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So I was diagnosed finally after 5 years of being told I "just had bad periods" (welcome to canadian healthcare ha ha ha ha)
In the end it was stage 2b and the tumor was 10 centimetes by 11 centimeteres and hemmorgaging constantly so I've had over 60 blood transfusions. (yep they left me like that LOL)
Anyhow finally got a new doctor had a CT scan (cannot have MRI due to claustrophobia) and it was said it was just in the cervix and that I would have 25 radiation sessions adn then 3 HDR brachy and chemo. I basicaly refused chemo tried it once but it made my hair thin so nope no way ha ha, doctor thinks my response to externatial radiation is "fantastic" I only had 60mg of csplatin once I had no side effects from it other than the hair thing, couldnt even tell I had chemo, came home that day and cracked open a bottle of wine LOL.
Now the brachy stuff from what I have read on this forum I thinking of NOT doing it. It seems very destructive to the body and I am not interested in having pain and worse weird stuff after the treatment I have had. I am now lactose intolerant, all of my stools float now and I have constant back pain and hip pain from the radition and my skin in teh creases of my buttocks is all red and inflamed and peeling and weeping 2 WEEKS AFTER external radiotherapy completed. I have had no bladder symptoms other than now I can pee again! (before the tumor was blocking my bladder) Sooo has anyone decided not to let them ruin you firther with the tortuous brachy business? how long can I be expected to live after?
Also I do not want to consent to a catheter they aways cause me issues how they do brachy here as I was told is I go in at 6 am.. they knock me out for 4 hours and I wake up in recovery and can leave as soon as I can pee. Does this sound logical? what I have read here is people writhing in pain and crying and screaming (terrible to read for someone who already has PTSD from watching my husband die from brain cancer. I would rather honestly die than suffer. Any advice?
I am not willing to accept further side effects or pain after so what would the people here advise? can I demand no catheter, smaller applicator ( I am a very very very small girl 100 pounds and very petite down there) can I only do one vs all 3 what have others done who are not very commited to the process?