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Random MRI appointment

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Rubyshoes
Random MRI appointment

Hello again! Hope everyone is keeping well 

Still waiting for treatment to start but I have had my planning scan last Thursday and my tattoos etc so they said it will be two to three weeks now. 

but this morning I had an MRI appointment come through for 18th Feb. When I rang to see what it was they told me my oncologist had ordered it for week 4 of my radiotherapy!!! Meaning I should be starting next week!!! 

Is it normal to have an MRI during treatment?? 

I don't know why but it's unnerved me for some reason, I hate not being in the loop as I am a planner haha! 

Any advice/experiences would be so helpful.

 

Thanks

Kel x

26/11/20 colposcopy + biopsy. Mass found but no further info given.

2/12/20 - diagnosed with squamous cell CC 

4/12/20 MRI scan 

10/12/20 appt with consultant - stage 2b - 3cm tumour with no apparent lymph node involvement 

19/12 - pet scan 

30/12 Pet Scan appears to be clear. internal examination doesn't show any different

 4/1 curve ball - doctor adv it's possible it's only 1b1 offered choice of RH or chemo/rads adv likely have to have chemo/rads after RH anyway so decided on chemo/rads

6/1 oncologist 1st appointment 

14/1 radiotherapy planning scan

 

Jazza
Jazza's picture

Maybe call your clinical nurse specialist to check out the situation? 

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6 chemo, 25 external radio, 2 brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
Sbray

I had one before starting Brachy so maybe give your nurse a ring to confirm x

lboyle89
lboyle89's picture

I had an MRI to plan my brachtherapy. Roughly about 3 weeks into treatment...maybe its for that? Give your CNS a call to check it out :-) hope all goes well xx 

Diagnosed 2B N0 M0 March 2018 28 external radiation 3 Brachytherapy 4 cisplatin

Rubyshoes

Thanks so much everyone, I will call my CNS tomorrow and see what's going on 😂

take care xx

26/11/20 colposcopy + biopsy. Mass found but no further info given.

2/12/20 - diagnosed with squamous cell CC 

4/12/20 MRI scan 

10/12/20 appt with consultant - stage 2b - 3cm tumour with no apparent lymph node involvement 

19/12 - pet scan 

30/12 Pet Scan appears to be clear. internal examination doesn't show any different

 4/1 curve ball - doctor adv it's possible it's only 1b1 offered choice of RH or chemo/rads adv likely have to have chemo/rads after RH anyway so decided on chemo/rads

6/1 oncologist 1st appointment 

14/1 radiotherapy planning scan

 

Teghog

Hi

Hope you are feeling alright! I've got MR scan next week (final week of chemorads). I've been told it's to plan for brachytherapy and will give them an 'indication' of how my treatment is going. Hope that helps. 
Do you have a date to start the treatment? X

Smear, no symptoms of anything wrong 08/10

Colposcopy and Lletz due to abnormal changes and HPV. Biopsy taken. 05/11

Confirmed CC with Adenocarcinoma 18/11

MRI, CT and PET scan 

10/12 Stage 3C1 due to lymph node involvement

28/12 Due to start treatment - chemorads and brachytherapy 

11/02

All done. MRI for brachytherapy shows no cancer visible in cervix and lymph nodes responding, yey! 

Rubyshoes

Thanks Teghog I hope your treatment is going ok?

still no official start date but I'm hoping it will be soon? They have said I need to have a COVID test on Saturday so I'm expecting it will start next week but I just don't understand why everything has to be done so last minute! So frustrating.

But hopefully I'll find out more tomorrow when I call the nurse??

how have you been finding the treatment? I go through phases of being ok and positive and ready to being scared and wanting to go and hide away and pretend it's not happening  :( 

kel xx

 

26/11/20 colposcopy + biopsy. Mass found but no further info given.

