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Radical Hysterectomy

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LaurieBeth
Radical Hysterectomy

All of my calm and resolve temporarily faded today, as I spent most of the day crying and stuffing my mouth with any junk food I wanted to eat. Tomorrow at noon I start fasting and bowel prep and then my parents will take my  kids for the week and then I have to suffer through the night before surgery. I think Mother's Day hit me hard--I had such a nice day with my daughter and son and after being quarantined with only them since March 13, it is traumitizing to think of having  them taken off from me, especially with all these thoughts of cancer. The past eight weeks I have apent obsessively focused on this surgery-the date was not really for certain until two weeks ago because of COVID. I have focused on getting  strong and getting clothes and supplies for surgery. I have been so focused on the surgery that I think I have managed to sort of not think as much about the cancer. I have no sympyoms and feel great....

Anyway, today it all hit hard. I knew these last couple of days before surgery would be rough, and today was. I wish I could just fast forward to the part where I am waking up from surgery. I know I can make it. I have made it this far. But today I was just sad and scared and terribly anxious about the future all day. Hoping I can get some sleep tonight...

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

rufus

Hi LaurieBeth,

Its ok to be scared and hit with emotions the day before your op.  It just makes you human. I'm sure we have all had down/difficult times through this, and often without warning. I should imagine you have hidden what you are going through from the kids and now you can acknowledge that it's hard and emotional. 
Once you get to the morning of your op, you will be able to put your game face on, straighten your crown and get that cancer kicked. 
It will be ok. 
much love and virtual hugs

Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

FeelingTheFear

Hi lauriebeth,

It's all feeling really real now isnt it? Me too! 

Dont worry. I just know you're going to be ok. Youve got the strength to sail through this. You just had a totally normal little wobble but like rufus says, you'll soon have your game face on!

Thousands of people have our surgery or similar every year all across the world, and we will be in the best of hands to see us through the op and into recovery. 

Keep going with your mindfulness. Breathe. Stay in the present moment. The future lauriebeth has got the strength to deal with whatever is coming up next. You just worry about the right now, and breathe :-) 

This is what I keep telling myself to calm myself down! I had a bad dream last night and it has rattled me but I'm trying to keep my cool

Lots of love xxx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

rufus

Good luck, LaurieBeth.

I will be thinking of you. 
Much love and big hugs 

Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

LaurieBeth

I managed a relatively decent day today. Just have felt awful since late afternoon from fasting and bowel prep. I managed to say goodby to my kids without totally losing it and spent the afternoon and evening watching television with my sister. My surgeon actually called me himself tonight to see if I had any questions. I am in bed now but the alarm is set for five and a half hours from now. Hoping I can manage some rest somehow. Just trying to remind myseld that this time tomorrow surgery will be done and I will be on my first day of recovery. Thanks for all the kind words, ladies. All of you have helped me so much since my diagnosis on March 20 through all of my ups and downs. You have seriously helped me feel more sane and I appreciate it. Stay strong, everyone. Keep fighting the good fight and I will post again when I can.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

Izzzy76

Good luck! Thinking of you❤

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
FeelingTheFear

Sending you so much love and healing energy today Lauriebeth! You've got this! You're almost there!

Look forward to catching up with you on the other side of our surgeries xxx 

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

rufus

Good luck, FeelingTheFear.

I will be thinking of you and sending positive vibes.
You have got this. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

FeelingTheFear

Thanks rufus, having a wobble today as to whether I've made the right decision or if I should have opted for the trachelectomy instead. Theres no way of knowing what path would be the best longterm.

As you've said, you make the decision- move on - dont look back!

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

rufus

Hi FeelingTheFear,

I think you had a good look at all the options earlier in this stressful journey and made a smart choice. Knowing the way things have worked out on my journey so far, with unseen microscopic cancers lurking in my lymph nodes, and an unclear margin around my cervix I would conclude that you don't [email protected]&k around with cancer - better out than in!  
Doubts are inevitable really close to the event and you wouldn't be human if you didn't go there.  Remind yourself of that wonderful place you will be in when you are cancer free.  
Much love and virtual hugs. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

FeelingTheFear

Thank you xxx

I needed this! You're right. I thought it through and concluded to kick this cancer hard in the nuts. No half measures!

