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3 years out

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Boundie
Boundie's picture
3 years out

Hi everyone,

When I first came to this forum I was searching for positive stories like a crazy woman!

I was diagnosed at stage 4 and needed hope fast.

Here I sit 3 years out and living life every day to the best of my ability. I've been back at work full time since a few months after treatment and find my energy levels are 'normal'.

I've had a few issues since treatment but none that severely impacted my quality of life. I've been blessed, I don't have bladder or bowel problems and I don't have pain or discomfort.

I have been NED all this time and the anxiety still sneaks in every now and then but mostly I live in a place of gratitude.

You may feel scared, you may feel anxious, and you may feel hopeless. I'm writing this to say there IS hope ❤

September 2015 diagnosed stage 4 with lymph node involvement

6 rounds of carboplatin, taxol, avastin

30 external radiation combined with weekly cistplatin and 5 brachytherapy

All treatment completed July 2016 

October 2016 pet scan and mri: All clear!

March 2017 pet scan: NED

June 2017: still NED

October 2017 MRI/CT NED

February 2018: still NED

PET/MRI April 2018 still NED

May 2018 stent placement for swollen kidney and dilated ureter

August 2018 PET scan still NED

February 2019 Ureter reconstruction surgery and scans show NED

August 2019 CT scan NED

Locket

How inspirational!

well done warrior! 

What a great post to us women fighting. Thank you x

Lotty9000

Congratulations! Brilliant news and good to read.

C xx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma 

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

29/8/19 Total Laproscopic hysterectomy with ovarian conservation.

Awaiting final pathology results 

nm_353
nm_353's picture

So great to see you Boundie! Keep living life! Thanks for the inspiration!

June 2016- pap, not up to date, results abnormal

Julyy 5th-  After followups diagnosed with Adenocarcinoma

July 12th 2016- Met with oncologist, clinically staged at 1b2, staging confirmed with MRI and PET. Tumor is endocervical and approx 7 cm.

August 2016- Started chemorads. Post followup after treatment, NED

Sept 2018- Still NED

Weepingwillow
Weepingwillow's picture

What a wonderful post, congratulations x

Idyll

what a lovely post laughing congratulations 

Alice89

Congratulations and thanks for posting an update. 

Its stories like this that give everyone hope. 

Alice xxx

Anna Sparkles
Anna Sparkles's picture

Amazing!!

Diagnosed with CC 1b2 with Lymph Node involvement in April 2013. Chemoradiation with Brachytherapy. May 2014 Reoccurrence to lungs restaged 4b. Taxol / Carbo / Avastin

Locket

This is amazing! Thank you for sharing x

Welshgirly

It's amazing to read this post!  I'm still waiting for staging so this has really helped my mindset xx

Thank you for sharing xxxx

February 2019 - first ever abnormal smear. HPV high risk strain detected.

April 2019 - colposcopy for biopsies

3rd June 2019 - LLETZ for CIN3 

28th June 2019 - cancer diagnosed

7th July - MRI - staged at 1b1 isolated to the cervix

5th August 2019 - radical hysterectomy with lymph node removal planned

emmz13

Thank you for sharing your amazing story!! Congratulations xxx 

May 19 odd symptoms

03/06/19 doctors appt internal exam, said everything looked fine, did smear. 

10/06/19 urgent colposcopy due to HPV positive and severe changes. 

21/06/19 consultant sees 2cm tumour takes punch biopsies. She’s pretty sure it’s cc.

24/06/19 cancer confirmed, grade 3 preliminary staging 1b.

03/07/19 X-ray. 08/07/19 MRI and PET scan. 10/07/19 MDT meeting

15/07/19 restaged 2b parametrial invasion no lymph node involvement.

16/07/19 treatment 5 1/2 weeks chemorads

18/07/19 planning MRI 26/07/19 preassessment Chemo

05/08/19 chemorads start

11/09/19 chemorads end!!!! 

16/09/19 Brachy

19/09/19 DONE!!!! 

DMC8898

Thanks for sharing your wonderful news! 

More Information

Cervical cancer