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Looking for help please!

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angela1980
Looking for help please!

I hope no one is offended by this post. 

I'm going to start by saying that I weight 507lbs. I recently had a smear with an asc-h result. I had not had a pap smear in about 15 years because of fear of my weight. I am having a LEEP done on the 17th. I am terrified out of my mind it will turn up cancer. I'm scared because of my weight they would not be able to do a hysterectomy on me and my cancer will grow and ill die. I am losing weight. Lost 100lbs so far. Has anyone been through this at my weight or knows anyone who has? I have not been able to find anything online. My Dr office refuse to answer questions about a hysterectomy because we don't have even the LEEP done. If anyone could help thank you.

ASC-H pap results

LEEP to be performed on September 17, 2020

September 20, 2020 LEEP done. Dr said I didn't have cancer. Waiting for results.

LEEP results are CIN3 all margins clear. No cancer. ECC was negative for SIL or cancer.

I go back for another smear in 6 months.

I have not had a pap in about 15 years.

Jazza
Jazza's picture

Hi

It's best to take things a step at a time, cross your bridges when you come to them etc.  I'm sorry you are feeling so anxious;  I've certainly had a lot of anxiety since my cc diagnosis back in January 2017.  My way of dealing with it has been to keep busy so as to keep my mind in the here and now - a spot of cleaning has helped get me through times when I felt at a loss.  I don't think your Dr is being unreasonable in not discussing a hysterectomy as it's not relevant in your current situation.  I would suggest  focussing on is all the things  you can do now to get as fit and healthy as possible to give yourself the best chance of getting through this with a good outcome; it's awesome that you've lost 100lbs - wow!  Statistically, the most likely outcome is that your LEEP will clear any abnormal cervical cells with no further problems.

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
Dee78

Hi,

They won't discuss any form of treatment yet in case it's not required, take it one step at at time.  

I do understand your fear though as I am pretty overweight and thought the same.  When coming up with my treatment plan my surgeon was very nervous about doing a radical hysterectomy due to my weight and opted for just a full hysterectomy instead.  During the operation he was pleasantly surprised that I didn't actually carry a lot of weight around my belly, it's all on my bum and legs so managed to actually do the radical hysterectomy after all and he also removed 22 lymph nodes with no issues. None of this was discussed though until I had my diagnosis, staging etc.  Think what I am trying to say is that you need to take one step at a time, your results may all be fine, but if you do need treatment they will work out the best treatment plan for you, they won't just not treat you cause of your weight, there are always options and everyone's journey is is different for lots of different reasons.  Hope this helps a little at least x  

1st April 2019 - colposcopy and lletz

13 May 2019 - told cc

29 May 2019 - CT and MRI

12 June 2019 - staged 1a2, need another lletz to confirm treatment

24 June 2019 - 2nd LLETZ, awaiting confirmation of treatment.  Restaged 1b1.

3 Sept 2019 - laparoscopic modified radical hysterectomy(retained1 ovary)

19 Sept 2019 - pathology confirmed no lymph node involvement and NED, no further treatment required.  3 month follow ups...

7th Aug 2020 - vault smear and biopsy of granulation tissue done.

25 Aug 2020 - both smear and granulation tissue results clear

Shewolf

Well done and good luck with your weight loss. 
Keep up the good work as being overweight and cancer is strongly linked.
I know it's not easy losing weight. 
Let's hope your return smear in a few months time will give you positive news as well. 

Good luck. 

1/16Vaginal bleeding

12/16Stage 2b

Jan-Mar 2017 35 EBR 5 x Cisplatin

6/17 All clear

12/17 2.5cm tumour,incurable

3/18 7 x carbo/Taxol/Avastin

8/18 MRI CT-PET cancer free.3 Carbo/Avastin 11/18 remission

4/19 15mm endocervix recurrence

7/19 -8/19 5 x SABRE LINAC

11/19 MRI- treated area stable,but tumour growth at uterine fundus and full thickness of myometrium.

Surgical opinion 4/12/19 laparoscopy cancelled 27/1/2020 CT PET tumour 12.5cm,no mets possible Pagets disease. Surgery ruled out 28/1/2020 Biopsies taken

2/2020 started 6 cycles of Doxirubicin and carboplatin

7/20 tumour active again. Platinum resistant. No further treatment availabile. 

More Information

Treatments for cervical cancer