Been thinking of lauriebeth who must be in surgery by now. Hoping she is having a smooth, safe, successful op

Lots of love to you both x

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

LaurieBeth

Hello everyone! It is 1:30 am here in Georgia and I just wobbled four laps around my floor with a really adorable male nurse. Ha! Less than 24 hours put of surgery and i have to say that it has been (so far) much less traumatic than expected. I arrived at the hospital at anout 5:15 , had my temp take and was given a mask and then checked in. Had to run to the bathroom for one final bowel prep explosion, which actually gave me the giggles because of the wide range of sounds escaping me in a public restroom. They called me back at about 5:45 and had me change into a gown, socks, and fancy surgical hairnet/hat. They wanted a urine sample but I had nothing left after the bathroom adventire, but that was fine. Then, one nirse got my IV started while another asked me questions and signed consent. I was nervous and shivering so they started the heated blanket. I was then left alone for about 30 minutes, during which I read a book and listened to some playlists ai had some friends make me. I thought that might be a good way to feel less alone, and it was. Them the anesthesiologist came and talked to me and i had to do a terrifying consent  form for him. He also told me he would be putting in the epidural then. This threw me. I dont know why I thought that would be done when I was asleep--clearly they can't do that--but I was not emotionay prepared for it. I had a painful experience with an epidural when I had my son, so I panicked. They were getting me ready to do it, and i could not regulate my breathing at all and was also crying-no sobs, just a steady stream of tears. One of the nurses asked the doctor if I could have some meds for anxiety and he originally said not but after she pointed out my high anxiety he relented. It was a very painful and unpleasant experience and i got incredibly nauseated,  but the meds made it tolerable. And although it was not over quickly, it was over. My oncologist came in and made me sign a COVID form and then they rolled me down the hall. They moved me to the OR bed and a nurse  chatted with mw anout traveling and hiking and that is all I remember.

I woke up and thought, wooo hoo! i survived! The surgery took two and a half hours and I did get to keep my ovaries. I realize they may still get fried later, but I had been scared he would open me up and see something that made him know I would need chemrads and take them. I woke up in some pain-maybe a six of ten. Lots of pressure and the feeling that I might have explosive diarrhea on the table so I asked for a bedpan. She went to get me more pain meds and realized that altjought rhe post op epidural meds had been set up, they had not been switched on. Once it got flowing, my pain settled to a 2/3 when moving and a 1/2 when still. They let me eat some ice and then moved me into my room. It has a private bathroom and big window, but the window looks at a wall. 

i have IVs in both hands and had contunuous blood pressure and heart rate monitors for about six hours after sugery. Additionally the foley catheter (which thanks to to the epidural I sm totally unaware of), the compression sleeves that compress and deflate in my les and the epidural line. Basically I am a snarl of cords and monitors. My pain has remained very well managed. I did have some nausea and asked for meds fot it twice. Since I am alone at the hospital, I have made sure to advocate for what I need, and I can't say enough about how wodnerful these nurses hsve been. I got a snack right away and an ensure and some water. Nursed it all to make sure I did not throw it up. I felt better almost immediately after eating and allowed myself to be washed in relief for this step to be done and that the tumor at least is out of my damn body. I can feel my legs even with the epidural so I have neem obsessively rolling my ankles and moving my legs for ciruclation. They gave me a little contraption to inhale into to measure oxygen in my lungs and I need to do ten deep breaths an hour. But I have been doing a lot more than that, just because I know it helps. And drinking so much water. My blood pressure has been a little low and I ran a low grade fever for a couple hours. I taked to ny kids and a a friend and was able to eat half my dinner. Basically, the day has been so much better and easier than expected. Even the walking. Getting up from the bed was painful (just sore feeling5 of ten). My first lap I felt a ton of abdominal pressure and discomfort but the more we walked the looser and better I felt.  We came back and they had changed my bedding and they changed me into a fresh yellow gown and socks and here i am!

i kmow there is a lot more recovery to go, but a RH is totaly doable. Doing it is way less traumatizing than thinking of doing it.

Going to get some rest now, but wanted to let everyone know it was done. And much less dauntig thank it seems in your brain.

 

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

rufus

Well done, LaurieBeth!
The hardest part is behind you now and recovery takes patience, but is ok. I'm glad they are looking after you well.  I'm sure you will continue to make good progress and kick cancer's butt. 
much love. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

FeelingTheFear

Wow lauriebeth, you are such a champ! Check you out, eating, drinking, walking, and posting online! You're amazing! Well done I am so pleased for you that you've got through it and you're feeling ok, albeit lots of wires and the epidural sounds horrendous but you got through 

I am in hospital now waiting for my surgery tomorrow morning. I have a private room and its very nice, 2 large windows, ensuite and a tv. I'm very anxious and scared and wish I was not here. Its lonely too. I saw on my admission form that I'm scheduled for 5 nights so hopefully they will let me out on monday. 

