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Radical abdominal trachelectomy

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Katie148
Radical abdominal trachelectomy

First routine smear 6 months before 25th birthday (after begging for an early one at 21) - showed severe CGIN, referred to Colp - February 

Colposcopy biopsy x2 CLEAR, referred to MDT (they didn’t explain this to me properly so I thought it meant I was fine) - March 

NETZ under general anaesthetic - 16th April 

Diagnosis (at least) stage 1b1 - report signed off 8th May

Report accidentally uploaded to patient portal early whilst I was sat at work, refused to speak to me on the phone and said it’s “out of their league” - 14th May 

Face to face “you have cancer, here is your macmillan nurse” meeting - 15th May

MRI & CT clear - May 20th 

Radical abdominal trachelectomy scheduled tomorrow (18th June) 

24, single, desperate for a family so I’m hoping this will work and no more treatment will be needed 

Lotty9000

Hi Katie

Wishing you all the best for tomorrow! Hope it goes well and you make a speedy recovery.

xxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

29/8/19 Total Laproscopic hysterectomy with ovarian conservation.

26/9/19 pathology confirms NED:-)

CJ2019

Good luck!! I am having mine on Monday xxx

CJ

Katie148

Update for anyone trawling through these forums worrying themselves like I did... trachelectomy worked, cancer free 1st July!

Holly_Louise1712

Hi katie, 

so glad to hear your cancer free! I am having a Trachelectomy on the 11th November. Like you I am desperate for a family so praying that I have no spread. How soon after did you find out your lymphnodes were clear? I am 1b squamous cell, grade 3. I have read that grade 3 is the most aggressive, does anyone know if this grade is more likely to spread? 

 

Thabks, holly x 

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