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Surgery after treatment

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Lilypingu
Surgery after treatment

Hi ladies

Having been Ned since April following my treatment for 2b, I now find myself with a bit of residual tumour spotted at my last check up and surgery booked for 7th January.

I am scheduled to have a total abdominal hysterectomy with bilateral saplingo oophorectomy.

Curious to know if any others have had this salvage hysterectomy after pelvic radiotherapy and any experiences you can share?

11.9.18:Hysteroscopy/punch biopsies

18.9.18:CC diagnosis-2b

19.9.18:Pelvic MRI

24.9.18:CT pelvic + abdomen/thorax

1.11-24.12.18:4 cisplatin, 32 radiotherapy

10.12.18:Pulmonary embolism

18.2.19:Post treatment check up

28.02.19:Pelvic MRI

02.04.19:3 month check-NED

25.06.19: 6 month check-all ok. 08.10.19: 9 month check. Area of concern found. 17.10.19: Pelvic mri 13.11.19: Pre op assessment 14.11.19: Petscan 26.11.19: Biopsy under GA. 9.12.19: Residual tumour confirmed. Scheduled to have total abdominal hysterectomy with bilateral salpingo oophorectomy January 2020.

Surgery failed due to radiation damage. Pelvic exenteration-10th March 2020.

Izzzy76

  So sorry to hear this but really happy they can still cure you! I recently talked to a lady here who had a hysterectomy after treatment and she was doing well.  

 

I forgot her name but you'll find her by clicking my user name and search my previous postings 

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Lilypingu

Thanks Izzzy

I’ll go and have a look! 

11.9.18:Hysteroscopy/punch biopsies

18.9.18:CC diagnosis-2b

19.9.18:Pelvic MRI

24.9.18:CT pelvic + abdomen/thorax

1.11-24.12.18:4 cisplatin, 32 radiotherapy

10.12.18:Pulmonary embolism

18.2.19:Post treatment check up

28.02.19:Pelvic MRI

02.04.19:3 month check-NED

25.06.19: 6 month check-all ok. 08.10.19: 9 month check. Area of concern found. 17.10.19: Pelvic mri 13.11.19: Pre op assessment 14.11.19: Petscan 26.11.19: Biopsy under GA. 9.12.19: Residual tumour confirmed. Scheduled to have total abdominal hysterectomy with bilateral salpingo oophorectomy January 2020.

Surgery failed due to radiation damage. Pelvic exenteration-10th March 2020.

Hana

Hi Lilypingu, I too am facing facing another surgery for a growing fibroid (either a myomectomy or a hysterectomy) and I am really struggling to make a decision largely due to the fact that I am worried possible scarring/adhesions from my pelvic radiotherapy as well as well as tissue healing/recovery. I have not been able to get a clear cut answer for the latter. Has your consultant touched on any of these points during your discussions? I was just told that any surgery in the pelvis area post radiotherapy would make things 'more complex but not impossible'. I would be really keen to hear your views on this and any concerns you may have as well, if you don't mind.

Stage 1b cc - July 2007.Trachelectomy July 2007 followed by chemo-radio for node involvement. All treatment completed September 2007. All good so far.

Lilypingu

Hi Hana

The consultant I saw had quite a detailed discussion with me about the risks..main one being damage to my bladder due to where it sits in relation to the uterus..danger of perforating it in particular. Other concerns are bleeding and potentially needing a transfusion, increased risk of blood clots, and of course adhesions making it too difficult to do. He gave me statistical risks compared to a woman having this op without having had pelvic radiotherapy. So, for example, if the risk of something going wrong was 1 in 50 for the average woman, my risk might be 1 in 20. 

I’m fully aware that the op is higher risk, but also, having had a recent biopsy under general where she had a poke around, that my consultant believes she can do it. 

In terms of recovery, I was told it could be longer-up to 12 weeks-but may not be. All depends on the individual. 

