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Info on endocervical adenocarcinoma

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MissDebsy
Info on endocervical adenocarcinoma

Has anyone else been diagnosed with endocervical adenocarcinoma, bilateral tumours (some in between) but no evidence of tumour on cervix? 

My doctor said yesterday that my cancer is “odd” and it has thrown me a little. I can’t find much about this online. 

Clear smears, only discovered via a DVT investigation (caused by one of the tumours).

Petesdragon
Petesdragon's picture

It may be worth asking for more specific histology. I had glassy cell adenocarcinoma which is extremely rare but other types exist. They can be HPV negative too. 

What treatment are they planning?

Good luck with it all. 

Karen x

 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

Lotty9000

Hi

i agree with Karen, if you can get the histology/pathology report it should give you more information. I had Villoglandular adenocarcinoma which is apparently quite unusual. 

Charlotte

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma and high grade CGIN;

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

29/8/19 Total Laproscopic hysterectomy with ovarian conservation.

26/9/19 pathology confirms NED:-)

10/3/20 1st follow up including vault smear. Biopsy of presumed granulation tissue.....Confirmed negative :)

MissDebsy

Thank you both for the information. I am in the UK- can I just ask for the histology report and the doctor will give me it?

I am stage 3C1 and treatment plan is 6 carbo/taxol weekly sessions followed by 5 weeks of chemo rads. No brachytherapy is available as there is no distinguishable tumour on my cervix. 

Petesdragon
Petesdragon's picture

You can just ask them about the histology and they will tell you I am sure. They may erroneously assume that people aren't interested.  

I never had brachy as I had already had a hysterectomy. It's really about giving a targeted dose straight to the spot so that they can reduce the external beam which is a bit more of a blanket approach.  You can be cured without it.

I wish you the very best for your treatment,

Karen x

 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

More Information

Treatments for cervical cancer