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Stage 3c cervical cancer - treatment

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Abimac89
Stage 3c cervical cancer - treatment

Hi All,I have been reading everyones posts on here for the last 6-8 weeks and it really has helped ease my mind and relate to others going through an uncertain time.

 

In August of this year 2020 I attended a routine smear after I was written to in March but due to Covid was unable to make an app at this time... two weeks later I had a phonecall to advise adnormal cells had been discovered and so therefore I needed to invetigate further. I was booked in for a Colposcopy that week (2 weeks after smear). 

A little after a week I was called back and again due to Covid had to go alone to hear my results. I had a strange feeling on the drive into the hospital and although i had no symptems to report something didn't feel right; a gut feeling. 

I sat down in the app room and the Doctor came straight out with it and gave the news that nobody ever wants to hear... "it's not good news I'm afraid, we have found cancer"... soon after the Doctor followed on by advising the positives to be taken is that its very early on and around stage 11b. 

A couple of week later I had an MRI which confirmed the inital diagnosis and I then had to await a multi-disciplinary board meeting to confirm my treatment. A couple of weeks later I was again contacted with a date for an app to discuss my treatment plan. The doctor was very helpful and explained that in order to preserve fertility and my chance of having children in the future they suggested a radical trachelectomy. Again due to Covid things were working a little differently and from that point on I was told to self-isolate as i could be called a few days prior to go in for surgery.

On Monday 16th Nov I had the surgery - they removed my cervix, lymph nodes and top part of the vagina and put a stitch in place to hold my womb. The surgery was a success and the surgeon told me that it went well and there were no visual signs of any disruption to the lymph nodes which immediately came as a huge relief. I was out of hospital in 4 days and I am now 3 weeks post surgery and feeling good / healthy and nearly back to normal. I keep a fit and healthy lifestyle and my doctor told me this will have certainly helped in my quick recovery.

Everything seemed to be looking up for me and then yesterday I had a conference call with my doctor to discuss the biopsy results... he came right out with it and said on testing the lymph nodes x2 have tested positive for cancer and so further treatment is needed asap. He said he has reffered me to a specialist doctor who deals with combined radio/chemotherapy treatment and i now have a meeting on 30/12 to discuss my treatment plan. He said that the tumour was bigger than originally diagnosed and because of the Lymph nodes testing positive he said they would put me at stage 3c for the cancer which is devestating news.

I now have to haev my eggs frozen and come Jan i dive straight into treatment. I know I will come out the other side stronger, wiser and with more grattitude for life and I had one day to cry it all out yesterday but now i am determined to beat this and enjoy life alongside cancer for now, with a view of being cancer free next year and being able to go on and be happy and healthy again.

Out of everything I have gone through so far, the worst part for me was the doctor telling me i need to freeze my eggs and I will be infertile after treatment. I always imagined myself having a family and this news is devestating but I am still hopeful and holding on to that little bit of chance of being able to become pregnant in the future... otherwise I will have to look in to surrogocy I suppose.

Onwards and upwards - on a positive I am so so thankful i went for my smear and this is treatable and we live in a country with full support and the NHS!   

Has anyone else had a similar experience? Would love to hear.

(Sorry to babble on but it feels good to get it off my chest haha).

Abi xx

  

Rubyshoes

Hello lovely

sorry to hear about your diagnosis it's such a horrid time... I can't say I understand what your going through as I am waiting to be staged but I just wanted to pop up and say that everyone on here will be around to support you. Everyone has different experiences but everyone rallying together gives me a sense of solidarity and I hope it will do the same for you..

be kind to yourself. You can do this :) 

xx

 

 

26/11/20 colposcopy + biopsy. Mass found but no further info given.

