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Treatment started today - Hope this helps.

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xxHHxx
Treatment started today - Hope this helps.

So today was my first day of radiotherapy. 

The drive to hospital was unreal. Virtually no cars and lovely country side views.

Get to the hospital and the car parking again was great really quite empty. (can't think of the reason why!!!)

So waiting for my turn. People come in they go out and I'm still waiting., delays.. Oh well I will just people watch. 

"you can start drinking now"... YES nearly my turn! 30 minutes here we go.

Hmm 30 mins come and go. Oh dear I need the loo. Shall I go.? No ill hold it. Come on I can do this. My bladder must be really small!!.

Now it's my turn..... In I go. 

Everthing is explained to me. Yes I still want to do this. 

So I'm lying here being shuffled into place.... Waiting.... Noisy... 

Well after all that I'm a bit disappointed... I was expecting light sabres and a baby yoda to turn up laughing

Alas... Nothing just a noise. 

So all in all an alright day, feel good. 

Just next time I'll wear jogging bottoms save taking my jeans off.. Its cold in there. 

 

Have a good day all. 

 

 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

Philleepa

That made me laugh - Yoda!!!!

Definitely leggings/joggers and slip on shoes to make life easy!

Hope the rest of your treatment goes smoothly x 

I wrote a post "top tips for treatment " might be worth looking up - there were a few contributors xxx

LaurieBeth

Congrats on a good first day of treatment! Keep posting about it please. My oncologist seems to believe I will meed radiation after my surgery, so I want all the insight I can get!

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

JDH

So happy to come across this post. I'm stage 2b currently having chemo at my local hospital for 6 weeks diagnosed 3/2/20 I live alone and shielded for the 3months. Last few days I haven't coped well lots of tears and feeling down. 

Anyway today I had a meeting with the oncologist in Preston (11/2 hours away) and although I'd read a lot about my next stage of treatment (chemo/radiotherapy) I came away with an even lower morale than when I went in, maybe he was just giving me worse case scenario but in his words this will be brutal on your body and by the end of the treatment (5 weeks 5days a week) you will be quite poorly. Maybe I'm just feeling sorry for myself but I'm honestly toying with not bothering. So I decided to look for a forum and here I am.

you sound sI much more positive than me xx

Izzzy76

Hi! Glad you found us! Chemorads can be brutal but they don't have to be. I never got sick, had no bowel issues and no bladder issues

 I was prepared for the worse but the worst thing I had was a slight fatigue which could have easily been due to the fact I had my five.month old little.girl to look after

Just make sure to get your rest, stay hydrated and take your anti nausea meds even if you don't feel nauseated.

 

You can do this!!❤

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
WendyJE

JDH, sorry that's the feeling you've been left with. I had 6 weeks of chemo then a further five weeks of daily radio and chemo (so 11 weeks of chemo) then two lots of brachytherapy. I felt tired and a bit worn out but certainly not poorly. I'm not sure why they would say that to you! I was certainly not my usual self but was still capable of going for shopping or going out for coffee etc. Obviously it affects everyone differently and I very strongly believe that maintaining a positive outlook helped. You can do this, if for nothing else than to prove them wrong!!

No missed or abnormal smears. Odd symptoms started in April 19.

Diagnosed with Adenocarcinoma 2b with one lymph node involved on 1/7/19.

Started 11 weeks of chemo on 15/7/19.

Started 25 external radiotherapy on 26/8/19.

2 brachytherapy and end of treatment on 6/10/19. 

 

LaurieBeth

JDH-I just wanted to send you huge and love. I think this whole thing is a mental fight as much as or more than a physocal one. Especially woth the Coronavirus and being aline so much. It may be an awful few weeks, but it is a few weeks. You can do anything for a few weeks, anything.

sending hugs.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

Philleepa

JDH, I think he was giving you worst case scenario.  Most of us are lucky enough to get away with being tired and having some bladder /bowel issues during treatment and post treatment they mostly go away or are reasonably easy to live with.

I did a blog through my treatment whichbive been told has been helpful to a lot of people. 

If you type "finally started treatment " in the search box, you will find it xx

Jazza
Jazza's picture

Hi JDH

Right now you are looking at the mountain.  But once you start climbing it'll be one step, one day at a time and you'll be looking at the path just in front of you.  We're all different in how we react to treatment but like most things there'll be better days and worse days.  I didn't have a particularly easy time during my chemo-radio, but I started off disadvantaged because it was preceded by a radical hysterectomy.  Nevertheless somehow I ploughed through - looks like a small hill in the distance now.

