe I've just became accustomed to torturing myself with the 'what ifs' at this point.

5/2/20 sent to a&e with abnormal bleeding, mass found on cervix

12/2/20 colposcopy and biopsy taken

26/2/20 diagnosed with cc - Stage 1b2

03/03/20 colposcopy with lletz, hysteroscopy and cystoscopy performed under GA

10/03/20 - admitted to hospital with abnormal bleeding, MRI, CT and PET scans done. PET showed abnormalities in lymph nodes, laparoscopic surgery to take biopsy of lymph nodes 

31/03/2020 - radical hysterectomy with lymph node and ovary removal

20/05/20- started radiotherapy 

Greeni

I think we all worry about recurrence , i agree it is definatley best not to read about it as everything is so dismall !! I personnaly think its the luck of the draw so to speak really , i dont take any notice of statistics. Thats just my opinion.   I do think Phileepa is right There are so many people who have had it and it hasn't returned. 

On that note , i have had recurrence and i am now 4.5 year post recurrence and i am still here ,  A recurrence is awful i cant lie,  however i am proof treatment options for recurrence can work , 

 

Best wishes 

Greeni xx

LaurieBeth

I have learned in my eternal wait for tratment that so much of this journey is really mental. With thr help of starting anti-anxiety meds and a ton of exercise and meditiation and prayer and reading and quite honestly with the COVID situation, I am starting to really internalize that today is the onmy day any of us are guaranteed. We could die in a car accident or some other accident just as easily as from cancer or recurrence. So many young, healthy people have died unexpectedly of COVID. In our aituations it is easy to worry and obsess over death and what might happen, but I do think while it is normal, it is something for us all to fight against. Some of my days and hours are better than others, but I am trying hard not to let my fear of tomorrow steal the joy and gratefullness of today.  Life is always uncertain; we just happen to be in a situation that makes us have to face that each day. Most people run through life basically feeling immortal and with a false sense that they are "in charge." We no longer have that luxury, but maybe can find some deeper joy in moments because of it. 
Not sure any of that is helpful, but it has all really been in my head lately. Stay strong, ladies.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

FeelingTheFear

Lauriebeth, I have found your post both helpful and profound, as I grapple with my own fears. Nobody comes with a guarantee, make the best of what you have today. This makes sense. Thank you x

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

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Moving forward from a cancer diagnosis