(0)
0 Items £0.00

Start of Chemoradiation tomorrow - feeling anxious

13 posts / 0 new
Last post
Gemmed
Start of Chemoradiation tomorrow - feeling anxious

Hi lovelies,

It's almost 5 am, and I woke up around 3am, feeling anxious. I will be having my first chemoradiation treatment tomorrow, Monday 25th March, and still can't believe that I will be going through this. The more I think about it, I feel like my heart is stopping and I'm going to faint.

I just feel like I'm going to enter into different dimention of life where you will now be separated from normal cancer free people. The thought that I would not be the same physically before scares me a lot. Sorry for my vivid imaginations, it's just hard to describe it.

Please if you were Stage 1 2B cancer survivor at 36 years old or similar range, I would appreciate your success stories and advise. I would like to know how you are now, I just want to know how is life with you now. Do you have any further complications after chemo radiation?

Thanks a lot ladies, much love.

Gem

  • Age: 36 years old
  • Smear test result: Severe dyskariosis.
  • Symptoms: bleeding out of period
  • MRI Scan Result: 3cm tumor
  • Biopsy Result: CC Stage 1 2B
  • Treatment: 7x Chemo sessions, 28x Radiation sessions, 3x branchytherapy sessions)

 

  • 16 Jan 2019: Pap Smear
  • 24 Jan 2019: Swab Test
  • 5 Feb 2019: MRI Scan
  • 6 Feb 2019: CT Scan
  • 12 Feb 2019: Biopsy
  • 20 Feb 2019: PET Scan
  • 1 Mar 2019: Confirmed CC Stage 1 2B
  • 25 Mar 2019: Chemo Radiation Start
  • 8 May 2019: End of Treatment
Philleepa

Hi Gem, there are a few stage 2B ladies who still come back on the forum but lots and lots who are don't as they don't need it anymore. Once you've got the all clear and don't have any problems, most people just want to get on with their lives and forget this ever happened.

I was diagnosed aged 47 with stage 4a in 2015. I had the same treatment as you will be having and thankfully I am physically the same as pre treatment (just slightly larger but I'm working on that).

I went back to work as a childminder 3 months after treatment,  back playing rounders 6 weeks after treatment and I'm currently at the gym and swimming most nights as well as working full time and looking after my own children.  If anything,  I'm more physically fit than my 50 year old friends. 

Life is normal thankfully x

libby123

Hi Gem, my cancer wasn't the same stage as yours and was treated with just surgery but I just wanted to wish you good luck with your treatment x

Petesdragon
Petesdragon's picture

I am alive 22 years after stage 3 super aggressive. I was 34 then..

Karen x 

 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

lboyle89

Hello! I was also stage 2B, 30 years old and finished treatment last June. I live my day to day life pretty much as I did before all this happened. I took time off work whilst having my treatment and returned about 2 weeks after my brachytherapy. I go out with friends, have holidays etc some stuff I've had to cut out of my diet as it upsets my belly a little, but other than that life is good :-) good luck with your treatment xx 

Gemmed

Hi ladies, thank you so much! These are all hopeful that nothing has change since and you all more active and back to normal life. I'm so looking forward to finish my treatment. 

And it's so nice that you are still here to support other people who are going through this stage, this is so really helpful for us.

I think it's the fear of the 'unknown is the hard part for most of us who has not gone into treatment yet. So your success stories and support is very much appreciated to assure us that everything is going to be okay after the treatment.

Thank you all so much, tomorrow is the big day.

Gem

 

  • Age: 36 years old
  • Smear test result: Severe dyskariosis.
  • Symptoms: bleeding out of period
  • MRI Scan Result: 3cm tumor
  • Biopsy Result: CC Stage 1 2B
  • Treatment: 7x Chemo sessions, 28x Radiation sessions, 3x branchytherapy sessions)

 

  • 16 Jan 2019: Pap Smear
  • 24 Jan 2019: Swab Test
  • 5 Feb 2019: MRI Scan
  • 6 Feb 2019: CT Scan
  • 12 Feb 2019: Biopsy
  • 20 Feb 2019: PET Scan
  • 1 Mar 2019: Confirmed CC Stage 1 2B
  • 25 Mar 2019: Chemo Radiation Start
  • 8 May 2019: End of Treatment
Mousehouse
Mousehouse's picture

Hi -I was a 2B too

now 15 months in remission with no particular side effects to speak of-treatment is amazing now and its very curable-good luck with the treatmanr-you will smash it, just take care of you xx

Petesdragon
Petesdragon's picture

How did it go?

K x

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

Gemmed

Hi everyone, thanks for your kind messages.

I was so terrefied yesterday but survived!

It's the thought of taking the chemo drugs and kill my good cells too, but I should chane my mindset on that, Im trying to say that it will cure me.

So yesterday was fine it feels like im just having a normal drip, so didnt feel anything. I was the only one in the chemo bay who drank plenty of water like 2500+ mls and passed urine of 900mls so the nurse was amazed except I go to the loo every 20 min. They worried about my frequency in the toilet that I got UTI but i told them Im drinking a lot of water and been doing this for the pas week so they were relieved.

Raditotherapy was okay too, but I overdrank water that my bladder feels like to explode during the radiotion which was not nice. So the nurse told me, if Im having chemo on the same day of radiation, I should not drinnk more water as Im alreadt hydrated from the fluid drip.

So all in all, long day from 830 to 5pm, its okay.

Night time, i woke up at 12pm, feeling hungry, or upset stomach and my hands looks swollen so i read its water retention. But it started to go away this morning.

