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1b1 Adenocarcinoma recently diagnosed

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Candice2310
1b1 Adenocarcinoma recently diagnosed

Hi everyone, recently diagnosed and just looking for some answers really. 

 

I received my dignosis of stage 1b1 adenocarcinoma, after having lletz under GA to remove cin3 and cgin cells. They found 8mm cancer rumour but he thinks there’s more and it was found by accident essentially. They have told me my best case scenario is radical hysterectomy. I’m 28 and have 2 children so I’m lucky I’ve had my children already but I’m terrified! I have to have MRI on the 23rd July and chest x-ray is this standard procedure? I get my results on the 31st July with the consultant I’m assuming he will discuss my treatment then. 

Work have been amazing I work for the nhs and they have been great but panicking having time off work. Also looking after young children and scared the mri and chest x-ray won’t show the best results. I’ve been positive at every stage and each time it’s something more or worse than initially predicted so just want some positively I suppose x

Flower Power

Hello Candice,    Sorry you find yourself here.   The MRI & Chest X Ray are standard procedure they may also require a Pet scan.    Take a deep breath stage 1b1 is a very eary stage and is very curable.  Even if there is further spread the curable rate is very high.   I was a stage 2b and am five and half years down the line getting on with things and enjoying life.   

Flower Power

Petesdragon
Petesdragon's picture

Yes, those things are standard procedure. Nothing additional to worry about there.

The radical hysterectomy is a much better long term option than the chemorads if you are eligible. Once the surgery is over you will heal very quickly because you are young. The cancer will be gone, and you will be able to get on with your life with only a very tiny chance of recurrence.

It's caught, you are going to be cured- look forward to a happy future appreciating life!

Good luck,

Karen 

 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

noodlesdoodles

It is terrifying- the whole thing is overwhelming as it’s a whole new world and not one any of us wanted to be in. Waiting is the worst as you’d mind goes into overdrive - I really feel for you.

Any test you have is to help get the best picture, so you can have the right treatment for you so you can beat this. It sounds like it’s early stages so that’s very positive.

Take your mind off things as best you can by staying busy. Macmillan have lots of good info including about work. 

It’s a rollercoaster so be kind to yourself and I have found this site to be an amazing support. We are all here for you xxx

noodlesdoodles

It is terrifying- the whole thing is overwhelming as it’s a whole new world and not one any of us wanted to be in. Waiting is the worst as you’d mind goes into overdrive - I really feel for you.

Any test you have is to help get the best picture, so you can have the right treatment for you so you can beat this. It sounds like it’s early stages so that’s very positive.

Take your mind off things as best you can by staying busy. Macmillan have lots of good info including about work. 

It’s a rollercoaster so be kind to yourself and I have found this site to be an amazing support. We are all here for you xxx

Katie148

I was diagnosed 1b1 adenocarcinoma after lletz under general, received results 14th May. Radical trachelectomy 18th June (I’m 24 no kids) and got the all clear 1st July :)  

nm_353
nm_353's picture

I’m adenocarcinoma too. I was 1b2. Was told my tumor was 5-7cm, only evidence of the one tumor but adeno can be sneaky! With my tumor size we went straight to chemorads. You may be able to get by with a radical. Goodluck you got this :) Adeno used to be more rare but I am seeing a lot more cases lately! I’m going to read up on this. 

June 2016- pap, not up to date, results abnormal

Julyy 5th-  After followups diagnosed with Adenocarcinoma

July 12th 2016- Met with oncologist, clinically staged at 1b2, staging confirmed with MRI and PET. Tumor is endocervical and approx 7 cm.

August 2016- Started chemorads. Post followup after treatment, NED

Sept 2018- Still NED

Lotty9000

I’m an adenocarcinoma 1A, like you diagnosed following lletz on 9th May. All clear 3rd July, hysterectomy as adenocarcinoma can behave a little differently to it’s squamous cell relative. 

Good luck and Thinking of you xxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

29/8/19 Total Laproscopic hysterectomy with ovarian conservation.

Awaiting final pathology results 

Candice2310

I’m having my radical hysterectomy on Monday. Got told on Wednesday. We have been in hospital all week with my eldest daughter as she had meningitis and sepsis so it’s been a pretty rubbish few months. 

My scans didn’t show anything but consultant said they have slight concerns due to how close the tumour is to my cervix wall so may need further treatment.

 

absolutely terrified for surgery on Monday, but I’ve got a good support network around me. It’s definitely affecting me mentally and emotionally more than physically but hopefully after his we can put it behind us and move forward. 

 

Xx

Lotty9000

Hi

I’m so sorry that daughter has been so unwell. I hope she’s much better now.

Good luck on Monday xxxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

29/8/19 Total Laproscopic hysterectomy with ovarian conservation.

Awaiting final pathology results 

WendyJE

Hi, I'm new here. I was diagnosed with adenocarcinoma at the start of July, despite have had normal smear test in February. Mine was 2b and not suitable for hysterectomy so I went straight to chemorads. Have had 8 weekly chemo's with 3 to go and started radiotherapy last week (mon-fri for 5 weeks) then will have two lots of brachytherapy. Pretty intense but doing so okay so far and determined to beat this. Worst part is the daily two hour round trip to the hospital! Happy to have found this forum and be able to chat to others in similar position.

Diagnosed with adenocarcinoma 1/7/19, started chemo 15/7/19, stated radiotherapy 26/8/19. Due x 2 brachytherapy and end of treatment by 6/10/19

Lotty9000

Hi Wendy

Sorry you find yourself on this forum. I’m glad you’re doing ok and your treatment is underway. You got this! And you’re definitely not alone xxxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

29/8/19 Total Laproscopic hysterectomy with ovarian conservation.

Awaiting final pathology results 

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Cervical cancer