I think youre terrifically brave. You've done it! Now you can just take it slow and gentle and let your body work its healing magic. Bravo lauriebeth! Xxx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

rufus

Hi FeelingTheFear,

Good luck for tomorrow,  You will be in my thoughts.  By the end of the day you will be starting your recovery.  You can do this!  Deep breathing and positive thoughts. 
Much love and big hugs. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

FeelingTheFear

Thank you rufus, you've been so kind throughout this. It will be good to get this over with and start dealing with whatever is on the other side.

I think you've your planning meeting tomorrow too, and I will keep my fingers crossed that your treatment plan is well explained and fully doable xxx strength and love xxx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

LaurieBeth

I am sending so much good energy your way, FellingtheFear. They have left my epidural in for another day, so I think I will be here another day or two longer. I felt pretty rotten this morning-not with pain, but just lack of sleep and all the meds. My lovely nurse found me some earplugs and a sleep mask and put me flat on my back and I got some rest. High sittig is hard on the neck and rhe back. I have taken two  more walks and they get easier each time. My oncologist stopped by and explained that the pain is mostly from my abdominal muscles having beem stretched apart and clamped open for three hours. That makes the pain a little less scary. I also caught sight of my incision today-whoa. It is huge-twelve staples. But that thing is not going to just pop open. So I am less acared to move. He also told me that he already knows that he got a good clear margin and that he strongly "doubts I will need chemo and radiation" though he advised that we can't know til the pathology in the nodes is back. I am not internalizing that at all but I did alow myself to celebrate that the tumor was small and localized and easy to totally remove with good margins. I will deal with the lymph nodes when I have the facts.  At this point my biggest advice tonanyone doing this surgery alone  during COVID remains to advocate for yourself. I ask the nurses a million questions and ask for everything I want or need. And to hydrate. I am chugging water like a champ and it makes me feel so much better. And since Inahve the catheter i don't have to get up to pee. I can definitely see that is is going to he a slow recovery that requires rest and patience. Glad for a couple more days in rhe hospital.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

LaurieBeth

My doctor warned me of a day 3 crash, and i definitely had this yesterday. They took out my epidural pump in the morning (painless) and it was a bit of a challenge getting pain meds settled after that. I think my body also crashed from lack of sleep (they do vitals every two hours in the epidural

pump) and lack of normla eating. Also (maybe) my adrenaine wore off. The bottom line was that day 3 was rough for me. I slept most of it. After amlong talk with my oncologist's nurse I decided to go on home last night. In the US they like to get you out of the door ASAP, and honestly, I wanted out. My sister picked me up and we had a 45 minite drive. I had thankfully bought a pillow that goes onto the seatbelt that held an icepack so that I could brace my incision against bumps. I also reclined the seat all the way so that I could use my leg strengh to brace myself against starting and stopping. She also drove like an elderly woman headed to church, so that helped. The pillow is key. We got me arranged and have been setting alarms for meds and catheter bag dumps. I am lucky to have such an attentative sister. The kids are with my parents til Sunday, which also helps. We have had to disregard distancing, but as I am single, there was no other option. So far my at home items that have neen most helpful have been my small rolling table and my heating pads(for my neck! The hosptial bed did a number on it and it hurts as much as my incision). My pain is managed. I just feel like I have been hit by a bus. This first week is just going to be about resting, no doubt.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

rufus

Hi LaurieBeth,

I hope you are feeling a bit better for being at home now and having a chance to sleep. You are over the worst now and need to be gentle with yourself.  
I found that I needed the pain meds up until I found myself forgetting that I shouldn't be lifting ect. Even now I am taking tablets when I need them.  Everyone is different and I don't usually reach for the tablets when I am unwell, but I believe in picking my battles and they give you meds for a reason.  
The first couple of weeks are about listening to your body and only doing what you feel like. 
Well done for getting through so far.  You will kick cancer's  butt. 
Much love and big hugs. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

LaurieBeth

Day four was still hard, but much better. I managed three small outdoor walks (hobbles) and rested in bed most of the rest of the day. My neck is still sore from the hospital bed, so a friend brought by some icy hot patches today and they made all the difference. Anyone preparing for a RH might want to get some sort of over the counter pain patches for back or neck pains that pop up from being in bed and from bad posture due to pain and discomfort. My sister is taking excellent care of me. I also got a call from a health insurance nurse and from my primary care doctor nurse checking on me. All of the support makes it easier to focus on healing. One day at a time.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

FeelingTheFear

Hi Lauriebeth,

Just wanted to say thank you for posting your updates here, and to see how you are feeling today. It sounds like you are doing a great job getting your recovery started and have been hitting those early milestones! Well done x so proud of you x

I dont even know where to start with my experience of the last few days. I had my surgery on thursday afternoon and I'm expecting to be allowed home in the morning (monday). It has been both tougher and easier than I imagined. Things which I thought would be hard turned out to be manageable and things which I either hadnt considered or had thought would be ok, turned out to be challenging. 

