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First chemo with rads. Exhausted and Nauseous.

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StacyJane
First chemo with rads. Exhausted and Nauseous.

I have had 5 rads and 1 chemo (monday) . i did great the first day of chemo. Just SUPER tired. 2nd and 3rd day nausea. Taking alternating meds for it. Can rotate every 4 hours but have just taken 1 yesterday and 1 today.  I am also taking olanzapine (zyprexa) day of chemo and 3 following days. Didn't think it would make me this tired. Body feels heavy and swollen. Needing a 3 hour nap in the afternoon. Always after rads. Super dry mouth but biotene helps. Also woke up in the middle of the night with hands asleep and they felt like crumpled news paper?  Neuropathy? So soon. Just thought it wouldn't hit me so hard so fast. I am healthy, active, and usually full of energy. Still doing some yoga (quick 11 minute wake up). Just wondering how everyone gets past the exhaustion. 

5 hours of chemo monday march 23rd

Quick rads every week day started march 19th (had 5th treatment today)

 

newly diagnosed cc 2/11/2020

2/11  pap suspected cancer

Same day biopsy certain cc

2/17 positive for cc 

2/21 PET scan for staging

2/26 PET results stage 3C with lymph node 

3/19 first radiation therapy

First chemo scheduled 3/23

Harvitt

Hi Stacey Jane, 

Well done! I'm not starting until 9th April but am thinking about you. I am also 3c following the same treatment path as you. Hope you feel better soon. 

Keeley

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.
StacyJane

Glad to hear you have a start date. It seems we are bound on this journey together. Birds of a feather. Hope all goes well for you. 

Keep in touch. 

newly diagnosed cc 2/11/2020

2/11  pap suspected cancer

Same day biopsy certain cc

2/17 positive for cc 

2/21 PET scan for staging

2/26 PET results stage 3C with lymph node 

3/19 first radiation therapy

First chemo scheduled 3/23

StacyJane

Hi Keeley- so glad to hear you are about to start. Hoping for the best for you. I really think i am doing pretty good. I still have an appetite. For the most part. Super tired in the afternoons. Feel great by the weekend. Are you going to be able to take off work? I am thankful i am on disability. With the flu running rampant and covid craziness i couldn't be at my job. I work in wine sales for an upscale grocery store. CRAZY!!  I don't get notifications about replies on here. I will see if i can fix that. But please feel free to send a direct message any time. Good luck this week. Oh and put some hard candies in your purse! Lol 

newly diagnosed cc 2/11/2020

2/11  pap suspected cancer

Same day biopsy certain cc

2/17 positive for cc 

2/21 PET scan for staging

2/26 PET results stage 3C with lymph node 

3/19 first radiation therapy

First chemo scheduled 3/23

Rissag

Great job Stacy, keep up the good work! Maybe your second chemo will be a bit easier on you.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
StacyJane

I hope so too. Is that a possibility? 

newly diagnosed cc 2/11/2020

2/11  pap suspected cancer

Same day biopsy certain cc

2/17 positive for cc 

2/21 PET scan for staging

2/26 PET results stage 3C with lymph node 

3/19 first radiation therapy

First chemo scheduled 3/23

xxHHxx

Hi,

Like you I'm you I'm healthy and active and can't sit still and the fatigue is going to be the hardest part. 

But the body rapairs the best during sleep. 

I'm also on the same path as you, they are looking to start me April 6th.

Hope your 2nd chemo is better. 

 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Philleepa

Hi. It might be worth speaking to your nurse about tweaking your medication. Maybe a different dose will help with the nausea. 

With regards the tiredness, I think you just have to go with it. They say that sleep helps you heal - don't know if it's true but it sounds feasible- when you're asleep you are not putting stress on any of your body. Tbh,  in the current climate, there's not much to do anyway! I used to sleep most of the day on Sunday- my chemo was Wednesday- the nurse said it'll be the steroids wearing off. Make sure you are eating and drinking well x

I don't know about the feeling in your hands but, again, worth speaking to your nurse. It was my feet that used to hurt but I was never given anything for it.

I did a countdown for my treatment- you sound like you're 20% through - massive chunk out of the way xxxx

 

StacyJane

1/3 done! I keep meaning to print a calendar. Maybe tomorrow! Thank you. Reading your journals has been great. Thank you for sharing. 

newly diagnosed cc 2/11/2020

2/11  pap suspected cancer

Same day biopsy certain cc

2/17 positive for cc 

2/21 PET scan for staging

2/26 PET results stage 3C with lymph node 

3/19 first radiation therapy

First chemo scheduled 3/23

emmz13

Well done lovely!
I completely agree with Philleepa you should discuss your chemo meds they are brilliant at sorting out what works best for you, as for the tiredness just listen to your body and give it what it needs. 
try to drink lots and lots, on chemo days I would drink insane amounts. 
I already had tinnitus and the chemo made it worse but towards the end of the weekend it slowly improved and then got worse again, slowly after treatment it went back to its normal level so your pins and needles may be the same. 
It's deffo worth talking to your consultant about, I'm assuming you are on the highest dose of cisplatin and he may adjust your dose. 
1 week down woohoo!!! Stay strong much love xxx 

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

StacyJane

Oh my so many fluids on chemo day. I have to get up about 5 times during treatment. 

