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How to prepare nutritionally

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Steg
How to prepare nutritionally

Hi Ladies,

Although my MRI and the sudden heavy dark bleeding suggests the cc has returned after 8 years free, I won’t get a conclusive result until surgery on 24th Jan- then I will at least know. I know you all know how terrible this waiting is.

In the meantime I am finding it difficult to eat (and that’s really not like me), over the last two weeks I seem to have become obsessed with putting only what I feel is pure into my body- broccoli and spinage in the nutribullet for breakfast, banana at lunch, then a small amount of brown rice and raw veg at diner- I read somewhere that fasting was good. I am so worried that eating anything dairy, wheat, sugar will feed the cancer, I know this is silly, but has anybody else had similar issues? 

How is the best way to prepare nutritionally for treatment. I underwent radiotherapy, chemotherapy and bracci during treatment in 2010, and ate well throughout probably driven by the steroids. I just want to give myself the best possible chance to compliment whatever treatment is available to me.

Any advice ladies?

x

Lisa

Lisa

Stage 2b 2010

Final all clear 2016

 

CD84

Hi Lisa

There is a lot of advice on the internet regarding cancer and diet. Have you spoken to your oncologist about it? I only ask because you will get so many different opinions on what to do it can get confusing. I was always told a healthy diet...the same as the nhs recommends for all.

 It doesn’t sound like you are eating enough and you need to be strong for treatment. I know they don’t like you to lose weight during chemo as it alters the amount of drug you get. 

I hope you can manage to eat more and that you get some sound advice.

Cara xxx

Steg

Thank you Cara

x

Lisa

Stage 2b 2010

Final all clear 2016

 

Petesdragon
Petesdragon's picture

Lisa, you could end up with very big surgery if this is a recurrence. If you do, you will lose a lot of weight.It's very important that you have enough stores to see you through. Not just in terms of energy but adequate stores of iron and vitamin B12. That diet is too low in calories, protein and vitamin B12 and probably lots of other micronutrients as well. 

Having a good balanced diet is all you need. Most of the stuff on the internet about sugar feeding cancer etc is very dubious. By all means dump refined sugars that spike your blood sugar just for your general health but you really need complex carbohydrates right.now. Unless you have coeliac disease giving up wheat is unlikely to help you one iota. If you enjoy dairy go for it as plenty of quality protein but if you don't there are plenty of plant based sources.

Try not to get sucked into quackery, we all look for miracle stuff. There are lots of charlatans out there trying to flog expensive honey etc but there is no real independent evidence that they work. 

Definitely get as fit as you can though. That will be great whatever is on the table for you. It will take your mind off stuff during this horrible wait.

Karen 

  • Karen x

Stage 3 Glassy cell adenocarcinoma diagnosed in 1997 following history of negative smear tests.

Treated with Wertheim's hysterectomy, chemo, and radiotherapy.

October 2017- new squamous cell tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 2018 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. Two down and two to go!

June 2018. Discharged from the plastic surgeon, Three down and one to go!  CT scan shows two new 3  mm pulmonary nodules. Rescan in 3 months. 

 

Steg

Thanks for this Karen.

I’m going to see friends today, I think that will help. We moved about a year ago and feeling alone does not help I think.

x

Lisa

Stage 2b 2010

Final all clear 2016

 

Philleepa

I went on a bit of a health kick when I was diagnosed. To this day (three years later) I still can't drink normal tea.

I think you should be building yourself up atm. Protein, fibre and vitamin c. You want a strong immune system to ensure that if you do need treatment your body is ready for it x

Steg

Thank you ladies,

It is so good to have your support, I have lovely well meaning friends, but I can’t express to them how dreadful I feel at present and I am not fun to be around- and that’s the worse, as can’t imagine ever feeling positive again

x

Lisa

Stage 2b 2010

Final all clear 2016

 

Petesdragon
Petesdragon's picture

You will definitely be positive again!

  • Karen x

Stage 3 Glassy cell adenocarcinoma diagnosed in 1997 following history of negative smear tests.

Treated with Wertheim's hysterectomy, chemo, and radiotherapy.

October 2017- new squamous cell tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 2018 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. Two down and two to go!