Maybe in a day or two once I get home and decompress i will make a little report on my journey, as your account of your experience has helped me, and maybe mine will help someone else. It hasnt been especially dreadful or traumatizing, but it's just been a lot to get my head around. I havent been able to sleep much for thinking about it all. Looking forward to being at home soon :-) 

Rufus, I hope you are doing well. You are really my recovery role model and want to thank you so much for your support over the last few weeks too. I have been thinking of you and wishing you continuing positivity and strength 

Lots of love to you both, and big hugs xxx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

LaurieBeth

So glad to hear from you FeelingtheFear. I have been sending you all my best thoughts and am glad you will soon be home and resting.

Days 5 and 6 post surgery have been all about bladder and bowels. My surgical pain is minimal at this point-I only take an occasional narcotic pain pill. But the constipation and bloating have really neenna challenge. My belly is often swollen and hard like I am seven months pregnant. And that makes it impossible to get comfortable. I take gas pills, hydrate, drink prune juice, peppermint tea and I am waking three to four times a day and it has just beem hard to find relief. Then, my bladder woke up and was super angry at the catheter. I called the nurse to see if I could take it out yesterday, but she said no. So I struggled through yesterday all bloated and miserable and then this morning, I took the catheter out. It was easy and the relief was immediate. I can't exactly feel the urge to pee strongly  yet, but if I sit on the toilet I can easily go. Having that thing out made me more mobile and being more mobile helped with the gassiness. I was also anble to finally poo yesterday and today, so I am hoping all of that evens out over the next week or so. If you are preparing for a RH definitely stock up on whatever products you want to use for constipation and gas. It has seriously been more bothersome than anything else.

Sleeping is also a challenge. I bought some wedge pillows and have a ton of others including two from the hospital but finding a confortable position was almost impossible with the catheter. I am normally a stomach sleeper, but that is NOT an option, and the side was tough with the catheter. Flat on my back makes it hard to breathe with bloatinf, but propped is hard on my neck and back. Hoping that it will get more comfortable in the next week or so.

I had a couple of cries in the past two days just from the total frustration of never feeling comfortable. All the medicines make me feel weird too. But I am trying to stay positive and I am lucky my sister has been taking amazing care of me. My kids also came home today and it is wonderful to see their smiling faces.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

FeelingTheFear

Hi lauriebeth and good morning :-) 

It's so nice to hear you have got that catheter out and that it has lifted your spirits to see your kids. I really cant wait to see my husband, I have missed him so much and it's been lonely in the hospital with nobody to hold my hand. The nurses are kind but they have to keep their distance due to coronavirus of course and they have so much PPE on that I dont really know what anyone looks like and I have come to recognise them by their voice! 

I have had a very different recovery to yours - isnt that strange? My pain is quite bad and at times has been very hard to handle. But my catheter came out and bowels opened 2 days after surgery and since then I have had diarrhoea several times a day. This is uncomfortable as I have to hurry to get to the toilet and I guess it has helped to keep me active haha. The nurses seem to think its marvellous but I am really tired of it and it feels like my belly is a bag full of water. I do wonder if it may be a reaction to the antibiotics as I have had upset stomach when taking them in the past. 

Absolutely agree with you on the frustration of being unable to sleep comfortably. I am a side sleeper but unless I'm on my back I feel like things inside me are moving and dragging and burning. The physio came yesterday and showed me a couple of stretches to take the tension out of my back. Just reaching over my head one arm after the other, then gently twisting side to side from the upper body, shoulder circles etc.

They are giving me blood tests every morning at 6am which doesnt help my sleep haha. I have had so many pokes this week that all my veins are sore and its hurting more and more. There are bruises on my arms from the blood pressure cuffs too. I pray today is the last day and I will be in my own bed tonight :-) xxxx

 

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

rufus

Hi Pleasehelp,

I am so pleased to hear from you.  You have got through it, well done!  
The recovery period does move quickly from one challenge to another. I'm on week 4 now and most of the earlier issues I had have settled down. I am needing to take afternoon naps now and I feel like I am catching up a bit from lost sleep in the earlier days. 
Each day gets easier and time soon passes. 
Much love

Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

FeelingTheFear

Hello ladies, 

I am writing this from my own bed in my own home and I am beyond relieved and happy and grateful to be here! 

