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Prepare for chemorads and brachytherapy

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Triumph-Girl
Prepare for chemorads and brachytherapy

Hi there - firstly I'm being a bit of a dimwit, can't work out how you post the history so it appears under your posts?

Secondly I have my scan plan next week to prepare for 45 days of chemo rads plus 2 brachytherapy then dilators.  Would appreciate a shopping list in readiness for these 9 weeks of I don't know what yet.

It's  a 40 mile round trip to the hospital, do you manage to drive? I'm told chemo day is long, how long?

I should have asked my Oncologist more questions but it was a telephone appointment due to Covid so not easy.

I've been a member for a couple of weeks now and gained a lot of information from your posts, a great help so thank you

I'm a bit scared of after effects

Triumph Girl

  • 20 yrs ago CIN3 diagnosed, diathermy loop and cone biopsy, annual smears for 10 yrs, asked for 3 yearly but told not necessary
  • Mar'20 ultrasound showed pyometrium? and left ovary cyst?
  • Mar'20 hysteroscopy and biopsy showed pyometrium and scc
  • Apr 20 MRI concludes 1B cervical tumour and 1A endometrial tumour
  • May 20 Total abdominal hysterectomy and bilateral oophorectomy
  • May 20 pathology shows 4cm SCC in cervix, scc in lymph vessel and margins not clear.
  • July 20 PET scan shows possible small node
  • July 20  CT scan clear
  •  Aug 5 chemorads and 2 brachytherapy
  • end date 15 Sep
emmz13

Hey lovely, 
I'm sorry that you've joined our exclusive club, it's a shitty time but the ladies here are amazing!! 
I think you can edit your signature under account - edit - and scroll down a bit but I'm on my phone and I struggle to use a lot of the settings. 
I had chemorads, it was completely doable just listen to your body and rest when you're tired eat when you're hungry and be kind to yourself. It affects us all differently so be prepared to adapt to whatever it throws at you. 
I was lucky that my husband drove me everyday as the hospital was 28 miles away. I think some ladies on here drove themselves but maybe have someone on standby in case you don't feel up for it. 
I had lots of little snack bags for the chemo days like nuts and fruit and mini ginger breads my hospital offered unlimited tea and coffee and sandwiches but I guess this may not happen at the moment. The chemo days for me were fairly long, days about 10 hours but two of those hours were travelling. 
I wore clothes that were easy on and off coz my supersized bladder didn't want to cooperate for the radiotherapy and I was forever part emptying and trying again. Staying really hydrated helps too. 
I read on the forum that a lady recommended lyonsleaf Calendula and marshmallow balm for the possible radiation burn or sore skin, I used it everyday with aveeno and had no issues whatsoever, It might have been nothing to do with the lotions though and I just got lucky. 

It might be worth getting some moist toilet paper in case you do find yourself have bowel issues that can make everything sore quite quickly, the chemo anti sickness drugs bunged me up like crazy which was eventually counter balanced by the radiotherapy effects so again it all worked out well for me lol 
I was lucky with all treatment to feel pretty good but if you have any issues then just tell someone they can change your drugs and offer solutions, they have seen it all over the years. 
There are loads of stories and tips about the brachytherapy part on the forum it might be worth a search but even that is really doable. You will get through it just fine, as I said the women on here are lights in the darkness and can pretty much answer any question you might have. They have helped me no end in the last year. 
much love to you, 

emma xx 

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

rufus

Hi Triumph-Girl,

Emma has given some great advice and I would say the same. I have got radiation burns which came up on the last day of radio.  They are in my groin which I hadn't expected so hadn't been moisturising. Doh!  
It is all doable. I literally finished mine yesterday:-)

I would have been happy to drive myself to my radio appointments but I personally wouldn't have driven myself on chemo days. The steroids left me feeling like I was tipsy and wouldn't have felt safe to drive.  
One thing I learned through the process is that eating settles your stomach and I ate loads instead of taking tablets. It took me ages to realise that getting two delivery's at different times of the week meant I could have the snacks I wanted rather than eating all the good stuff at the start of the week and then not having anything I fancied in the house for the rest of the week.  
Good luck with the treatment.  It does fly by once you get started. 
Much love. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3c. Chemo rads completed 10/7/20 Brachy 14/7 Done!

Harvitt

Great advise. 

I had tummy upsets due to the rads. The balm is amazing for a sore bottom. So soothing. I was advised not to use over thr counter baby bum creams as they have oxides in and the rads would cause them to burn your skin. 