But i don't stop, just keep drinking. 

newly diagnosed cc 2/11/2020

2/11  pap suspected cancer

Same day biopsy certain cc

2/17 positive for cc 

2/21 PET scan for staging

2/26 PET results stage 3C with lymph node 

3/19 first radiation therapy

First chemo scheduled 3/23

Memagh

Hi Stacyjane,

Completly agree with the other girls. Definitely let your consultant know, there is lots they can do. I met a lovely lady when I was having treatment who was having some neuropathy type symptoms after her 2nd chemo. They lowered the dose slightly, put the chemo in 1000mls of saline instead of 500mls and delivered it over two hours instead of one hour. I don't recognise the medication you are on. I know a lot of us ladies were on a combination of Dexamethasone (steroid/anti-sickness) and Ondansetron (anti-sickness). I found these worked really well for me. Also, like Phileepa, I had chemo on Wednesdays and hit a brick wall by Sunday when the steroids wore off. I started to look forward to chemo day so I could get back on the steroids foot-in-mouth

I hope your second chemo is better. 

X Maria

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.

10th February 2020

MRI and Pet-CT clear. NED

3 monthly scans

 

StacyJane

Maria- firts off congratulations. 

Also thank you. The ondansetron has helped. I was trying not to over medicate. But that is why they give us the pills right. To take them. To stop the nausea. Rougher this week but i think it has to do with the 12 rads. And the chemo. And sedentary (used to go go go) feeling great today. 

newly diagnosed cc 2/11/2020

2/11  pap suspected cancer

Same day biopsy certain cc

2/17 positive for cc 

2/21 PET scan for staging

2/26 PET results stage 3C with lymph node 

3/19 first radiation therapy

First chemo scheduled 3/23

Rissag

Maria, i was on the same meds as you, and felt they worked pretty well too. My chemo day was Wednesday as well, I think my worse day was Saturday, I was always stuck to the couch on that day and would get bad night sweats on Friday and Saturday.

stacy, it might be worth talking to your doctor about changing meds, if it feels to rough on you.

also I would recommend 400 mg of magnesium, my doctor prescribed it for me after my second chemo,because I was getting pretty bad ringing in the ears. He said it helps with nerves and muscles,and luckily it worked and after treatment it went away , I'll get a baby ring in my ear rarely but nothing like it was before I got on magnesium. I'm still on it and my doctor said I should stay on it for at least a year. Maybe that might help with the numbness too, wouldn't hurt to try.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Memagh

Good to hear from you Rissag. Hope all is well in this crazy old world of ours. X

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.

10th February 2020

MRI and Pet-CT clear. NED

3 monthly scans

 

StacyJane

Thanks i will ask her about the magnesium.

newly diagnosed cc 2/11/2020

2/11  pap suspected cancer

Same day biopsy certain cc

2/17 positive for cc 

2/21 PET scan for staging

2/26 PET results stage 3C with lymph node 

3/19 first radiation therapy

First chemo scheduled 3/23

StacyJane

Week 2 done. Chemo still 4.5 hours long. Felt tired and nauseous until today. Talked to my doc and they said i need to take the antinausea meds as needed. They usually kick in pretty quick. Changing my diet too. Hoping it will help. More bland foods. Cooked veggies. Feeling great today. Really upset that because of covid i have to go to treatments all alone now. No one can even stay in the waiting room with me. Last time it was 3.5 hours waiting and 4.5 chemo. Long day. 

Been quarantined for 21 days. Definately making going through this more challenging. I just hope they don't stop treatments. I am officially 1/3 of the way done as of today!!! Feels like something to celebrate. Glad to have 2 days off. 

Thanl you all for everything. It helps me so much. The supports groups at my oncologist have all been canceled due to covid. What a crazy time. 