I had a cough earlier for the first time since surgery and I was convinced I had torn something but it seems to have settled down now so I dont think it was serious as I had thought! I saw the incision earlier which was a very surreal experience, it was also very numb, so it was like dressing someone elses wound rather than a part of me!

Can I ask you both about swelling, as my pubic hair area is very swollen, soft, puffy, and bouncy, like a water balloon. My labia are also bruised which I did not expect. The hospital were very dismissive of this but I just want to know if this is normal and whether it's going to go down or if this is the start of my new life with no pelvic lymph nodes 

Much love and solidarity with you both xxx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

rufus

Hi FeelingTheFear, 

It is temporary, it does seem weird at the time though.  The last thing to go down is the overhang above the scar. I phoned the nurse to check and she confirmed that it would take a while but it will go eventually.  
I am glad you are home now. It's much more comfortable and relaxing in your own space. 
Take gentle steps and rest as much as you can.  
Big hugs. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

FeelingTheFear

Hello,

Lauriebeth I hope you are feeling more comfortable today, I totally share the feeling of sheer frustration that theres just no nice way to relax and sleep, my husband spent a whole hour last night rearranging pillows in various formations to rey and see if I could find a comfy position and it was just hopeless. I'm sure it will be something to look back on as being funny one day but right now it was just so frustrating! We gave up in the end. Every time I needed the toilet he has to help me out of bed, the hospital bed had handles and buttons which made this easier than at home.

I'm so amazed that your incision pain has faded away so soon! You are a really good healer for sure! I have still got the burning and stinging as my near constant companion. I've ordered an electronic heated pad on amazon to put over my belly to soothe it, and stop me having to ask for hot water bottles. Its annoying being so helpless but I know it's not going to be like this forever 

I've eaten well today and it's a pleasure to be at home eating the things I like, at the time i like, on my own plates! I weighed myself today and put on 3lbs in the last week even though I've only been eating soup and mash potato so I guess some of that is fluid retention 

The swelling in my pubis is still quite scary looking and I have a lot of bruising there now in all sorts of colours :-/ 

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

LaurieBeth

Fighting with pillows is seriously my new favorite hobby. I think maybe one these blasted staples are out I might be able to sleep better, but it is really maddening. I am now stsrting week 2 of recovery and am finally feeling a bit more sorted out as far as digestion. My pain is definitely managed and Inam getting more mobile. I managed to put on my own socks and shoes today, which was an accomplishment. Walking really seems to help me. I have upped my distance just a little bit moving into week 2, and am still doing morning, noon, and evening walks. My parents are here and are handling all cooking and cleaning, so that has really given me a chance to just rest and heal. I am getting nervous about my pathology. Trying not to obsess over it, but I just want to know whether I am done or whether I need more treatment. Waiting is always the worst.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

rufus

Hi LaurieBeth, 

Im glad you are managing to walk, it really helps to make you feel normal.  Things do start to come together and get easier bit by bit.  
Do try and put histology results to the back of your mind.  The surgeon sounded positive so the odds are on your side.  
Big hugs

Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

LaurieBeth

My pathology came in today. My tumor was very small and contained, wide margins, no LSVI, and all lymph nodes clear!!!! I was staged at 1a1 though the speciman from my LIetz was not taken into account for the surgical staging, so that may shift a bit once my oncologist adds it all together. This should mean I need no fiurther treatment, but i will discuss all follow up at my May 27 post op.

I am so relieved and grateful. Hopefully now I can just focus on healing and on getting stronger each day. I feel a little numb. This has been such an intense couple of months. Hard to believe it may be mostly over....

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

FeelingTheFear

Lauriebeth, 

What fantastic news! I can only imagine how you must be feeling right now. Your post raised a tear to my eye. I'm so thrilled that you have this wonderful outcome that I even woke my husband up to tell him! xxx massive hugs xxx

I find out about my pathology next week Wednesday and its a huge source of stress. I'm glad that has been lifted for you. Now to focus on your rapid healing and restful recuperation :-)

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

rufus

Wonderful news, LaurieBeth!
A bit more healing and then back to the walking/cycling and general mischief.  I am sure you will find an appropriate way to celebrate!  

Pleasehelp,  I am sure you will have a positive outcome too. Hang on in there and rest as much as you can.  
Sending love to both of you. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

FeelingTheFear

Thank you rufus :-) 

You have both been such a great support to me over the last few weeks. It has really helped me to feel less alone as you "get it" xXx

I dont know whether to rest or walk today as the achey swelling in my pubis and vulva is really getting me down and I dont know what to do to make it better! I had to cut a notch in my knickers leg hole to stop the elastic from cutting in! I'm going to call my CNS about it today. Maybe I am allowed to put an ice pack on it. Or maybe I'm not doing enough walking, or too much walking.

