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Wow what a crazy time

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Locket
Wow what a crazy time

Hi everyone 

I Hope everyone is ok in this unsettling time and keeping safe. I go through the motions, ups and downs. I'm coming up to my yearly mark in May. Supposed to be having an MRI end of May. Hoping this still stands. Anyone else had any issues with their check ups and follow ups?

too much time to think is not good for anyone right now let alone if you've had the big C. I keep seeing newq stories and posts about people losing the battle and it's quite hard. 

Feeling a little over whelmed, I bet im not alone?

 

stay safe everyone 

x

 

 

Jazza
Jazza's picture

Hi

You're not alone,  this C-19 crisis is having a massive impact  on so many aspects of our lives not least healthcare

My 3 yearly mark is in May.  I've been informed I will be getting a telephone appointment so will miss out on an internal examination.  I met with the surgical term last November and it was suggested I should have an MRI this coming May;  I called the specialist nurse 2 or 3 weeks ago about it and I'm still waiting to hear.

Also my lymphoedema clinic has been suspended.  Luckily I'm fairly up to date but it's making me feel somewhat insecure.  My compression stockings are like medication.

Best wishes

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: post menopausal vaginal bleed
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1  squamous  cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Various side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
Philleepa

There are also many stories about people surviving- it's just they're not written down anywhere x 

I always find anniversary times difficult and I can understand how hard it is during this current situation but it does get easier with time xxx

emmz13

Hey locket!! 
I hope you're staying safe in this crazy time. I've had two letters from the government now telling me to stay at home and don't be in contact with anyone who is a key worker, I guess that's one way to avoid the hubby for 3 months which is a bonus ;) 

My consultant called me today with the results of my scan last Friday, he scared the shit out of me as I was meant to have an appointment with him next week, my mind immediately went into overdrive but it's all good he just didn't want me to go to the hospital. 
My hospital has cancelled all scans that aren't urgent but told me that our scans are considered urgent so plan on going ahead for the foreseeable. 
Try to stay positive sweetheart, there are tonnes of positive stories we just don't hear them. One day we will be able to look back and fill the forum with our own positive stories and give hope to people who unfortunately find themselves in the position we are now.

much love to you sweetheart, stay safe. Xx

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

More Information

Moving forward from a cancer diagnosis