2/12/20 - diagnosed with squamous cell CC 

4/12/20 MRI scan 

10/12/20 appt with consultant - stage 2b - 3cm tumour with no apparent lymph node involvement 

19/12 - pet scan 

30/12 Pet Scan appears to be clear. internal examination doesn't show any different

 4/1 curve ball - doctor adv it's possible it's only 1b1 offered choice of RH or chemo/rads adv likely have to have chemo/rads after RH anyway so decided on chemo/rads

6/1 oncologist 1st appointment 

 

 

Abimac89

Hello :-)

Thank you, I already felt a lot better just getting it off my chest!  It's a horrible time but I am staying positive, focusing on all the good thats around me and the pro's of my diagnosis. 

I wish you all the best with your diagnosis and hope you find out soon as I think waiting around is the worst part!

xxx

Ashlydia

Oh Abi. How awful for you. To almost be so elated you had got through 'the worst' with the op and then have this come to shock you. 

I really feel for you in terms of fertility, that must be hard to digest. It's great you can freeze your eggs and there are SO many options now but I know it takes away the one option you always pictured in your head. Cancer is an absolute bastard. 

I hope things get better for you and your next appointments are positive. 2020 has been so bad for so many people but I feel like the people on this forum have really just had it the worst, going through all of this at these strange times, alone at appointments and isolating for surgery etc.

 

Take care of yourself xxx

Abnormal smear 11/11/20 wirh high grade severe cells. Called into hospital same day for LLETZ

6/12/20 MDT meeting confirmed 1a1 cancer found in biopsy 

30/12/20 first oncology appointment. Awaiting second LLETZ under GA. 

Teghog

Hi Abi

It must have been so hard getting that news after your operation. Must be a lot to deal with. 
I'm at a similar stage to you as I'm 3C1 so can understand what you are going through from that perspective. It's hard enough without the worry about fertility so hope you are ok. 

xxx

Smear, no symptoms of anything wrong 08/10

Colposcopy and Lletz due to abnormal changes and HPV. Biopsy taken. 05/11

Confirmed CC with Adenocarcinoma 18/11

MRI, CT and PET scan 

10/12 Stage 3C1 due to lymph node involvement

28/12 Due to start treatment - chemorads and brachytherapy 

Jodz XX

Another 3C1 girl hear, starting treatment 8th jan, only got diagnosed 9 days ago and I've just cried everyday since, does it sink in eventually? How is treatment going? 

Jamorgan 

LS17

Hi Abi, apologies I've only just seen your post.
Have you started treatment yet? How are your finding it?

I just wanted to let you know that I was where you are now (sort of) back in May. After experiencing some symptoms, and difficulties with my routine smear, I eventually got one and it came back abnormal. I was booked in for a colposcopy within 2 weeks. 
During the colposcopy I heard those words that will haunt me forever 'Louise, I'm really sorry but everything isn't ok and I've found a mass. Around 7cm'. From that second on, nothing was the same again. 
After the biopsy confirming it was cancer, and scans, I was told that it had spread to 2 pelvic lymph nodes and I needed radical chemo rads. I was staged at 3C. 
I began my 28 rounds of rads, 6 chemo (ended up being only 5 as my kidneys weren't happy) and 2 brachy sessions on 9th July and finished on 28th August. It was tough, but I found the routine helped get me through it. 

(Top tip for ciaplatin if that's the chemo drug you're on: drink water all night, literally as much as you can and wee as much as you can. It'll flush it from your kidneys and make the side effects much less) 

I got the news at the start of Dec that I have an 'unremarkable pelvis' and there's no sign of recurrence or persistence of disease 

 

Really, I just want you to know that you're not alone  there are so many people here for you, including me. And I'm proof that your treatment can and will work! Stay as strong as you can, as positive as you can, and do everything the radiographers and nurses tell you. It will make treatment more effective

 

If you ever need to talk, please do get in touch  

 

Louise x

 

May 20 - cancer diagnosis of stage 3C due to lymph node involvement

Jul 20 - chemo rads starts

Aug 20 - finish treatment 

Dec 20 - internal and MRI NED! 

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Treatments for cervical cancer