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1b1 with LVSI and 2 lymph node

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Kimberlyg88
1b1 with LVSI and 2 lymph node

I have been diagnosed with 1b1 PETCT and MRI showed nothing anywhere.

Had a motified radical hystectomy 3/7 and 2 nodes test positive.

one node had .5mm and the other .7mm and my original tumor before the lletz was about 9mm.

it was all so small so I can’t understand how it spread to my nodes.

my oncologist is certain all cancer is gone and they are just doing treatment to prevent reoccurrence.

i now have to have chemo and radiation. I am so worried about what happens after treatment. I am worried it will show something has happened and there will be a new tumor somewhere else because it spread.

i need some positive storey similar please.

 

really struggling today!

Petesdragon
Petesdragon's picture

Hello Kim,

I had the same but a very large tumour and five affected lymph nodes. So I went on to have the chemorads after my hysterectomy.

I was 34 then.....56 now! 

Karen x 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

Kimberlyg88

Thanks for replying Karen.

 

I’m having a really hard time with it all.

i start chemo and radiation on Wednesday, whilst I am conforted knowing they are doing the treatment I am nervous for afterward.

i am worried about the first scan and it not going well.

 

i know my stage is early but I’m still so worried because of the lymph nodes.

Petesdragon
Petesdragon's picture

If you read through other messages, there is one common factor. Everyone feels better once the treatment is underway. Limbo is horrible. As long as the lymph nodes are in the pelvis they will be in the radiation field and you will be just fine.

I wish you the very best of luck,

Karen x 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

Petesdragon
Petesdragon's picture

If you read through other messages, there is one common factor. Everyone feels better once the treatment is underway. Limbo is horrible. As long as the lymph nodes are in the pelvis they will be in the radiation field and you will be just fine.

I wish you the very best of luck,

Karen x 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

Kimberlyg88

Yeah they were in the pelvic area.

they are calling is insurance treatment to lower the risk of a reoccurance.

they are just wanting to kill any little floaters. The oncologist assured me i have no tumors that are causing the cancer in my body anymore everything is gone after the RH it’s now just in case precautionary treatment.

Petesdragon
Petesdragon's picture

Absolutely. Get it done , get it over, live your life! It all sounds good to me.

Karen x 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

Kimberlyg88

I keep thinking lymph nodes means the worst possible outcome.

as soon as I say lymph nodes were involved everything feels like it changes and gets very serious.

Im so so nervous that after treatment I will get a back result because it’s escaped before treatment started.

the assure me this is just to kill any floaters but I feel like it’s more serious then that.

Akim76

Hi Kim

I was diagnosed 1B2 March 2019.  I finished radio therapy total (25) last week and had 4 chemo rounds. Last chemo 2 weeks ago. Had 2 brachytherapy. Had RH end of April. They found 2 LVSI and suggested I have preventative treatment. Iam not a doctor but don’t you think your treatments will blast anything that was left even in lymph nodes or elsewhere else?! That is the aim. 

At the moment I feel great. And looking back I think I was so worried for no reason. 

But I do understand your anxiety. I will be dreading my next scan. 

You will be fine stay positive. 

Alice 

Kimberlyg88

Hi Alice,

 

thanks for your message.

i know it will but i just have so much doubt. I feel like it’s  one bad thing after another.

i am just so so worried about it getting worse and not being here for my babies and I’m sick to the stomach about it.

How did you find treatment?

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Cervical cancer