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Brachytherapy in Wales

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Rubyshoes
Brachytherapy in Wales

Hello everyone 

I was just wondering if there is anyone that lives in Wales (pref south) who had brachytherapy?

I haven't had my treatment plan yet (6th Jan) but at 2b the consultant did say he expected it to be chemorads but couldn't say if it was internal or external only that if it was internal it would be in Cardiff. (90 miles away) 

I have seen on here that most if not all at that stage have had or are having all three so am trying to prepare for that... 

what I have now freaked myself out about is that maybe they won't give it to me because I'm too far away and that will mean my chances of getting better being compromised if that makes sense?? 

honestly I am driving myself crackers worrying about all sorts of things because I am an organise/control freak and I hate not being able to draft up my own treatment plan haha!!! 

anyone that could ease my mind that I won't suffer because I don't live in England would be so gratefully received 

 

xxx

26/11/20 colposcopy + biopsy. Mass found but no further info given.

2/12/20 - diagnosed with squamous cell CC 

4/12/20 MRI scan 

10/12/20 appt with consultant - stage 2b - 3cm tumour with no apparent lymph node involvement 

19/12 - pet scan 

30/12 Pet Scan appears to be clear. internal examination doesn't show any different

 4/1 curve ball - doctor adv it's possible it's only 1b1 offered choice of RH or chemo/rads adv likely have to have chemo/rads after RH anyway so decided on chemo/rads

6/1 oncologist 1st appointment 

14/1 radiotherapy planning scan

 

Angela_84

Hi Rubyshoes,

Sorry i do not live in Wales but just wanted to say that may be the nearest hospital that offers it and if thats what is in your treatment plan then i am sure it will not be a problem.

I was diagnosed 2b and my chemo and Radio was at a hospital 40 miles away. I then found out that due to covid they had temporarily stopped providing bracy there. I got sent to a hospital over 100 miles away from my home for 4 days to have the bracy.

Trust that they will do whatever is best for you. X

Jan 2019 - Normal smear

Sept 2019 - Birth of daughter via c-section

Dec 2019 -Abnormal bleeding. Told by doctors it was my hormones after giving birth!

Jan-May2020 -continually dismissed by doctors and consultants over phone (due to covid)

June 2020 - Finally scanned after a&e visit

June 2020 - Diagnosed stage 2b Squamous 

July -Aug 2020 - 25 Radiotherapy, 5 Cistiplan and 4 Bracy

Nov 2020 - 3 month scan - inconclusive

Feb 2021 - 6 month scan - NED 

Rubyshoes

Thanks Angela And I hope you are keeping well :)

I think at this point I am worrying for the sake of worrying 🤦🏼‍♀️ I guess I just have to wait for my treatment plan and hopefully I can focus on that then! 

I hope you don't mind me asking but how are you feeling/doing after treatment?

take care xx

 

 

 

26/11/20 colposcopy + biopsy. Mass found but no further info given.

2/12/20 - diagnosed with squamous cell CC 

4/12/20 MRI scan 

10/12/20 appt with consultant - stage 2b - 3cm tumour with no apparent lymph node involvement 

19/12 - pet scan 

30/12 Pet Scan appears to be clear. internal examination doesn't show any different

 4/1 curve ball - doctor adv it's possible it's only 1b1 offered choice of RH or chemo/rads adv likely have to have chemo/rads after RH anyway so decided on chemo/rads

6/1 oncologist 1st appointment 

14/1 radiotherapy planning scan

 

Angela_84

The waiting is always awful but once you have a plan i place you can plan and prepare yourself abit more. I have always found the care team and consultants so helpful and nothing is ever a silly question so if anything worries you just ask them.

I finished my treatment in August and physically I am feeling much stronger now thank you. It is rough going but managable and i remember feeling like the 5 weeks would go so slow but actually flew by for me. I remember thinking 'i am never going to feel well again' but it soon passed.

I struggle emotionally and finding it tough having to go through menopause at 36 so if there are any services you can access then make sure you do so if you feel you need to talk to someone.

This forum is great and nothing is ever a stupid question

take care. xx

Jan 2019 - Normal smear

Sept 2019 - Birth of daughter via c-section

Dec 2019 -Abnormal bleeding. Told by doctors it was my hormones after giving birth!

Jan-May2020 -continually dismissed by doctors and consultants over phone (due to covid)

June 2020 - Finally scanned after a&e visit

June 2020 - Diagnosed stage 2b Squamous 

July -Aug 2020 - 25 Radiotherapy, 5 Cistiplan and 4 Bracy

Nov 2020 - 3 month scan - inconclusive

Feb 2021 - 6 month scan - NED 

NewportNellie

Hi Rubyshoes,

I had my chemorads and brachytherapy at Velindre in Cardiff, and like you was 2b. During my treatment there were many ladies from all over South Wales, so please do not worry, they will look after you well. For brachytherapy I had to arrive at the hospital the evening before treatment commenced, the brachytherapy girls ( usually 2 or 3) have a ward to themselves. The staff are brilliant they explain everything to you, they are really supportive and kind and do their upmost to make you feel relaxed. Take some books or magazines as well as your sleepwear as there can be some hanging around before your treatment starts. Take some treats, wash bag etc like any hospital stay. The way it worked when I had my treatment in 2019 was a trip to theatre to insert the rods then you wake up at the end of a quick mri. Then it's back to the ward where you have to lie still for a few hours when the science bods work out your exact brachytherapy dose. To help you through this bit TVs are positioned so you can pass the time and the nurses are with you at all times. Once the science is done then you are off to the brachytherapy room where they attach the rods to the machine and off it goes, you don't feel anything, the hardest thing is listening to radio 2 through this bit! Then straight after the brachytherapy you will be back to sleep for a short while when the rods are removed. Finally it's back to the ward for a cup of tea and a sandwich and you will be on your way home late afternoon. This process takes place 3 times. It really wasn't that bad, it is just the final hurdle to getting better.

 

Besty

Hi Rubyshoes,

I am based in Wales but only about 30 minutes drive to Velindre. I haven't had brachytherapy myself, but I know that the hospital takes in patients from all over Wales. You are at no treatment disadvantage living 90 miles away.

My aunt is currently having treatment there and wouldn't go anywhere else. 

Good luck 

X

2007 Abnormal cells removed by LLETZ

Smears on a yearly basis for 5 years. All appeared normal.

Nov 2018 smear noted HPV no abnormal cells

Nov 2019 smear noted HPV no abnormal cells

January 2020 went to the doctor with abnormal bleeding

April 2020 diagnosed with adenocarcinoma 1B1

June 2020 Radical hysterectomy

September 2020 simple ovarian cyst noted

December 2020 complex cyst noted

January 2020 surgery to remove both ovaries

Results cancer was in both ovaries.

Rubyshoes

Hi Betsy

thanks for replying, I have my brachy booked starting  4th March in Velindre as well so that is very reassuring:) 

 

hope both you and your mum are ok xxx

 

hope your mum 

26/11/20 colposcopy + biopsy. Mass found but no further info given.

2/12/20 - diagnosed with squamous cell CC 

4/12/20 MRI scan 

10/12/20 appt with consultant - stage 2b - 3cm tumour with no apparent lymph node involvement 

19/12 - pet scan 

30/12 Pet Scan appears to be clear. internal examination doesn't show any different

 4/1 curve ball - doctor adv it's possible it's only 1b1 offered choice of RH or chemo/rads adv likely have to have chemo/rads after RH anyway so decided on chemo/rads

6/1 oncologist 1st appointment 

14/1 radiotherapy planning scan

 

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