(0)
0 Items £0.00

Burning pains

9 posts / 0 new
Last post
Charlotte290
Burning pains

Hi- I was diagnosed yesterday, well, at my colposcopy.. but the consultant was pretty adamant it's CC. 

I have had bleeding after intercourse in the last 2 months, so booked a smear. In all honesty, I haven't been for years- I HATE doctors and have full on white coat fever... so of course I feel it's all my fault and it'll be so advanced because I've left it so so long. 
I am 34 with 4 children....

for the last 2 weeks I've had the most awful burning pain in my tummy, and dull ache in the centre of my back that gets worse at night, it almost feels like there is something there- has anyone else had theses symptoms? 
need some help coping as I am just imagining the worst, I'm riddled and there will be only palliative options available to me

I am extremely anxious, and everyone around me thinks it's the anxiety causing the pains, but I feel like it's the cancer and it's spread. 
I am practically convulsing with worry most of the day and just don't know what to do with myself. Waiting for definitive biopsy result, but may call a private hospital today to see if I can book an MRI in ASAP to just feel like I'm doing something? 

HELP WELCOMED!!! 
Charlotte x

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

Jazza
Jazza's picture

Hi

Sorry to hear it seems you might have joined the club no one wants to be in but good that you found your way here with lots of lovely ladies who will help support you.

I was about 10 years overdue for a smear test when I started to get abnormal (post menopausal) bleeding and I also had a dull achey feeling in my lower abdomen.  My bleeding occurred spontaneously and was not triggered by intercourse (I was celibate at the time) so I was dreading the worst diagnosis but  it turned out I was a stage 2A with clear pelvic lymph nodes i.e. localised cancer and no spread. 

Like you I blamed myself and It is so true that anxiety, especially now that the consultant has suggested you have cc, can put our imaginations ito overdrive.  The NHS (I'm assuming you're in the UK?) is pretty nippy when it comes to cancer and you shouldn't be waiting too long for a full investigation; of course it's up to you but I would suggest that a private MRI won't do anything to improve your medical outcome.  Right now is probably the worst part for emotions/fear/anxiety etc - just to hear the word cancer coming your way is something only people who've experienced it can know.  

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
Charlotte290

Thank you Jazza- I sat up all night and think I've read pretty much every post on here- really settled me (for a minute!!) 

my issue is the back pain, which is actually getting worse- feels like burning in my back, I'm taking so many painkillers and it's not going away. It's a new symptom- so I'm sure it's not too sinister- but the devil on my shoulder says that it is... ive, of course, Googled and have come up with lymph nodes/ovaries that are causing it! 
the more anxious I get (which is a lot!) it hurts even more... just can't relax! 
I have the teenyist glimmer of hope thy the consultant was wrong- but then I think deep down, I know. It's just the most awful feeling! Can't put it into words- feel completely lost. 
I can't seem to talk to anyone they just seem to say the wrong thing! 
If it wasn't for the pains in my back, I think I would be feeling a lot stronger about what's happening: I know that the chances of survival and kicking Cc's butt are strong.. but less so when it's spread- just can't get that last bit out of my head :( 

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

Jazza
Jazza's picture

Hi Charlotte

Really is best to try and stay away from Google especially where you are at the moment.   Though have to admit I did Google a bit myself at the start - the most useful thing I found was the Jo's website.  One of the first things I did was to call the Jo's helpline; I felt like a pressure cooker about to explode and for me it was very grounding to talk with someone who had been through a similar experience.  We're all a bit different in what we do to get through this thing.  As you say anxiety doesn't help back pain nor does staying up all night - I've been there.   Did the colposcopy clinic indicate when you might get your biopsy results?

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
Charlotte290

Trust me Jazza- this place is my saviour at the minute! They said they'll be back in a week- (private so seems a little quicker!) 

I was a similar timeframe to you missed smear wise, but I did have twins (naturally) 6 years ago- so I'm half hoping that it would have been noticed then!? From what I've read, everyone seems to say that CC is very slow growing- just need to try to relax, try to sleep- and stop panicking that I have the worst cancer there is to have! Just can't stop yeh negative thoughts that I'm going to be the (even more) unlucky one... it's just horrid! 
If someone could just put me to sleep for the next few months and wake me when it's over, that'd be great!!!

 

Thank you so much for your support- it really does help x 

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

NightFury

Hi Charlotte 

I am so sorry you have to go through this! 

As I am newly diagnosed I know the anxiety and fear of the unknown too well! 

I am in the UK, from colposcopy to my diagnosis in 6 weeks. Then MRI after 2 weeks, after another 2 weeks treatment plan and here I am tomorrow having radical hysterectomy. Tomorrow will be exactly 5 weeks since I have been told I have cc. 

Trust me, I have been all over Dr Google (and some very very dark places). I also have pains in my groins, both sides which of course make me think it's the lymph nodes involvement. 

Please, try to stay positive - this is so hard but literally saved my marriage and home life. I have 2 small kids, so I had to be strong for them! 

One of the girls here has been my guide and support that I don't know how I'd cope without her! 

If you need a wee chat, support or reassurance, drop me a pm! 

This website and forum is amazing - very informative and supportive! 

I know that the worst thing now is to wait, but I hope and wish it will be a quick wait and you will get sorted soon! 

All the best and take care xx 

Charlotte290

Oh my goodness thank you- so reassuring to hear from someone with similar symptoms- can you tell me what your diagnosis is? (Pm if preferred) 

Did the pain in your groin turn out to be anything? I have noticed that my back pain, although still very much there, is less painful and intense when I'm feeling slightly more calm! 
I go through such ups and downs... one minute I'm talking about it quite positively, the next- whole body is convulsing in fear and I feel this pit of doom in my stomach! 
To now- my biggest fear has always been any sort of surgery- I have such doctor phobia- needles in particular so just don't know how I am going to cope with all of this! 
Wishing you so much luck and sending healthy vibes for tomorrow- please let me know how you get on xxx

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

NightFury

Hi

I have adenocarcinoma of cervix stage 1a2. MRI showed no lymph node involvement however the stinging pain is still there. 

I honestly don't know if it is my anxiety, fear or real thing - At night I can feel something inside my belly, like very early stages of pregnancy type of feeling and back pain too altough not frequently and not very painful. 

I had no symptoms at all, my consultant was very quiet during the colposcopy and later at the LLETZ so I would not even think of cc, the diagnosis hit me hard at my review appointment.

And the Dr Google was not helpful at all!!!! And then I found myself on here and honestly - simple chats and messages kept me sane during my wait for the outcomes and treatment. 

And as per surgery - I am a wimp. Really. When I found out that I'll have a major operation I cried my eyes out. Sepsis, catheter, general anaesthetic, blood, open wound, stitches- oh geez - I had a headache and panic attacks for full week. But again - thanks to ladies here I know what is going to happen, I am very much prepared of whats to come, they guided me and supported!

It is so nice to have someone to talk to who has been in your shoes and someone who you can relate to - it will keep the anxiety locked in a small cage ;) 

If you need any more info or just a wee chat - I am here :) 

Thanks for kind wishes! 

All the best xxx

Charlotte290

Thank you- every response I get really helps! This is definitely my 'safe place' think I've been on this site most of today. 

Hope all is going well x

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

More Information

Cervical cancer