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Hi everyone. I started this journey in October, but am newly diagnosed with Adenocarcinoma. My pet scan showed a 3.6cm tumor with mild external illac lymph node involvement.
My hysterectomy is scheduled for February 17th. Abdominal. everything except my ovaries providing they seem fine during surgery. I haven't been staged yet. I actually thought the PET Scan would determine my stage? But my doctor has only had nurses call me back to tell me results and they say they wont give any stage until after the pathology from my hysterectomy.
I'm a wreck. A stay at home mom to 7 year old twins. Currently i live in Los Angeles, CA but originally from Seattle, WA. Ive only been here a little over a year so I dont even know too many people aside from my husband and a few neighbors who I talk to in passing. This whole journey has been SO LONELY.
I hadn't felt good for months. I was suffering debilitating fatigue that had me napping constantly. I had joint pain. hip pain and back pain. Swelling of my joints. I have even been diagnosed with a connective tissue disease, but I am beginning to think this may actually have been the cancer all along because the doctors have been very puzzled by my symotoms when no blood tests have really shown anything wrong arthritis wise. They ruled out so many things and now this back pain that couldn't be resolved seems to make total sense.
Also, I was originally told that my cancer was Adenocarcinoma in situ "at least" but it seems if there's a nearly 4cm tumor that it's no longer "in situ" like they have stated. they don't want to give me much info and that just makes me even more anxious than if they could tell me what is going on or what the next 6 months of my treatment looks like. The not knowing is driving me batty.
anyways, Hi from Sunny Los Angeles. Anyone else from the area? Any advice or anyone been in a similar situation to mine? Would love to find some support out there in the big huge world.