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When I first came to this forum I was searching for positive stories like a crazy woman!
I was diagnosed at stage 4 and needed hope fast.
Here I sit 3 years out and living life every day to the best of my ability. I've been back at work full time since a few months after treatment and find my energy levels are 'normal'.
I've had a few issues since treatment but none that severely impacted my quality of life. I've been blessed, I don't have bladder or bowel problems and I don't have pain or discomfort.
I have been NED all this time and the anxiety still sneaks in every now and then but mostly I live in a place of gratitude.
You may feel scared, you may feel anxious, and you may feel hopeless. I'm writing this to say there IS hope ❤
September 2015 diagnosed stage 4 with lymph node involvement
6 rounds of carboplatin, taxol, avastin
30 external radiation combined with weekly cistplatin and 5 brachytherapy
All treatment completed July 2016
October 2016 pet scan and mri: All clear!
March 2017 pet scan: NED
June 2017: still NED
October 2017 MRI/CT NED
February 2018: still NED
PET/MRI April 2018 still NED
May 2018 stent placement for swollen kidney and dilated ureter
August 2018 PET scan still NED
February 2019 Ureter reconstruction surgery and scans show NED
August 2019 CT scan NEDNovember 2019 check up Lesions found and awaiting laser removal