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Change to treatment plan - taxol :(

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Base2019
Change to treatment plan - taxol :(

Hi guys 

just wondering if anyone can offer any advice. I had my

PET scan this week. They said the results showed no sign of cancer in liver or lungs but that is did show that it is quite high up at the back of my stomach near paraortic lymnode. 

she said that they need to try and get at this quickly to stop the spread so have said I will need extra chemo of taxol before I can start my original treatment plan we discussed. Said that will need one round of taxol next wed- wait three weeks and have another round of taxol. Then wait 10 days and then start the radiotherapy etc. I think the weekly chemo of cispatlon would then be the case during the radio. 

just wondered if this has happened anyone else? I'm absolutely petrified of taxol :( and I know it sounds silly but the hair loss is just another thing to deal

with now which is making me really sad :( 

 

sorry if I sound really negative lol I was so positive and looking forward to starting the radiotherapy next week as still bleeding so this just feels like another set back. 

xxxxxx

Rissag

So sorry base, I know I've seen people on here that have had to do this as well and hope they respond.if you're still bleeding try taking a iron supplement so you don't become too fatigue . I know your treatment wasn't what you were expecting or hoped for but it's good they're being thorough and not taking any chances.do not apologize for thinking you sound negative, u don't at all, you must be going through a lot right now. If you need someone to talk to or need to vent feel free to.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Philleepa

Hi. I'm sorry that your treatment plan has had to change- must be so frustrating. There are ladies that this has happened to, their stories are in the private forum. I'm sure you will be accepted for this group. It's usually for ladies who are stage 4 but as your treatment is similar to what they have been through, you will get some great advice there x

Base2019

Thank you ladies - just feel so disappointed now because I had just got my head round everything else and now this has changed and it feels like a really big change :( xxxx

emmz13

Hey lovely,

I am so sorry that your plan has changed but try to view it as giving you the best possible chance of cure and they want to make sure that they blast all the cancer away. It's always difficult to get your head around one thing then have it all to change. No matter what you've got this and I'm sorry I can't help as I didn't have this treatment. I really hope that you find some ladies who have experienced this and that you feel less anxious. 
massive hugs and loads of love xx 

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

Base2019

Thank you so much for your lovely message emmz13, I really appreciate it :) In a strange way I'm excited to get started on treatment so I can feel like I am on my way to getting rid of this lol have a lovely weekend hun xxxx

emmz13

I remember feeling that way to lol 

thank you sweetheart, I hope you have a lovely weekend too. 
much love, emma xx 

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

Daisy33

Hello Base,

I also had the chemo cocktail (carboplatin and taxol) prior to chemorads, for the same reason as you -  mine had started to spread and they wanted to slow it down. 

I actually found the cocktail part of the treatment a little easier than the chemorads, but I need to stress that everyone handles the treatments differently. I had some side effects from the cocktail (loss of appetite, metallic taste in mouth, fatigue and muscle pain) but these only lasted a few days then I had the remainder of the 3 weeks to recover.  The hardest part for me was the hair loss - I just couldn't accept it or be okay with it, while at the same time I greatly admired the women around me who just owned it!  

Many women fly through the chemorads without any problems, but I wasn't one of them.  I felt nauseous from day one and didn't feel any better throughout the following 6 weeks.  I don't say that to scare you, but rather to let you know that if you are one of the unfortunate ones like me, you can get through it.  Once the treatment was over, I started feeling better and stronger within a week.  My doctor felt that it may have been a little harder on me because my body had already taken a hit with the cocktail, but I can also say that my tumor, which started to at 10 cm long, was visibly gone by the 4th week of the chemorads.  My initial PET scan done at diagnosis looked like a "Christmas tree", and my PET scan done 3 months after treatment finished was completely clear.

 

As scary as it all was, I also felt a sense of relief once treatment started - I think a lot of ladies do. If I could give you any advice, let people help you.  Rest when you are tired - even if that means being a couch potato every day.  If the household chores don't get done, too bad.  Try to get a bit of exercise and remember to stay hydrated.  And communicate with your team about any side effects that you have - they really are there to help you as much as they can. 

 

Best of luck to you. You can do this!

Base2019

Thank you so much for your message Daisy33. It's nice to hear from someone with a similar treatment plan. I was devastated when they changed it :( I know they are doing it with my best interests in mind but I just can't get passed the hair thing :( my appointment with chemo nurse is tomorrow at 9 and chemo is on wed morning at 8am, getting nervous now xxxx

emmz13

Good luck with your first chemo lovely, hope it all goes well, I'll be thinking of you xx 

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

More Information

Treatments for cervical cancer