(0)
0 Items £0.00

1B2 Treatment planning

16 posts / 0 new
Last post
Oonsy
1B2 Treatment planning

Hi everyone! Just wanted to pop in and introduce myself. 

I was diagnosed with 1B2 Adenosquamous a few weeks ago and have been up and down to several appts with the amazing team in the Cancer Centre in Belfast. 

I was originally staged as a 1B1, told I would probably be having surgery (which needless to say I was preparing for!) but the MRI showed a 4.6cm tumour which was slightly bigger then first anticipated and which ruled me out for surgery, I was then restaged to a 1B2. 

I met with the radio team yesterday and my consultant  couldn’t have been nicer. Honest and informative which is what works for me!! Treatment is looking like 28 rad, 6 chemo, 3 brach. Not looking forward to the brach....but whatever it takes to blast this cancer to oblivion!!

The plan is radio and CT assessment next week, PET scan when they can get me in and then chemo assessment. 

It still feels surreal, like it’s not actually happening to me, but maybe this is what it will feel like from now on?!! I’m terrified yes, but I’m ready to fight and give it my all and then get on with my life!!

Just wanted to say hello to you lovely bunch, you have honestly been my go-to most days and the one and only site I look at!! Any advice/recommendations would be awesome. Also is there anything I can be doing now to prepare myself? Are there any things that you found were necessary through treatment (practical things like clothes, body creams, etc?). I want to be as prepared as possible now!!

Love and Faith,

Oonagh xxx

Flower Power

Hello Oonsy xx     Sorry you find yourself here but nice to meet you XX  

There is not alot you can prepare for in advance of your treatment.   The only thing you can do is eat healthy and keep your self well for starting treatment.   You will have questions pop up as treatment starts but the only obvious ones I can think of is on Rad days drink plenty of water before treatment.  Get a suitable cream from your team cause it will burn you.   On chemo days wear loose comfortable clothes and take lots of books/games it is a long day.

Once you start treatment just ask away with your questions there are lots of us on here to help xx

Take Care and Good Luck xx

 

Flower Power

Oonsy

Thank you Flower Power, your little tips are so much help!

I still have to meet my specialist nurse so hopefully when I get chatting to her I can find out more as well. I have a stash of books already (I've gotten majorily back into reading since being dignosed....it helps me'escape'!!) and I've got myself a journal to begin (although I sometimes find it hard to get everything down on paper!).

I'm sure I'll be popping on torturing you all again ;) xx

noodlesdoodles

Hi Oonsy

sorry you you’re here with us all as it’s a crazy place to be! Made a million percent more bearable with the support and advice given by the amazing women on here.

Its a rollercoaster of a ride for sure and I can’t offer any advice re: chemorads other than to take all the help you need, rest and look after yourself.

It does feel surreal, I think the same most of the time, but I am sure once my treatment starts it will feel real! 

One thing for sure is you have the right attitude to kick it’s butt and get this done. Good luck and big hugs xxx

Oonsy

Hey lovely! Thank you for getting in touch smile 

A rollercoaster is exactly how to describe it! One minute you're up and then it hits you and you're crashing down. Guess it's all about learning to 'ride' it!!

xx

Memagh

Hi Oonagh, 

I can't offer much advice at the moment either but just been diagnosed 1b2 also so thought I'd say hi. Only staged yesterday but also waiting on PET scan to rule out lymph node involvement before treatment plan. Will definitely involve chemo/radio as tumour is 4cm. I have been googling what I can do to boost my immune system before treatment but have decided to wait until I have my appointment as there are several Vitamins/minerals that are not suitable/beneficial  to take during treatment. Also the nurse will advise on the best creams etc to use on your skin to help after radio. I suppose it's just me being a bit impatient wanting this to start. 

X Maria

Oonsy

Hi Maria.

Looks like we're both around the same stage of diagnosis and planning! We can compare 'notes'!! wink Yes I think you're right, I'm hoping when I meet my nurse she will give me more 'practical' information. I guess the consultant didn't want to bombard me with info all at once. I've jotted down a few questions so hopefully I can get chatting to someone when I'm back on Thursday. I'm a bit of a planner so I like to be prepared!!

I hope you're feeling okay and feel free to get in touch any time.

Big hugs xx

Memagh

Hi Oonagh, 

We will both be on our journey to recovery soon and I’m sure we’ll be able to support each other over the coming months. I’m sure it won’t be easy but we can do this. 

Xx

Lilypingu

Hi Oonagh

Sorry you find yourself here, but you sound like you have a great attitude, which is really going to help you get through this.

I’m presuming that you’ll have Cisplatin chemo, and this would mean you don’t lose your hair. Chemo days are long, as they run other stuff through the IV, so make sure you have plenty to occupy yourself, and snacks! My hospital provided lunch, but I brought crisps, crackers, nibble stuff and fruit sweets in case I got the metallic taste that some people get-luckily I didn’t. I had my phone and iPad to keep me amused. You will be up and down to the loo a lot with all the fluid going into your body, so wear something comfy that you can get down easily as you’ll need to take your drip to the loo with you and do it one handed. I wore a loose top and leggings.