Drink loads and loads of water. 

I drove myself to all rads and chemo appointments but it was during covid so roads were empty plus I was only a 13 mile journey away. 

Listen to your body, sleep when you need to sleep, eat what you fancy but nearer the middle to end beige/white food might be all you can eat due to the rads and how it effects your tummy. But I'm 8 weeks out the other side and the tummy issues are more or less gone and I'm back to eating everything. 

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.
xxHHxx

Hey, 

Chemo days for me were around 7 hours. Sanwiches and biscuits were provided along with endless coffee, tea or water but no soft drinks. all the staff are very attentive. I did bring my own chcocolate bars and cans of soft drink and a bottle of squash. 

I was advised to bring things to keep me occupied (crosswords, books to read etc) but I found I couldnt concentrate and that listening music was the best solution.

Time goes quite quickly if you like people watching.  And often I would have a chat with my neighbour. 

Having all the chemo fluids makes you want to pee... a lot..due to your journey it might be worth planning a toilet stop or invesring in a she wee!!! 

I didn't drive myself.. I had my own personal chauffer thanks to covid. I could of driven some of the days but others I really didn't feel up to it. 

Again for brachy I was advised to take bits to entertain me. So take a book.. Not a hardback as you will be lying down and they are heavy and make your arms ache. Music and headphones is really the winner for me and it blocks out all the other noise smile and if you can a tablet to watch TV or download a few programmes before you go.

Sleep when you fell you need to, eat when you feel you can (I was told even if you just fancy a pudding that is better than nothing) and exercise or go out when you feel up to it. 

 

 

 

 

 

 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

13.08.2020 3 month MRI - results not quite all clear. 

Triumph-Girl

Hi All - sorry for delayed reply.   Have been lucky enough to celebrate a family birthday in Aldeburgh for a couple of days, was so good to be beside the sea, cheered me up no end.

Am so greatful for all your input, I dont know about anyone else but I have never received any reports apart from the first scan and I just needed info to get my head round all of this.   I requested access to my medical records and the cd's were on my mat when I got home this afternoon.  Theres 277 pages as it also includes other small things like nail fungus reports!   Just been through and printed off the Reports of all the scans, biopsies and ops and got a much clearer picture.   I have also been online shopping - bought the Aveeno and Lionsleaf creams, an old post mentioned a chemo bag, may look for something cheery to keep the spirits up.  So worried about the bladder and bowel problems, guess I should get some Tena Lady stuff too.

Anyway, all scary stuff but its just got to be dealt with, lets hope Covid doesnt get in our way and wish everyone on here future health and happiness.

Thank you all

Triumph Girl

  • 20 yrs ago CIN3 diagnosed, diathermy loop and cone biopsy, annual smears for 10 yrs, asked for 3 yearly but told not necessary
  • Mar'20 ultrasound showed pyometrium? and left ovary cyst?
  • Mar'20 hysteroscopy and biopsy showed pyometrium and scc
  • Apr 20 MRI concludes 1B cervical tumour and 1A endometrial tumour
  • May 20 Total abdominal hysterectomy and bilateral oophorectomy
  • May 20 pathology shows 4cm SCC in cervix, scc in lymph vessel and margins not clear.
  • July 20 PET scan shows possible small node
  • July 20  CT scan clear
  •  Aug 5 chemorads and 2 brachytherapy
  • end date 15 Sep
Triumph-Girl

Just another thing - 45 days chemorads is a heck of a lot?

Triumph Girl

  • 20 yrs ago CIN3 diagnosed, diathermy loop and cone biopsy, annual smears for 10 yrs, asked for 3 yearly but told not necessary
  • Mar'20 ultrasound showed pyometrium? and left ovary cyst?
  • Mar'20 hysteroscopy and biopsy showed pyometrium and scc
  • Apr 20 MRI concludes 1B cervical tumour and 1A endometrial tumour
  • May 20 Total abdominal hysterectomy and bilateral oophorectomy
  • May 20 pathology shows 4cm SCC in cervix, scc in lymph vessel and margins not clear.
  • July 20 PET scan shows possible small node
  • July 20  CT scan clear
  •  Aug 5 chemorads and 2 brachytherapy
  • end date 15 Sep
Harvitt

I use to call my chemo days - spa days. Honestly, it seems a lot but it will go quickly once you start. Stay positive 

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.

More Information

Treatments for cervical cancer