To be honest, I was hoping for surgery which will give me a chance of getting rid of this and was honestly very relieved when I was told I was a candidate for it. It’s a no brainier for me, because if I don’t go for this, then I’ve got real problems! I’m nervous of it, of course as it’s major surgery and because I had a pulmonary embolism in the past. But I remember after I had one of my daughters...I lost a lot of blood and was on a drip, passing massive clots. I was stitched inside and out and pretty tired after an 18 hour labour.  I still got myself out of bed when they told me I should be resting, had a shower and got dressed and did my hair and makeup ready for visitors! I want to be out of bed as quickly as possible and moving after this op to minimise my post op risks and I am an extremely determined and positive person. I am prepared to do whatever it takes, and I trust the team who are looking after me. Bring it on! 

11.9.18:Hysteroscopy/punch biopsies

18.9.18:CC diagnosis-2b

19.9.18:Pelvic MRI

24.9.18:CT pelvic + abdomen/thorax

1.11-24.12.18:4 cisplatin, 32 radiotherapy

10.12.18:Pulmonary embolism

18.2.19:Post treatment check up

28.02.19:Pelvic MRI

02.04.19:3 month check-NED

25.06.19: 6 month check-all ok. 08.10.19: 9 month check. Area of concern found. 17.10.19: Pelvic mri 13.11.19: Pre op assessment 14.11.19: Petscan 26.11.19: Biopsy under GA. 9.12.19: Residual tumour confirmed. Scheduled to have total abdominal hysterectomy with bilateral salpingo oophorectomy January 2020.

Surgery failed due to radiation damage. Pelvic exenteration-10th March 2020.

Izzzy76

Hi,

 

Just wondering how you are getting along, have you got a date for your surgery yet?

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Lilypingu

Hi Izzzy

I went in for my hysterectomy on 7th January but after opening me up discovered that the radiation damage was to great to proceed safely. So the operation was abandoned and they stapled me up again. I’m recovering at home. 

Now waiting for various appointments with the surgeons who are going to involved in my next step which will be pelvic exenteration. 

11.9.18:Hysteroscopy/punch biopsies

18.9.18:CC diagnosis-2b

19.9.18:Pelvic MRI

24.9.18:CT pelvic + abdomen/thorax

1.11-24.12.18:4 cisplatin, 32 radiotherapy

10.12.18:Pulmonary embolism

18.2.19:Post treatment check up

28.02.19:Pelvic MRI

02.04.19:3 month check-NED

25.06.19: 6 month check-all ok. 08.10.19: 9 month check. Area of concern found. 17.10.19: Pelvic mri 13.11.19: Pre op assessment 14.11.19: Petscan 26.11.19: Biopsy under GA. 9.12.19: Residual tumour confirmed. Scheduled to have total abdominal hysterectomy with bilateral salpingo oophorectomy January 2020.

Surgery failed due to radiation damage. Pelvic exenteration-10th March 2020.

Izzzy76

So sorry to hear this but very happy they can still offer you a chance to be cured. Won't be a walk in the park  though. I wish you all the best, all the strength and love to get through this ❤

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Lilypingu

Thanks Izzzy. Yes-it’s major stuff but I’m lucky enough to have met some ladies who have had the op and are looking amazing and living well. I’m definitely very grateful to have the chance to do this!

11.9.18:Hysteroscopy/punch biopsies

18.9.18:CC diagnosis-2b

19.9.18:Pelvic MRI

24.9.18:CT pelvic + abdomen/thorax

1.11-24.12.18:4 cisplatin, 32 radiotherapy

10.12.18:Pulmonary embolism

18.2.19:Post treatment check up

28.02.19:Pelvic MRI

02.04.19:3 month check-NED

25.06.19: 6 month check-all ok. 08.10.19: 9 month check. Area of concern found. 17.10.19: Pelvic mri 13.11.19: Pre op assessment 14.11.19: Petscan 26.11.19: Biopsy under GA. 9.12.19: Residual tumour confirmed. Scheduled to have total abdominal hysterectomy with bilateral salpingo oophorectomy January 2020.

Surgery failed due to radiation damage. Pelvic exenteration-10th March 2020.

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