You will be given anti nausea tablets and steroids. Make sure you take them as prescribed. It’s easier to prevent nausea than deal with it if it happens. I was never sick thankfully! 

Radiotherapy is a quick treatment every day. Again, wear something easy to pull down as you’ll need to pull your bottoms down a little. My main side effects from radiotherapy were cystitis and diarrhoea. Tell your team about everything and they will help. I had terrible indigestion but got a prescription which sorted it straight away, and cream and anti diarrhoea medication. 

Dont put body lotion on the area to be radiated-your team will give you a cream to use on your skin.

Learn to rest when you need to...your body will be going through a lot. I was exhausted a lot of the time, so rested as much as I could-housework can wait!

Make sure you drink lots of water to help flush out the chemo. Don’t take any vitamins or supplements during treatment without checking with your team if the are ok. Although it might seem strange advice, limit fruit and veggies during radiotherapy and try to stick to a blander diet as it can really affect your bowels. 

Thats enough to be going on with I’m sure, but ask away with any questions you have. Someone will have been there, done that! 

Best of luck with your treatment, and keep that great positive attitude going! xx

11.9.18:Hysteroscopy/punch biopsies

18.9.18:CC diagnosis-2b

19.9.18:Pelvic MRI

24.9.18:CT pelvic + abdomen/thorax

1.11-24.12.18:4 cisplatin, 32 radiotherapy

10.12.18:Pulmonary embolism

18.2.19:Post treatment check up

28.02.19:Pelvic MRI

02.04.19:3 month check-NED

Oonsy

Hi Lilypingu!

Thank you so much for your message, you make it all sound vert straightforward and very do-able! The tips you give are great too, I have made a note of them in my little treatment notebook!

I think the more comfortable and 'prepared' I can feel, the more at ease I will be going into it all.

I'm getting my rad assessment tomorrow and PET scan on Saturday, so hopefully my plan will be prepared soon afterwards and I can get stuck in!!

Thank you again for your help, it's put me in a positive frame of mind.

Oonsy xx

Lilypingu

Hi Oonagh

Glad to be of help if I can. I wish I’d had someone to give me tips, but I learnt the hard way! It isn’t all a bed of roses, but it’s over a relatively short period of time and certainly doable. The more you know what to expect, the easier it will be, because at least you’ll be prepared. Once you get your plan, I think you feel more in control and you think you’re actually getting on with this and doing something. 

Positivity is SO important in treatment and recovery...there may be times when it’s hard to be positive, but that’s only natural. If you can keep that positivity going as much as possible it’s going to help you so much.

Hoping your rad assessment and scan go smoothly and please come back if you’ve got any questions. All the best! xx

11.9.18:Hysteroscopy/punch biopsies

18.9.18:CC diagnosis-2b

19.9.18:Pelvic MRI

24.9.18:CT pelvic + abdomen/thorax

1.11-24.12.18:4 cisplatin, 32 radiotherapy

10.12.18:Pulmonary embolism

18.2.19:Post treatment check up

28.02.19:Pelvic MRI

02.04.19:3 month check-NED

Memagh

Hi Oonagh,

I had pet scan today and have oncology meet up on Monday. We're getting closer to treatment planning. Good luck with your scan.

x

 

Oonsy

Hi there, I hope all went well at your meeting on Monday?

I had my PET scan on saturday so it's just a matter of waiting for the treatment planning to get sorted out and then they will call me to meet again before it commences.

I'm finding the waiting difficult and the 'unknown'! Physically I'm feeling really well but it's hard to be genuinely happy a lot of the time...! I'm hoping that will change when I know my plan.

Loads of love,

Oonagh x

Sbray

 Hi Oonagh

i was diagnosed on 28th March with stage 2b. Adenocarcinoma Tiny 2.3cm tumour but started to grown into parametrium. Started treatment in Belfast Cancer centre and have to say the team are amazing I really felt well cared for during my whole time there. Started treatment on 13th May and was finished by the 24th June. I have my MRI on the 5th September to see if the treatment worked. 

The Staff in Belfast are utterly amazing. Good luck you’ve Got this

 

 

 

Oonsy

Hi Sbray,

Thank you so much for the lovely message. I'm so happy to hear that you got on well with the treatment in Belfast, it sounds like you sailed through it! It's really reassuring to hear your story and I hope you're recovering well. I'm still waiting to hear from the team about my treatment and start date - every day that passes is a day closer so I'm trying to remain positive (as scared as I am about actually starting!!).

I hope your follow up on 5th Sept goes good, I'll be thinking about you.

Oonagh x

Sbray

Hi Oonagh

honestly it’s all very very doable. Staying positive has a massive impact on every aspect of the treatment.

Keep us updated on how things are

Big Hugs x 

More Information

Cervical cancer