 

newly diagnosed cc 2/11/2020

2/11  pap suspected cancer

Same day biopsy certain cc

2/17 positive for cc 

2/21 PET scan for staging

2/26 PET results stage 3C with lymph node 

3/19 first radiation therapy

First chemo scheduled 3/23

StacyJane

Week 2 done. Chemo still 4.5 hours long (thought it was going to be 1.5 hours from here on out). 12 rads done. Felt tired and nauseous until today. Talked to my doc and they said i need to take the antinausea meds as needed. They usually kick in pretty quick. Changing my diet too. Hoping it will help. More bland foods. Cooked veggies. Feeling great today. Really upset that because of covid i have to go to treatments all alone now. No one can even stay in the waiting room with me. Last time it was 3.5 hours waiting and 4.5 chemo. Long day. 

Been quarantined for 21 days. Definately making going through this more challenging. I just hope they don't stop treatments. I am officially 1/3 of the way done as of today!!! Feels like something to celebrate. Glad to have 2 days off. 

Thanl you all for everything. It helps me so much. The supports groups at my oncologist have all been canceled due to covid. What a crazy time. 

 

newly diagnosed cc 2/11/2020

2/11  pap suspected cancer

Same day biopsy certain cc

2/17 positive for cc 

2/21 PET scan for staging

2/26 PET results stage 3C with lymph node 

3/19 first radiation therapy

First chemo scheduled 3/23

StacyJane

Oh yeah and crazy dreams!!!!! Talking to my husband about some tests i have to take but i can't remember what it is called? And i am sitting up, awake. No idea later what i was talking about. But it seems so real at the time. 

 

newly diagnosed cc 2/11/2020

2/11  pap suspected cancer

Same day biopsy certain cc

2/17 positive for cc 

2/21 PET scan for staging

2/26 PET results stage 3C with lymph node 

3/19 first radiation therapy

First chemo scheduled 3/23

Rissag

Great to hear your feeling better Stacy, so sorry you have to go to treatments alone , I can't imagine what you ladies who are going through treatment right now must be feeling, but we are here for you if you need any help or have questions. I don't remember having any crazy dreams, but I had horrible brain fog I couldn't remember much. I would walk into a room and forget what I went in there for.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Memagh

1/3 of the way through. That is something to celebrate wink

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.

10th February 2020

MRI and Pet-CT clear. NED

3 monthly scans

 

StacyJane

I forget things all the time already lol. We've been joking i had chemo brain before I started chemo. Thank you ladies for all the support. My family is amazing but i can tell it makes them unconfortable when i get upset. Of delve into too much detail. 

I am having a rough day mentally but that is probably my period. Which it seems cruel that i am still having one!!! Although very light. Just feeling angry, sad, tired. But also ready to get up tomorrow and fight this. I get anxious Sunday's before chemo. Even though it doesn't matter. Just gotta buck up and go take care of this. Both of my arms are still bruised and sore from 2 previous weeks of chemo. Not sure where they will stick me tomorrow but i am guessing it will not be pleasant. Do they usually do a port? I am not sure why they chose not to on me. 

Everything smells too strong now. The hand sanitizer!!!! Omg i can't take that smell anymore. Anything sweet makes me nauseous. Guess i have a weak stomach. The anti nausea meds work i just need to keep taking them regularly instead of waiting until i need them. Fresh mint in my water helped. 

Well i better get some rest. Chemo days are long days. 

Thanks again. 

newly diagnosed cc 2/11/2020

2/11  pap suspected cancer

Same day biopsy certain cc

2/17 positive for cc 

2/21 PET scan for staging

2/26 PET results stage 3C with lymph node 

3/19 first radiation therapy

First chemo scheduled 3/23

emmz13

Well done!!! You're getting through it!! I felt like a pin cushion by the end! No port for me but by the end my veins didn't want to cooperate they probably knew what was coming Lol 

I found that I wanted to eat lots of spicy food and salty food but the foods I normally loved all just tasted wrong, like cheese it was vile. My consultant said to just eat whatever I wanted and not worry too much about it not being healthy.  

Just keep taking it day by day, take whatever meds you need to keep you feeling somewhat normal and be as kind to yourself as you can. I hit a dark place mentally about 3 weeks in and it was a tough time. I think if i had given myself better headspace and not just focused on my physical health I would have been much easier to deal with. 
The calm website is offering free music, stories and meditations at the moment. If you feel a bit anxious then it may help. 
stay strong and focus on kicking cancers butt, you are amazing! Massive virtual hugs lovely, and soon you'll be half way through!! 
much love xxx 

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

StacyJane

Hahaha. Yes salty foods! Everything salty. I never use salt and now it is all i want. And fresh mint in my water was sooo good. Thank you. Made it through 3rd chemo yesterday! Woohoo. 

newly diagnosed cc 2/11/2020

2/11  pap suspected cancer

Same day biopsy certain cc

2/17 positive for cc 

2/21 PET scan for staging

2/26 PET results stage 3C with lymph node 

3/19 first radiation therapy

First chemo scheduled 3/23

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