Hope you are both having a good morning. Its sunny here which certainly helps to lift my spirits, hope it is where you are too! Xxx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

FeelingTheFear

Good afternoon! 

Hope you are both well! I got a bit ambitious last night and ordered takeaway and ate way too much (happy to be home still) and I really need to place myself with food now because my tummy is swollen and hard and sore today! It did taste really good though, haha 

I was allowed to remove the dressing today, to send the nurse a photo as due to corona I have no further outpatient appointments. The bruising is pretty impressive but they are happy with it and so I'm not supposed to apply any further dressings. Feel really nervous leaving it out "unprotected" but I will probably get used to that in time!

Hope you have been able to get your staples out Lauriebeth as that sounds so painful. 

Lots of love xXx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

rufus

Hi Ladies,

Hope you are both ok and feeling a bit more comfortable each day. I hit a milestone yesterday and managed to lie on my front in bed. Yippee!

Pleasehelp, I wanted to let you know that having your scar uncovered is ok. Mine was not covered at all. I have found that wearing knickers (rather than loose pj's or shorts) helps to avoid anything rubbing directly against the scar.  
Taje care, lovely ladies

Big hugs. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

FeelingTheFear

Hi rufus! 

Just wanted to let you know that since reading your advice I have put on a pair of big belly button warmer knickers and my scar is smiling cosily encased in M&S cotton! Great tip! Thank you x

Today I was able to wash my hair and apply some body cream and I am feeling so good about having had a proper shower. 

So impressed you've been able to lie on your tummy! It's really great hearing about things you've been able to do as you recover as it gives me faith and reminds me that I wont be like this forever, sometimes I do actually forget xXx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

LaurieBeth

rufus! Yay on the belly sleeping! I continue to fight with comfortably back sleeping.
I have my hell staples for another seven days. They are itchy and annoying and they weirdly gross me out. They have been uncovered though since the second day without any problem. Some of my numbness in the abdomen is wearing off now so I feel more itching and sometimes some sharp stinging. 

I was checking myself in the shower this morning. My belly is still really swollen-i would say I look about four or five months pregnant. My pubis is also still really swollen, though my groin swelling and tenderness is basically gone. My pain is more and more manageable each day and I feel stronger each day, too. This week I am continuing three walks a day of almost a mile each, adding up to about 2.9 miles. It is all flat and paved in my neighborhood. Neighbors are calling out how much better and faster I look and walk already. Honestly if it were not for the swelling I would feel pretty decent. 

I have a follow up On May 27 for staple removal and the discussion of further treatment/ monitoring. Since the pathology was good, I look forward to that visit. These staples are my next milestone.

 

i am a teacher and I have been working from home due to COVID and today was my last day. We get out early in the American South. I am officially on summer now and can just reat and relax. Because of distance learning I did not have to take any leave at all for anything, which was amazing. The timing of this with COVID seemed so awful, but I am starting to think it was a blessing.

One day at a time!

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

rufus

Hi Ladies 

One of the things I experienced from week one onwards was a mad urge to stretch. I was wondering if either of you have had it?
LaurieBeth, your summer holidays are different to ours but I haven't been able to leave work alone either.  We are planning staff meetings around my upcoming chemoradiation and setting up a new teaching platform for those children who will not be back in school for a while.  I did stop phoning students when I went to hospital but I am hoping to continue as to be involved as long as I can through the rest of my treatment. 
Stay safe and well. 
Much love and big hugs. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

FeelingTheFear

Hello! 

Rufus, it's so funny you should mention the stretching urge - yesterday when I woke up, to start with I had forgotten what had happened to me and sleepily went to stretch out my arms and legs and of course - belly! Ow ow ow!! 

Everything in my belly feels tight and like its pulling me into a hunched posture so I am trying real hard to gently stand up straight so I dont end up putting my back out as well

Lauriebeth, wow! 3 miles a day you are a superwoman! I went out today for the first time, about 10mins walk and though I didnt have pain I just felt HEAVY in my belly and a bit anxious to get home in case some pain was about to start. It will take a while for me to feel confident but I keep reminding myself that this time last week I couldnt even get out of bed.