2/12/20 - diagnosed with squamous cell CC 

4/12/20 MRI scan 

10/12/20 appt with consultant - stage 2b - 3cm tumour with no apparent lymph node involvement 

19/12 - pet scan 

30/12 Pet Scan appears to be clear. internal examination doesn't show any different

 4/1 curve ball - doctor adv it's possible it's only 1b1 offered choice of RH or chemo/rads adv likely have to have chemo/rads after RH anyway so decided on chemo/rads

6/1 oncologist 1st appointment 

14/1 radiotherapy planning scan

 

Teghog

Thank you, the treatment is going well so far. I felt like the first few days dragged as I felt sick after the first chemo but then they upped my meds and the rest has been flying by. 
I was exactly the same as you. I was really nervous about what to expect but it's not been scary. Hopefully you will feel better after the first day. The most unpleasant bit of the whole process for me was the Covid swab as the nurse really went for it with my nose, ouch. 
And with the lockdown going on, it's been great meeting people at the hospital and getting out of the house on a daily basis. Everyone will be so supportive. 
You'll be great and smash it. Big virtual hugs xxx

Smear, no symptoms of anything wrong 08/10

Colposcopy and Lletz due to abnormal changes and HPV. Biopsy taken. 05/11

Confirmed CC with Adenocarcinoma 18/11

MRI, CT and PET scan 

10/12 Stage 3C1 due to lymph node involvement

28/12 Due to start treatment - chemorads and brachytherapy 

11/02

All done. MRI for brachytherapy shows no cancer visible in cervix and lymph nodes responding, yey! 

Rubyshoes

Yeh I have the COVID test on Saturday I am really dreading that!!! 

just found out my treatment starts on Tuesday so wish me luck!! All the best for the rest of your treatment lovely 

26/11/20 colposcopy + biopsy. Mass found but no further info given.

2/12/20 - diagnosed with squamous cell CC 

4/12/20 MRI scan 

10/12/20 appt with consultant - stage 2b - 3cm tumour with no apparent lymph node involvement 

19/12 - pet scan 

30/12 Pet Scan appears to be clear. internal examination doesn't show any different

 4/1 curve ball - doctor adv it's possible it's only 1b1 offered choice of RH or chemo/rads adv likely have to have chemo/rads after RH anyway so decided on chemo/rads

6/1 oncologist 1st appointment 

14/1 radiotherapy planning scan

 

Teghog

Hi Rubyshoes

Was thinking of you and thought it might be your first week of treatment this week so wanted to see how you were getting on?

You've got this. And don't worry if you are finding it hard, my first week was harder than the rest of them. It does get easier and you get a routine established. X

Smear, no symptoms of anything wrong 08/10

Colposcopy and Lletz due to abnormal changes and HPV. Biopsy taken. 05/11

Confirmed CC with Adenocarcinoma 18/11

MRI, CT and PET scan 

10/12 Stage 3C1 due to lymph node involvement

28/12 Due to start treatment - chemorads and brachytherapy 

11/02

All done. MRI for brachytherapy shows no cancer visible in cervix and lymph nodes responding, yey! 

Rubyshoes

Hi teghog, 

that's sweet! Yeh my first week of treatment is over yay! Actually not been too bad except for the chemo day which was pretty grim but got through! 

no overly bad side effects yet but taking each day as it comes!! Just focused on getting through it and hopefully that being the end of it!! 

hope you are well xxx

26/11/20 colposcopy + biopsy. Mass found but no further info given.

2/12/20 - diagnosed with squamous cell CC 

4/12/20 MRI scan 

10/12/20 appt with consultant - stage 2b - 3cm tumour with no apparent lymph node involvement 

19/12 - pet scan 

30/12 Pet Scan appears to be clear. internal examination doesn't show any different

 4/1 curve ball - doctor adv it's possible it's only 1b1 offered choice of RH or chemo/rads adv likely have to have chemo/rads after RH anyway so decided on chemo/rads

6/1 oncologist 1st appointment 

14/1 radiotherapy planning scan

 

More Information

Treatments for cervical cancer