Your oncologist seems overly negative to me - he should have given a more balanced view.

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: post menopausal vaginal bleed
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1  squamous  cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Various side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
emmz13

Woohoo!! Day one!! Well done you, it will be over before you know it, be kind to yourself, listen to your body.

massive hugs wonderful woman xxx 

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

xxHHxx

Hey LaurieBeth and JDH.

We are all going to beat this along with everone else going through similar. We can so this stay strong. 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

xxHHxx

Day 2 

Very first Chemo day.

Got up nice and early for the journey. Again lovely country views. 

Got to the hospital car park and the barriers were up!! Upon asking I was told that the staff had all gone home due to covid 19!!! Darn it I had already paid for a 7 day pass!! laughing

Can't really moan it was only £4. I hope all the staff are OK but they can take another 4 weeks off just to make sure. 

Got a bit lost, hospitals are a maze and it's obvious that my map reading skills had severely faded since being In The scouts!!! 

Got there. All on lockdown. No visitors, I totally understand that. 

I'm shown to what will be my chair for the next 6 hours looks alright, coffee table, recliner chair, TV!! 

Am now hooked up. Fluids for 2 hours. The nurse explains that I will need to have a wee before the ciplatin just to check kidney function.  I will also have to weigh it!!!! 

OK so I pee in a pan and put it on the scales each time.... There were a lot of times.. Between me and the fella next to me it was like we were on a carousel laughing

The nurses and staff were all lovely offering biscuits and coffees. You have the option to go for a wander as well and make your own. Which I did. 

The fluids were cold in my arm but not painful. 

Now I'm hooked up to the cisplatin for an hour again it's just cold. 

Then another 2 hours of fluids. 

I've decided to try and look intelligent and read a book on the Prime Ministers..... Wilson to May.... I thought I would also take the time to educate myself.... I don't think it's worked though as I got really excited over an egg mayo sandwich lol 

 Well that time really flew by... I'm done... I have been given what seems to be enough pills to fill a chemist. 

Now time to rattle my way to radio therapy. 

 

No side effects as yet. But I do feel a little tired. I'm sure there will be more in the days to come. 

Stay strong all 

laughing

 

 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

Izzzy76

 JDH Hi! Glad you found us! Chemorads can be brutal but they don't have to be. I never got sick, had no bowel issues and no bladder issues

 I was prepared for the worse but the worst thing I had was a slight fatigue which could have easily been due to the fact I had my five.month old little.girl to look after

Just make sure to get your rest, stay hydrated and take your anti nausea meds even if you don't feel nauseated.

 

You can do this!!❤

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Harvitt

HH, 

Well done! Onwards and upwards! 

 

Chemo rads still planned for Thursday - chemo and then rads. Dreading it but wanting it to happen so I can continue to the next stage of my life. Have been like a bear with a sore head for the last week. Terrible mood. Close to tears, tearing strips off my husband and so exhausted.... Haven't even started yet. 

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.
Lou1002

I tried to post last night but kept saying 'error'.

I started my treatment yesterday too.  The drive to the hospital was a bit strange for me too. A lovely sunny day but not many people or cars. The radiotherapy was very quick and the whole thing was about ten minutes. I didn't see Yoda...lol.

 

Today I had chemo which I was dreading. My hubby was going to come with me to keep me company but we did think their policy would have changed with CV and it has. It's a good job he was able to drive the car home though as no parking spaces!! Our hospital has always been horrendous for parking. It's a shame as would have driven myself if I feel okay.

The day went quite quickly. I was hooked up for fluids saline, steroids, anti sickness then an hour of cisplatin. I had to drink lots of fluid which I had to measure in a jug. It was great fun trundling to the loo hooked up. The whole process was 4 hours from start to finish. I then headed to radiotherapy. I've felt a but tired this evening but then  I didn't sleep last night. I've managed to drink 4 litres of fluid today. I was told it's important to keep hydrated and also my flush after Cisplatin was only 15 minutes.