So sorry you have to put up with those staples! That sounds like such an irritation. I got dissolvable stitches and glue so I dont have to go back for removal, I just have a telephone consultation on Wednesday for the pathology results. My CNS called today and gave me the upshot that the MDT had gone well and I should relax as I was not recommended "adjuvant therapy" but that she will wait for the consultant to go through the full report with me. I can hardly dare to relax until I speak to the Dr. in case there is some misunderstanding or admin error or some small print disclaimer somewhere lol xXx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

LaurieBeth

That sounds like really great news FeelingtheFear! I am like you though and I will not really relax until my post op consult on the 27th.

Still sounds like you have reason to celebrate though!

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

FeelingTheFear

Hello ladies! I deleted my last post as I was having a major Pity Party this evening and just feeling tired and overwhelmed and over emotional. I'd been trying to cut down my opioid pain relief too as I had set the expectation that I would do so by today (although my nurse says it's fine to carry on into week 2), and I was so sore on just paracetamol and ibuprofen by this evening, so I did take some in the end and sure enough when I was then able to stop sitting around in pain feeling miserable.

I am in awe of those who manage to get by and push through that hot searing shooting pain across the incision! It makes me so miserable! Hopefully in a few more days it will have healed up and settled down a bit more :-)  and then I will try again with just the simple analgesia 

Good night! Xxx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

LaurieBeth

When I spoke with my primary care physician today, she was horrified thst my doctor only gave me 15 opioid pain pills for open abdominal surgery. She offered to get me more and said it would be normal to be on them two or three weeks after this surgery.  I say, if you hurt, take somethin. Pain is so mentally exhausting and there is just no reason to hurt needlessly. I also asked my doctor why I have these staples instead of stitches like it seems everyone else has, and she said they make it faster to close up a patient, and they help with wound healing and pain by reducing tension on the incision. So, not onky do bodies process pain differently, but something as seemingly trivial as wound closire style changes things. I guess I need to be happy they seem to be helping with pain because man am I going to have one hell of a frankenstein scar.

i had to take several ibuprofen today for pain from where my ovaries used to reside. Somehow that has been my most tender and painful area, which seems strange.  I am not quite sure where they are in me geographically now, but it weirds me out a little bit. At any rate, I just think the pain pills are part of keeping yourself mentally strong for what is going to be a long recovery.

also, how long before this abdominal swelling goes away? This firm pot belly situation is pretty uncomfortable!

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

FeelingTheFear

Hello and hope you're having a great weekend! 

Thank you for your post which again reassured me that I am not a massive cry baby for not being able to come off the opioids yet. My nurse did say to me the same as you, there is no need to suffer and it's ok to still take the pills, but I just dont like being on them. I am quite forgetful and I cant remember which conversations I've had with which person. I have to keep a tracker for my meds cos I forget if I took them or not. I cant concentrate on TV programmes and really all I want to do is sit or lie quietly and a bit of very light reading. I think I'll have to be a bit gentler on myself and cut myself some slack for a few days :-) 

As much as the staples sound uncomfortable and I'm sure you cant wait to get them out, at least you can feel confident you wont "come open"! Haha! Laughing is a very scary thing for me, which rufus has warned me to expect, but even still! 

Oh my days I totally understand what you mean about swelly belly. My bowels are moving regularly but my tummy is so round and tender as soon as I eat anything that isnt soup! So bored of soup! I've got my full appetite back now and want to eat my usual treat foods but my tummy cant tolerate it. Also I noticed that if I try to suck my stomach in, it's like the muscle to do that is not responding to my brain, as nothing happens! 

I am eating clean since the disaster burger a couple of nights ago but I really crave for some yummy pasta and a garlic bread and also cake! And pepsi :-( I would love a pepsi. Nevermind, I have my peppermint tea!

All the best xXx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

rufus

Hi Ladies,

It is lovely to hear that your histology looks good, Pleasehelp.  There's definitely a celebration to be had when you are ready.  It does seem that the relief of knowing that your treatment journey is over makes people emotional in ways they don't expect. I remember crying for the first time about my Dad's cancer, when he was told that it had been completely removed!
Be gentle with yourselves, you have both climbed a personal mountain and full recovery will take a while. 
You are both doing brilliantly!  
Much love and big hugs. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

FeelingTheFear

Hi rufus, 

Thanks for the encouraging words :-) it really gives me a boost when people have said Im doing well as I doubt myself a lot and seem to need a lot of reassurance which must be draining for those around me. I'm normally an assured confident person and very independent and I dont recognise this fearful anxious person I became over the last few weeks. 

I definitely can't be celebrating until I get the full clarification from the consultant. I am sure the CNS wouldnt give false hope but this is the nurse that accidentally put me down for ovary removal when the consultant and I had always discussed keeping them. So I'm always a bit edgy around her since then!! There were a few incidents like that while I was in hospital with other nurses too. Every single night a different nurse would come to inject fragmin in my leg and I would have to explain about lymph removal and lymphoedema risk, this was really scary tbh as something I feel they should have known about before trying to stick me with needles. 

