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Any Support Group in Bradford?

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Kniterella
Kniterella's picture
Any Support Group in Bradford?

I had a Colposcopy procedure 29 April, the Doc found abnormal cells the Nurse had a look too.  The Doc took several  biopsy samples.  Afterwards my Carer dressed me, we went in the other room.  Doc C told me straight she thinks I have cervical cancer, she found abnormal cells and polyps with the tiny camera.  She said I I will get a phone call next week with results, a Team of Doctors, Radiographer, Oncologist will discuss what treatment is best for me.  

I was a bit sad and subdued.  My Homecare Manager who is a good friend offered me support.

Is there a Sopport group in Bradford?

Last night I searched for cc Charities and helpline, I found Jo’s Trust joined the Forum.  You ladies are amazing, so brave, supporting each other.  I tried to post some replies but they have not been posted.  I pressed Save but nothing happened.  I’m glad there are quite a few treatments and remission can last several years.  That is good to know.

I’m 61 well past the start of Menopause, I never married or had children, I’ve been single all my life, not bothered with a fella for many many years, I never smoked, don’t drink alcohol, I’m T2 Diabetic had Osteo arthritis 20 years I take strong painkillers for OA, many other meds.

I’d be grateful for any advice.

Pray hope don’t worry

Jazza
Jazza's picture

 HI

Sorry you've found yourself in  this club but welcome.

To get help with  posting replies on the forum you can email [email protected]

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: post menopausal vaginal bleed
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1  squamous  cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Various side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
LaurieBeth
  • I am so sorry you hsve found yourself in this situation but I am glad you have found your way here. Good for you for reaching out and looking for al your resources. I have been divorced for seven years now (I do have two children) and I realized right away I was going to need some extra help and support going at this "alone."

    I know you are terrified right now and overwhelmed, but as they move forward things will start to feel easier and more doable. Just take care of yourself and be kind to yourself. Sending you strength!

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor suggest hysterectomy

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Diagnosed with invasice cervical cancer, no clear margins

5/12/20Radical Hysterectomy, Lymph node dissection, ovarian transposition-Staged 1B1-no further treatment needed

Follow up 9/28/20

 

 

Kniterella
Kniterella's picture

Thank you ladies for your support, you have helped me realise life goes on.

I had the dreaded phone call from Secretary at the hospital yesterday (Tuesday), in April, the cc is confirmed.  The Docs discussed what treatment I will have, but first an MRI scan for a more detailed diagnosis.  

The MRI scan table thing was very hard to lay down on, n hole was too small for my body, my back and hips got v painful and my eyes got dark.  So it was not poss to have it.  Another app with a Surgeon he told me if I don’t have a full hysterectomy, eventually the cells would develop into a tumour.  So I signed the form, best thing really.

Update.  By June I have had a chat with 2 Anaesthetists who told me about the full hysterectomy poss in Sept, he advised me to attend a Sleep Clinic for my poss heart condition and to help with insomnia and chronic odaema, breathless etc, he said they are poss symptoms of a heart condition.  The Sleep Clinic would monitor my sleep pattern, REM sleeping habits to, help him keep me under, I’m looking fwd to having a few days rest in Hotel BRI, he said I would be in ICU after op for a few days to stop infection so no visitors.  

I got a booklet about my stay in hospital, its like a diary of number of hrs I sit on the chair, how many times I can walk each day, huh I can’t walk without my zimmer, its not like years ago there was none of this diary stuff.  I’m expected to get out of bed on 2nd day, its a bit hard to take in.  The Surgeon sent me a hospital prescript n one to the Surgery, its a bit like chemo but a really long name, its Provera with 2 strengths to stop the early cancer cells developing,  the other ones are to thin down my womb lining, so many tablets ...  the night sweats are not so bad but still get them in humid weather, I was lathered.

Dies anyine else suffer insomnia?

 

 

 

Pray hope don’t worry

LaurieBeth

Sounds like you already have such a great attitude. Good for you for keeping busy. The waiting is truly the worst part, but keep enjoying the outdoors and talking to friends and taking care of yourself and that scan will be here before you know it. I have been waiting since my scan on April 1 for my surgery and although sometimes the days have been long, it is now just two days away and it feels like time flew.  Keep us posted on your progress!

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor suggest hysterectomy

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Diagnosed with invasice cervical cancer, no clear margins

5/12/20Radical Hysterectomy, Lymph node dissection, ovarian transposition-Staged 1B1-no further treatment needed

Follow up 9/28/20

 

 

More Information

Cervical cancer