Then i noticed i lost a bit of grip in my hands, everything I carry falls off, again I read its the nerves side effect of the chemo.

I feel cold too which is also side effects of chemo therapy.

Im having constipation too, but thankfully i always have smoothie and was able to go to the toilet after few hours.

Im starting to lose apetite too on water but i will need to push myself.

Sorry for the detailed story but I hope this helps too with new patients on what ti expect on day 1 of chemo therapy.

Thank you all, will update you soon again ,

Im off to 2nd day of radiotherapy...

Gemxx

 

  • Age: 36 years old
  • Smear test result: Severe dyskariosis.
  • Symptoms: bleeding out of period
  • MRI Scan Result: 3cm tumor
  • Biopsy Result: CC Stage 1 2B
  • Treatment: 7x Chemo sessions, 28x Radiation sessions, 3x branchytherapy sessions)

 

  • 16 Jan 2019: Pap Smear
  • 24 Jan 2019: Swab Test
  • 5 Feb 2019: MRI Scan
  • 6 Feb 2019: CT Scan
  • 12 Feb 2019: Biopsy
  • 20 Feb 2019: PET Scan
  • 1 Mar 2019: Confirmed CC Stage 1 2B
  • 25 Mar 2019: Chemo Radiation Start
  • 8 May 2019: End of Treatment
Medway555

Hi Gemmed, I had Stage 2 CC. Treatment consisted of 5 Chemo, 29 Rads and 3 brachytherapy. I, like you was terrified of what was in front of me but I was fine apart from the odd stomach upset.  On the first session of Brachytherapy I told my Consultant I had back and leg pain.  He wasn't concerned...  I finished treatment in October '18 and apart from back pain I was ok until the end Dec/beginning Jan when my walking was affected.  I have private insurance so met a consultant who did an MRI and said I had nerve damage in the leg and drop foot in both feet and it wouldn't improve but could get worse.  I then got a second opinion and was told that it was unlikely that the nerves would improve.  So now my quality of live is nil. I am seeing a Physiothrapist this week, and am hoping she will be more optimistic.  The Consultant I was seeing for my cancer treatment and the Mcmillan nurses never mentioned anything about nerve damage. So, my advice to you is let your medical team know of any nerve issues so that they can hopefully prevent any lasting damage.  I wish you the very best of luck, keep your chin up and remember, your medical team will look after you very well so any issues just let them know so that they can keep and eye on things.

Stage 2B Cervical Cancer and lymph no de confirmed May 2018. 5 Chemo/6 weeks Radiotherapy and 3 x Brachytherapy. Finished treatment October 2018. In remission January 2019 CT Scan November 2019 for pelvis, stomach and chest given all clear.
Gemmed

Thanks Medway,

Im in my 2nd week now. My first week i could fee the back pain by end of the week.

This week is more of upset stomach and loose bowels.

Im worried about the nerves, but definitely will note this, thank you very much i hope you will get better too with ur physio.

Xx

  • Age: 36 years old
  • Smear test result: Severe dyskariosis.
  • Symptoms: bleeding out of period
  • MRI Scan Result: 3cm tumor
  • Biopsy Result: CC Stage 1 2B
  • Treatment: 7x Chemo sessions, 28x Radiation sessions, 3x branchytherapy sessions)

 

  • 16 Jan 2019: Pap Smear
  • 24 Jan 2019: Swab Test
  • 5 Feb 2019: MRI Scan
  • 6 Feb 2019: CT Scan
  • 12 Feb 2019: Biopsy
  • 20 Feb 2019: PET Scan
  • 1 Mar 2019: Confirmed CC Stage 1 2B
  • 25 Mar 2019: Chemo Radiation Start
  • 8 May 2019: End of Treatment
Kat219

They don't tell people about that horrible side effect.  I've had nerve damage for 9 years of severe RLS, Ulnar & Carpal Tunnel Syndrom, numbness of feet and hands and KNOWING this these doctors think I'll subject myself to chemo.  I personally have not been able to find so much as ONE single reason to go through such.  I cannot find so much as a shred of information about HOW poisoning entire body helps radiation to work "better".  

I know I sound hostile, probably because I do not trust such an lucrative, profit driven segmant of medicine of oncology but chemo fortification just didn't make any sense at all and I've looked EVERYWHERE for substantiation.  

I do know, with certainty, that nothing gets cancer stem cells without surgical excision.  It's completely impossible.  

I'm very much considering forgoing treatment completely as I've encountered so many people who go through these treatments and are destroyed financially, emotionally, and have same cancer pop up in other organs in very little time.  That is due to the stem cells moving when radiation is applied.  

I cannot understand why medical professionals keep these issues such as nerve damage from us.  

 

I hear your voice...I have nerve damage from totally unrealated to cancer issue and it's DEBILITATING.   

Peace to you.  

slicknic

Hi Gem - Best of luck to you! I had similar staging and treatment (1 more brachytherapy than you) and finished up 5 months ago. I’ll be honest, I had a rough time with the treatment. They had to stop and give me a week long break halfway through because the doc said they’d kill me if they kept going. And it was hard and it sucked. But it was only 7 weeks of treatment and now I’m doing all the things I did before. My bowels are touchy and I haven’t tried intercourse yet but other than that it’s not slowing me down! I’m working and traveling and having fun. So keep in mind that there is an end in site and you WILL get better. Maybe not the exact same as before, but it’s a small price to pay not to die from cancer. 

All the best,

Nic

More Information

Moving forward from a cancer diagnosis