On a related note I am getting on ok with the dreaded fragmin injections. After doing 3 or 4 I seem to have got the knack of it and found a way that it hurts less than the way I was shown to do it. I guess I am now cured of my needle phobia! :-) 

Thank you so much for your kind and wise words. I will never forget how supportive you are, from the very start when I didnt know what surgery to do. My husband now asks regularly how you and Lauriebeth are both getting on. Hes grateful for the help I've had here too

Lots of love xXx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

FeelingTheFear

Hello ladies 

Bit of a personal question but, have either of you had bleeding? I dont know whether I should be bracing myself, as I havent had any yet, which seems strange?

I hope I dont get any as I had been bleeding for pretty much the last 6 weeks since punch biopsy and LLETZ and I was getting pretty fed up of it! I feel like I am distressed enough by my bruising, swelling, and 8inch scar and I'll be glad if I dont bleed. 

Sorry for the weird TMI question xXx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

rufus

Hi Pleasehelp,

I didn't have any bleeding at all post op.  I was warned about a possible 'gush' of lymph fluid10 days post op but it never happened.  
I know what you mean about wrong information, my new oncologist told me I didn't have my ovaries.  That was on our first meeting and I am struggling to have confidence in her.  The radiotherapy team seem good though.  
Hope you get chance to enjoy the sunshine. 
Good luck for Wednesday.
Much love and big virtual hugs

Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

FeelingTheFear

Thanks rufus, I had read the same in the leaflets about this "gush" around day 10, which I am approaching now, and wondered whether this was something that definitely happens or maybe (hopefully) might not happen. I'm glad to hear that you didnt experience this!

Still have a fair amount if lymph fluid swelling in my pubis, labia, and right hand upper thigh. The only place I still feel that burning stabbing pain now is my right hand groin which must be something to do with the lymph removal as this is the worst area for swelling too.

I hope you are doing well end enjoying the bank holiday weekend as well as you can within the constraints of lockdown. I know you mentioned having done some gardening in previous posts so I'm sure you are glad for that outside space during your recovery! 

Lots of love and big hugs xXx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

FeelingTheFear

I got a bit ahead of myself yesterday as I came off narcotics and felt good with my energy levels and comfort- I did too much, thought if I did it slowly then it would be fine - made the bed, put the weekly grocery shop away, filled the dishwasher, took a walk outside, cleared the table after dinner.... wow do I know about it today! What a fool!

I'm back on the narcotics this morning and will be staying off my feet as much as possible today. I just got impatient. FeelingTheFool more than Feelingthefear today, haha xxx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

LaurieBeth

Sorry to hear about your little setback. Hopefully you got a good day of rest and will be back to feeling good tomorrow. I am really nervous about my oncologist appointment tomorrow. I will get these hell staples out which has me a little nervous because my incision and the area around it is still tender and so I don't love the idea of these 11 things being plucked out of my flesh. But I am mainly nervous about hearing the pathologynand treatment plan. I hsve read the pathology report a million times but until I hear my doctor confirm what the nurse told me, I will be nervous. And, as I am American, a five-year plan comes with quite the dollar amount.  My bill for my surgery was $58,000 and my bill for my surgeon was $9,000. So far cancer had cost over $100,000.  I don't have to pay all that-I am a public school teacher and have very good insurance, but even the percentage I have to cover is astounding considering I am a single mom whose ex husband does not pay child support. It will all work out, but tonight I am overwhelmed bu it all.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

LaurieBeth

Sorry to hear about your little setback. Hopefully you got a good day of rest and will be back to feeling good tomorrow. I am really nervous about my oncologist appointment tomorrow. I will get these hell staples out which has me a little nervous because my incision and the area around it is still tender and so I don't love the idea of these 11 things being plucked out of my flesh. But I am mainly nervous about hearing the pathologynand treatment plan. I hsve read the pathology report a million times but until I hear my doctor confirm what the nurse told me, I will be nervous. And, as I am American, a five-year plan comes with quite the dollar amount.  My bill for my surgery was $58,000 and my bill for my surgeon was $9,000. So far cancer had cost over $100,000.  I don't have to pay all that-I am a public school teacher and have very good insurance, but even the percentage I have to cover is astounding considering I am a single mom whose ex husband does not pay child support. It will all work out, but tonight I am overwhelmed bu it all.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

More Information

Treatments for cervical cancer