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Many of you don't know me as I'm on the advanced cancer site.
I've done a lot to pressure NICE to change protocols (successfully) regarding treatment breaks for cervical cancer patients. These were discriminatory before.
I'm now, realistically unlikely to survive another year. My voice will be lost. It's up to you all to keep the pressure up. This article in tomorrow's express was written by a journalist who really understands how shoddily we are treated. Her contact details are in the article.
Jan-Mar 2017 35 EBR 5 x Cisplatin
6/17 All clear
12/17 2.5cm tumour,incurable
3/18 7 x carbo/Taxol/Avastin
8/18 MRI CT-PET cancer free.3 Carbo/Avastin 11/18 remission
4/19 15mm endocervix recurrence
7/19 -8/19 5 x SABRE LINAC
11/19 MRI- treated area stable,but tumour growth at uterine fundus and full thickness of myometrium.
Surgical opinion 4/12/19 laparoscopy cancelled 27/1/2020 CT PET tumour 12.5cm,no mets possible Pagets disease. Surgery ruled out 28/1/2020 Biopsies taken
2/2020 started 6 cycles of Doxirubicin and carboplatin
7/20 tumour active again. Platinum resistant. No further treatment availabile.