Diagnosed 25.02.00

PET scan 12.04.20

MRI scan 17.03.20

20.03.20 stage 2b confirmed

06.04.20 treatment start

 

 

 

 

 

 

 

 

 

 

 

 

 

LaurieBeth
  • All of you ladies are my inspiration right now. I have been walking twice a day, lifting light weights, doing crunches and pelvic floor exercises and anything I can think of to get my body strong for my RH on May 12. With every crunch and lift I am literally sending all my energy out to all of you for us all to bamd together and use our mighty women superpowers to beat this thing's ass and to get out lives back. Everyone, please keep posting these day by day stories if you can. They demystify the experience and make it seem less terrifying and more just an annoying onstacle to overcome. 
  • Harvitt-you are so close. You can make it girl.

I think my next step is to really work on meditation. I am such an eenergetic spaz-i can barely sit still. But this mental game calls for some new skills, I think..

I will be lifting all of you up to the universe.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

Harvitt

Thank you Laurie Beth xxxx I need to mediate more. I started to, even joined a group before the lockdown but since then and also having three young children and a husband working from home and very limited space it's unmanagable. I will keep trying though. 

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.
Harvitt

I start my treatment is less then 8 hours and finding it hard to sleep. 

Hope yiur gettiig on OK HH.

Keeley

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.
Izzzy76

Time to finally kick this cancers' ass. Wishing you the best of luck and sensing good vibes your way! 

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
LaurieBeth

Keeley-

You have got this. Sending all my best thoughts and energies your way. Try to breathe deeply when you feel panicked and maybe have a mantra you repeat to yourself? Mine right now is-A strong body can fight. I chant it to myself while I exercise and when I get scared to refocus myself on what ai can control right now (not much). Best wishes and keep us posted.

laurie

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII-horrible experience with cruel doctor

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor says we should just take it all out

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Cervical Cancer, no clear margins- doctor calls my situation rare and shocking as my cone had clear margins

  1. 4/1/20-scan shows no evidence of spread Radical Hysterectomy, Lymph node dissection, and ovarian transposition May 12-pathhology staged cancer at 1a1. 

 

Lou1002

Just to say I hope your treatment goes okay today Keeley. Thinking of you.

 

Loux

xxHHxx

Week one Romeo Done!!! 

Last day was friday. A nice and early finish. 09:20 was my appointment.

Oh good Friday... Not a soul around.... Even the hospital was eerily quiet. Some departments closed for the holiday.

So I'm feeling good I have got the drinking down to a tee so I don't have to pee before treatment.

Only myself and two others waiting.

Off I go all goes well. My left Arm aches from holding it up. But that's a small price to pay. 

Now off I go to blood tests.... Well that went a bit Pete Tong.!!!

It was so hot in the room that My blood had coagulated and the couldn't get any out, even with a bit of wiggling undecided

I felt soo hot I hit the deck. My early finish ended up being an extra 2 hours in hospital with checks and tests....

They did get the bloods aswell so not all was lost lol. 

They were so concerned it was covid as I was burning up. It may have has something to do with the anti nuesea tablets aswell.. I will avoid those i think. 

Felt rather rubbish after that and went home for a 3 hour nap.

By saturday afternoon I felt a lot better and have eaten well. This morning I feel like I could run a marathon (I have never and I never will)

My advice drink loads no matter what, even if you think you have, just drink more. 

Anyway week one done onwards and upwards laughing

Stay strong all. 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

Izzzy76

Don 't avoid your anti naussea meds!!! I got really hot and sweaty from the dexamethasone , but please keep taking your meds

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
xxHHxx

Bit late, but here's the update for week 2

So week 2 all done. 

My birthday week. One I will never forget!!!!

Chemo day was my birthday. What a way to spend it 8 hours in hospital.

So I decided to treat all the nurses and staff and brought in a couple of boxes of posh biscuits. 

I genuinely made thier day sealed

I had a good day. 

Radiotherapy has gone smoothly all week. 

I am having a slight problem with the going to the loo!!!  The pills do stop that.. But when I have to go I have to go lol

As it was my birthday I still managed to celebrate with a steak and cake and other chocolatly treats!!

Chocolate and sweet stuff I now have to avoid... It upsets my belly. On a good note I guess I will become healthier.

This week I have felt so much better. Kind of normal. I have managed to do all the normal things within the lock down rules. 

I do have some weird thoughts whilst laying on the slab for ragiotherapy.... I imagine that I'm in an old school computer game a bit like space invaders. And I'm zapping alll the little enemies in me.  Pew pew pew lol laughing

Have a good week everyone. 

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

Izzzy76

Happy belated birthday ❤❤

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Harvitt

Happy birthday h! 

My chemo days are like a spa outing as I'm away from the husband and children!

How are you getting on? 

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.

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Treatments for cervical cancer