June 2018. Discharged from the plastic surgeon, Three down and one to go!  CT scan shows two new 3  mm pulmonary nodules. Rescan in 3 months. 

 

Pogonia

Hi Steg, 

I have also been going a little nuts nutritionally after receiving my diagnosis, and have been focusing on ‘superfoods’ and things that may help physical symptoms. I’ve also cut out alcohol (except for the occasional g&t) and have a goal of gaining 10 lbs before treatment begins. 

Ive been dappling in herbalism since my teens, so I had a decent basis to work with while making this list, but as always, check with your docs! My own is probably going to laugh at the stack of herb info sheets I have for them to approve/double check. 

Without further adieu, I hope this helps: 

1. Leafy greens, wilted- dietary fibre as my cramping with procedures seems to affect my bowel. Bitter greens have antifungal properties which helps with yeast infections if you get prescribed antibiotics. 

2. Cashews, high calorie, clean protein, natural antidepressant.

3. Mushrooms, shiitake, turkey tail, and chaga. Shiitake in stir fries, the other two are wild harvested by me- I make them into tinctures and teas, and mix into hot cocoa. Host Defense is most reputable brand if purchasing. 

4. Turmeric, natural anti inflammatory and immune stimulant, good for joint pain, supposedly can cause cancer cells to self destruct. Ginger is closely related and helps with nausea. 

5. Herbal teas: I’ve chosen the following herbs for low impact and few-no drug interactions, though check with doc first if you use during treatment. I try to drink at least 4 cups of any of these/day.

raspberry leaf: women’s health tonic. When I was a kid, I heard a story of an indigenous herbalist treating terminal ovarian cancer with it, and it stuck with me. The literature on the herb mostly focuses on its ability to regulate cycle and tone muscle, and it can be helpful for menopause symptoms. 

Red Clover: similar to the above as a feminine herb. Also an effective full body tonic- many herbalists recommend women always drink a cup of this to start the day.

Nettle: high iron herb for that anemic disposition I’m noticing many of us share. 

Dandelion root: some anti-cancer properties and a way to wean me off the caffeine’s e when my anxiety is through the roof. Supports healthy liver function/detoxifies. I’m skeptical if this being safe during chemo as it may flush too much. Planning to shelf this one until after treatment if chemo needed. 

Astragalus: supports white blood cell production, boosting immunity. This is one of the few herbs with literature on use during chemotherapy. I currently add powder as a supplement to boost smoothies or hot cocoa, but will switch to tincture when I have to stop taking my current daily tincture. 

 

Hope this helps! Cancer sucks, but at least we can suck down some yummy food while fighting it. 

 

Charlene87

While I understand where you are coming from every single thing you eat feeds every cell in your body even the cancer cells so I would eat what you want to eat, I ate a lot of rubbish through my treatment and I’m doing ok haha ;) 

Petesdragon
Petesdragon's picture

You put it really well Charlene!! I think there is an assumption here that Steg is up for chemotherapy but it's more likely to be a specific surgery and it's building up iron stores and B12  for that that is the most important thing.  There is very little scientific evidence for superfoods working alone. What does work is a good balanced diet with lots of those elements that have been suggested incorporated. So cut out empty calories and eat healthy foods rich in micronutrients. Some of these things suggested like Turkey tail, turmeric etc may well be of benefit but wait until you are finished with prescribed meds first. 

Karen 

 

  • Karen x

Stage 3 Glassy cell adenocarcinoma diagnosed in 1997 following history of negative smear tests.

Treated with Wertheim's hysterectomy, chemo, and radiotherapy.

October 2017- new squamous cell tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 2018 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. Two down and two to go!

June 2018. Discharged from the plastic surgeon, Three down and one to go!  CT scan shows two new 3  mm pulmonary nodules. Rescan in 3 months. 

 

Charlene87

I’m sure looking back it was a balanced diet but when I had steroids for my chemotherapy for a few days I craved absolute rubbish. I spoke to my nurse about it and she said eat what you want to eat Charlene, my brain was not capable of thinking much further than what do I feel like :) and my bloods always recovered ok so couldn’t be too bad. I see what you mean though about vitamins that can be depleated x

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